Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is 'subtotal' Villous Atrophy?


S-J-L

Recommended Posts

S-J-L Apprentice

Hi,

My endoscope showed i had subtotal villous atrophy. What does this actually mean- is it early or late stage celiac disease etc? This was about a year ago, and my tissue transglutaminase was 164 (below 20 is normal). Now it is 36 after the gluten free diet. Should this be below 20 by now?

Im still having weight issues, ive only put on about 3kg since going gluten-free. I have a bmi of only about 16 (im 5'8), dispite eating quite well. I am, female, 21 years old.

Any ideas??

My family is thin too, but not underweight.

I once had a chest x-ray and the doctor was kinda shocked at how super-fine boned i am-they thought i had Marfan syndrome for awhile cos i also have heart problems and the long 'spidery' hands lol. Do you think that having celiac disease would have done this to my bones or is it just genetic?? I think i got my first celiac symptoms at about 8, when i became chronicly constipated. When i went through puberty i went bone-thin rather than putting weight on.

My stomach has also been really acidic lately but i think this is due to stress.

Sorry for such a rant, I just want answers


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Discussion of subtotal villous atrophy in this article - Open Original Shared Link

S-J-L Apprentice

OK, thanks.

Anyone got suggestions about the weight issue- i just don't know what to do. Ive seen a dietician a couple of times as well.

S-J-L Apprentice

Please? Any ideas...

ang1e0251 Contributor

Sorry, I have the opposite problem; putting on weight without seeming reason. Another poster said they put on weight by watching diet shows then doing the opposite! I would just say what I told my daughter when she wanted to lose 5 pounds for bikini season. Make everything you put in your mouth count. For you, try to eat dense calorie rich food. Foods that are high in healthy fats like avocados, olive oil and coconut milk with all the rich cream left in. Also coconut oil is good for you. Don't skimp on meats as proteins are very important to your bodies health and weight. You can go online and find out what your ideal calorie per day should be. It could be you're just aren't eating quite enough. Add nuts to your diet if you can tolerate them. Hope this helps.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.