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Post Diagnosis Blood Tests/tests?

Shanmegjilal

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Shanmegjilal Rookie
Shanmegjilal
Posted

Hi , I found out by bx that I have celiac about 1 mnth ago.The GI nurse called to tell me and said to do the diet and the Dr. wants to do another endoscopy in 4 mnths.Thats it???!!!My health insurance doesn't cover a nutritionist consult which my Dr. ordered.I'm figuring it out but don't even know when my numbness/pins and needles in my feet will/should go away.How do I know the diet is working(I've been doing it 1 mnth)???Can I really wait 4 mnths to see?I kind of thought I should have more bloodwork to see if I have any other vit. deficiencies,etc.I know my B12 was low but that is high now after supplementing....How long did people's symptoms continue on the diet?Thanks.

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sbj Rookie
sbj
Posted

You should now contact your regular primary care doctor, AKA your internist, for other testing. At least in my case, the diagnosis came from the GI but other testing and referrals came through my internist. You should ask for further blood testing for nutritional/vitamin/mineral deficiencies. He/she should order a bone density scan. And you should at the least schedule a visit to describe any symptoms you might have that indicate some of the other auto-immune conditions that are associated with celiac disease. Don't bother with a nutritionist - if you see anyone in that regard you should visit a dietitian (anyone can call themselves a nutritionist). But if you can't see a dietitian don't fret - the same type of information is available online so start doing your research!

The follow-up endoscopy is unusual as many GIs don't even bother. I'd ask your GI more about that. The best measure of success will be follow-up bloodwork and resolution of symptoms after dietary changes. Improvement could be rapid but for some takes quite awhile.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
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