Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

? Interest To Start Support Group - Noe Mass/so Nh ?


lpjourney

Recommended Posts

lpjourney Rookie

Would like to get an idea of those that would be interested in starting a support group in the area for surrounding towns? Chelmsford, Westford, Lowell, Billerica, Bedford, Nashua and so many more ......

All ideas and suggestions would also be helpful for creating and running such a group.

How to get printed information donated, centralized meeting place that would be free to use, special speakers, maybe cooking/baking classes....

So many questions not yet thought of.

I'm new to my own personal experience, but have watched and listened to my mother and what she goes thru for the past 17 years. I'm just glad to have found out early, she unfortunately had progressed quite far before being diagonsed. Even now - the slightest thing affects her, she is also lactose intolerant.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Contact the Celiac Disease Foundation. They will be more than glad to send you a starter kit which has some great information.

www.celiac.org

And, good luck!

Laurossi Newbie

Hi All

You can count me in. I live in Bedford, MA

I can look into getting the meeting room at Middlesex Bank in Bedford, for no charge.

Keep me posted,

Laura

munkee41182 Explorer
Contact the Celiac Disease Foundation. They will be more than glad to send you a starter kit which has some great information.

www.celiac.org

And, good luck!

Thank you :)

Vamonos Rookie
Would like to get an idea of those that would be interested in starting a support group in the area for surrounding towns? Chelmsford, Westford, Lowell, Billerica, Bedford, Nashua and so many more ......

All ideas and suggestions would also be helpful for creating and running such a group.

How to get printed information donated, centralized meeting place that would be free to use, special speakers, maybe cooking/baking classes....

So many questions not yet thought of.

I'm new to my own personal experience, but have watched and listened to my mother and what she goes thru for the past 17 years. I'm just glad to have found out early, she unfortunately had progressed quite far before being diagonsed. Even now - the slightest thing affects her, she is also lactose intolerant.

Hi,

My name is Bev and I would also be interested in forming a new support group. I am located in Manchester NH, but travel to MA for work. Have heard other support groups are useful for sharing resources (ie: the multitude of cook books and references that are important during those first few months) and for being able to buy in bulk to offset the costs of some of the gluten free items.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,069
    • Most Online (within 30 mins)
      7,748

    shyloh
    Newest Member
    shyloh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.