Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Of Being Glutened?


jklatt

Recommended Posts

jklatt Rookie

So I have been gluten free for just over 2 weeks and it has been the best! I have been a long time medical mystery and since stopping the gluten I have for the first time not felt tired, my eyes aren't red, no sneezing, no stomach pain, no swollen anything...and I've lost several inches from body. It's been just great! However last night I started to feel that horrible bloated feeling again and (pardon me) a little gassy! I got worried. This morning I woke up with swollen hands and my face feels puffy...my eyes are a little red and I have been sneezing. I also noticed that my stomach feels full and I again feel gassy. I am not sure what I ate, but here's a little run down.

At Easter on Sunday the only thing I can think of that may be the culprit was ham and pickles.

Yesterday I made a potato salad and the mayo didn't say distilled vinegar...just vinegar.

So my question is....did are these symptoms of being contaminated with gluten again? And does any of the above sound like a possible offender?

When will the symptoms go away?

I am going to be eating raw foods today and plenty, plenty of water! Any help would be great!

Thanks,

Jessica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

I started to react like to ham last summer. Twice it happened so I haven't been eating ham only the lunchmeat from Hormel called Naturals. No nitrates. I'm not sure because last week I tried some bacon and I was OK with it. Not really sure why the ham got me. I don't always know why, I just avoid it if I react more than once.

Could gluten have been passed to the ham from shared utensils? Or someone leaning over it with bread or dinner rolls?

GottaSki Mentor

I'm three weeks gluten-free and do feel slightly better during the day, but I still bloat and get very achy joints every evening. I am fairly certain I've glutened myself twice and those reactions were different and happened 30-45 minutes after I ate.

Last night I didn't bloat until 5:45pm -- normally this happens between 3 and 4 so I am encouraged that thing may be improving and hopeful that it will take weeks, rather than months to improve.

BUT I have read many posts that state about 3-6 months or longer for recovery, which has helped me to become a bit more patient with my progress.

TES Newbie
So I have been gluten free for just over 2 weeks and it has been the best! I have been a long time medical mystery and since stopping the gluten I have for the first time not felt tired, my eyes aren't red, no sneezing, no stomach pain, no swollen anything...and I've lost several inches from body. It's been just great! However last night I started to feel that horrible bloated feeling again and (pardon me) a little gassy! I got worried. This morning I woke up with swollen hands and my face feels puffy...my eyes are a little red and I have been sneezing. I also noticed that my stomach feels full and I again feel gassy. I am not sure what I ate, but here's a little run down.

At Easter on Sunday the only thing I can think of that may be the culprit was ham and pickles.

Yesterday I made a potato salad and the mayo didn't say distilled vinegar...just vinegar.

So my question is....did are these symptoms of being contaminated with gluten again? And does any of the above sound like a possible offender?

When will the symptoms go away?

I am going to be eating raw foods today and plenty, plenty of water! Any help would be great!

Thanks,

Jessica

Yes, it sounds like you got glutened...sorry! Did the ham have carmel coloring? I use the Hormel canned ham, it is safe. I also do not use mayo or pickles because of the distilled vinegar, it makes me react.. My brother brought me some gluten free (on the label) corn chips (Great Value) and they glutened me, so beware of even the some of the gluten free products. I am going to email and see if they are made on a dedicated line. I think time is your only friend as far as healing and we all do that differently, but I am finding after 8 months on gluten-free diet that I do react when glutened, but not as violent and healing is faster...hang in there.

jklatt Rookie

Thanks for the replies...I have been slowly feeling better over the last couple days, but still am bloated. I get so confused because I guess it could just be PMS...I'm due in about a week...so I guess that's possible.

However I think I got a little careless with food because I assumed things were safe. I got to thinking about it and it could have been the ham, but I also had on Tuesday these dried mangos and potato salad and possibly that had gluten in it. All I know is that it was depressing feeling like that again after so many days with out that feeling! But I will be patient and I hope that things will improve by the end of summer :-)! This is such a great site for information...thanks again!

Leper Messiah Apprentice

I get the same way too. One day it's great, you feel like 'yes, I've cracked it, that's me gluten free from now on and I'll never feel rubbish again' then for some random reason the reaction comes on. You immediately go meticulously through everything you've ate in the past few hours/days and try to find the cause. I don't know about you but for me I get a delayed reaction which means I only tend to get a reaction after taking on more food 12 hours or so after eating the problem food.

I'm quite impatient but I guess I've had this for so long that I can wait a while for my gut to heal so definitely keep with it! It's annoying to get a lapse but one step back, two forward!

Don't know if this will help but to aid digestion you should maybe experiment with combining the right types of foods - i.e. basically trying to keep protein heavy and starch heavy foods apart, having them separately at different meals; eating fruits alone generally and having veg with either protein or starchey foods.

Good luck.

mushroom Proficient
Yesterday I made a potato salad and the mayo didn't say distilled vinegar...just vinegar.

Don't you just hate it when they say "vinegar". Do you mean wine vinegar, white vinegar, balsamic vinegar, cider vinegar, or malt vinegar (like they use here so often)? I'm afraid whenever I see just "vinegar" I say "No thanks."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Leper Messiah Apprentice

Don't quote me on this but I'm sure I read somewhere that food labelling regulation dictates that if a product quotes only 'vinegar' on its ingredients it has to be apple cider vinegar.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.