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Difficulty Getting Dx

dreamboat

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dreamboat Newbie
dreamboat
Posted

This is all new, so bear with me please.

I got my cbc back,all within normal range.IgA was 158 though.

I am curious if anyone else has had these symptoms.

No allergy showing for food,mild intolerance to milk(never had this before)

1 month ago I had a sudden hive outbreak and the Dr.'s don't know why.

Dx ibs 10 yrs ago, and gerd 5 yrs ago

I have 2 beautiful teenagers, but also had 2 recent miscarriages( also no clue why)

Very itchy skin

and blood pressure fluctuates GREATLY from day to day

and my extremities go cold off and on, but never at the same time.

I also have swollen lymph glands ( all of them)

and headaches

Now the Dr.'s are running tests for Lupus and other things.Has anyone else been in this black hole?

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Mother of Jibril Enthusiast
Mother of Jibril
Posted

The hives and itchy skin could be chronic urticaria (CU). Unfortunately, there are lots of things that could cause the symptoms you're having... infections, autoimmune disorders, mast cell disorders... it takes time to narrow down the possibilities. I know what that black hole is like :( For more than a year I've been trying to figure out why I have chronic abdominal pain with fatigue, weight loss, and periodic rashes. It helped to eliminate gluten and corn... but that was only part of the problem. In February I started having anaphylactic reactions for no apparent reason (they happen early in the morning when I haven't been eating, exercising, taking any medications, getting stings/bites, or having medical procedures)... it looks like I either have ideopathic anaphylaxis or systemic mastocytosis (IA is more common). I have ruled out SO many things! I've seen three gynecologists, an ENT, an endocrinologist, an allergist, a rheumatologist, and several GPs... my next appointment is with a gastroenterologist.

I'm sorry you're having such a hard time. It takes a lot of effort to keep looking for answers.

ang1e0251 Contributor
ang1e0251
Posted

While he's doing all this testing, ask for a celiac panel to be run. Can't hurt.

dreamboat Newbie
dreamboat
Posted
  • Author

Thank you , very much. I believe the doc is doing celiac panel as well as everything else.

I have found out , however, that several of my family member have similar(& worse) gut, nerve and skin problems, which have yet to be resolved, and of course all being treated differently by different docs.

One other thing, my grandfather was 100% irish.

Nothing to do now but sit and wait.

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      Is this celiac?

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    • knitty kitty
      Is this celiac?

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    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
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      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
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