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"gluten Shock"

kvogt

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kvogt Rookie
kvogt
Posted
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plantime Contributor
plantime
Posted

It does sound a whole lot like what some of us go through when we have a gluten accident. The name for it is entirely appropriate!

KaitiUSA Enthusiast
KaitiUSA
Posted

It seems logical...I don't personally have this problem but I know some people on the board do...thanks for sharing :D

Rikki Tikki Explorer
Rikki Tikki
Posted

Hey Kaiti:

That would make a good episode for House! :D

Peaches503 Newbie
Peaches503
Posted

I am a recently diagnosed celiac patient. I did not have really severe symptoms when diagnosed, but they were enough to definitely cause me some major problems. I have never had a severe reaction to gluten, but I am worried that once I go completely gluten free that I will have a bad reaction if I accidentally eat gluten. What can I expect? Is it likely that I will have a severe reaction because my body will have low tolerance to gluten? I'm afraid.

Rikki Tikki Explorer
Rikki Tikki
Posted

Hi Peaches:

I can only tell you about my experiences. Once I went gluten free my body seemed to become less tolerant to gluten. If I get gluten in my body I feel it right away in my stomach, I get sick, the pain comes back.

The only thing I can figure is our bodies become more pure and less tolerant of gluten.

I have never experienced gluten shock though, and I hope I never do. It sounds awful.

Try not to worry too much, just be careful. :rolleyes:

Guest nini
Guest nini
Posted

during the last year before my diagnosis, I had quite a few episodes of "gluten shock" usually after eating out at a restaurant or at a family dinner where there were a lot of bready gluten dishes served. I didn't realize at the time that I was poisoning myself by eating those meals... I ended up at Urgent Care or the emergency room on several occasions because I thought I was having a heart attack, and the vomiting would not stop. This is a very scary condition, and I literally thought I was dying (and I probably would be if I hadn't gotten diagnosed with celiac). There is NO chance that I will ever willingly ingest gluten ever ever again because I don't ever want to feel like that again.

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KaitiUSA Enthusiast
KaitiUSA
Posted

Peaches

The longer you are gluten free the more sensitive you will become. I am very sensitive and usually have nausea and anxiety for about 2 weeks after accidentally ingesting any amount of gluten. I don't have gluten shock like some people do. Try not to worry about it too much and if you do get it at least you will know what it is. Just be careful about keeping gluten free. Good luck :D

Peaches503 Newbie
Peaches503
Posted

Thank you all for all of your responses. It is very helpful to have a message board like this, being so new to the disease and all.

-Peaches

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      celiac.com support

      By MichaelDG · Posted

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
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