Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Learning

osmmommy3

Recommended Posts

osmmommy3 Newbie
osmmommy3
Posted

My daughter who is 7 was just diagnosed with celiac disease. So needless to say my family is justing learning what this is all about. Her celiac disease was confimed by a blood test. We only had one blow up so far :( , because we have two other children who as far as I know are fine. I guess it is just very over whelming to me and my husband of how to make a 7 year old realize that she can not eat like her friends pretty much fo rthe rest of her life. If any one has any advice we surely would appreciate it.

Thanks

Jen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


reneelt Rookie
reneelt
Posted

I am new as well. We are in the process of getting a diagnosis for my 3 year old son. I don't have any advice but I wanted to let you know I know what you are feeling. I am sure you will get lots of great answers. This forum has been so helpful for me.

mamaw Community Regular
mamaw
Posted

Hello & Welcome

Please do not make your daughter feel like she is different from other kids. SHe is exactly the same but her eating habits are going to be different to the extent that other grains will be used to replace wheat. By telling her she cannot eat like other kids will cause emotional issues. & stress.. Our grandkids stated being gluten-free when one was 2 1/2 & the other was 6 1/2.... they are not deprived or starved. They go to parties, school functions, scouts , football & more.

It will take time on your part to make sure she has goodies to match the other childrens. I make lunches for school to match what the school is serving that day , somtimes they just want something different to eat.... About once a month they can have what the school offers....

Make her understand that she still can have ice cream, popcorn, snickers, chocolate bars ( without krispies), fruit snacks , chips, doritos, gluten-free pretzels, popscicles to name a few.....

When the kids get invited to CHuckie Cheese for a party we see that they take their pizza in foil cooked & then the server will heat it up. Same for home parties or stay overs. We let the parents know they can not eat certain mainstream things & we always send a care pkg. for the children for supper, breakfast & snacks. A toasta bag helps for toast.... when I make cupcakes , cookies I alway send enough for everyone to share that way again the child does not feel different. I have kids who ask at parties for the gluten-free goodies!

Sharing with extended family members also makes it easier...I always make dessert for everyone & that way all of us can enjoy dessert ..

So she can eat like everyone else......plus there is a ton of things you still can buy at the regular grocery store...

If possible rave about all the gluten-free goodies..today there is so much in gluten-free choices & some way better than wheat.....if you need to know whats good & whats not let me know .... with all foods some are much better than others.

I will recomend Open Original Shared Link this is a flour blend. I use it to make hot pockets crossiants & more.... A great cookbook is from Annalise Roberts called Baking Classics.

Amy's makes gluten-free mac & cheese. Joan's gluten-free great bakes has english muffins & bagles & pizza that are excellent. We make Mickey D's breakfast sandwiches out of these....

If I can help just let me know.

blessings

mamaw

swalker Newbie
swalker
Posted

If school lunches are the problem I would concentrate on making her lunch enviable. I would buy a soup thermos and fill it with her favourites and put in a fancy napkin and her own special utensils.

Recipezaar has tons of good gluten free recipes.

Someone else suggested sending in enough for everyone and I think that's a great idea. Cupcakes or mini muffins are easy to make great gluten free.

My whole family is gluten free and if we don't keep a freezer full of baking we all start to feel hard done by. I try to keep two kinds of cookies, two different healthy muffins, a snack cake and a bar of some sort as well as bread and pancakes in the freezer at all times.

Everyone goes through a greiving period when they realize that they are going to have to eat differently for the rest of their lives. Listening closely to how she's feeling and letting her know that you understand and will do what you can to help her adjust should help with the process.

osmmommy3 Newbie
osmmommy3
Posted
  • Author

Thank you so much for your kind words of advice. I have found alot of items to make her. I think eventually our whole household will go Gluten free. But till then we are trying to keep things as normal as possible. Because my daughter is very emotional we are just trying to keep her sirits up. Thanks again for your help.

Jen

osmmommy3 Newbie
osmmommy3
Posted
  • Author

Thank you for your advice. It is just very hard wrapping my brain around all of this. Because it came on very sudden. It sounds like you can make alot of normal things for her to eat. If you don't mind xould you share some recipes.

Hello & Welcome

Please do not make your daughter feel like she is different from other kids. SHe is exactly the same but her eating habits are going to be different to the extent that other grains will be used to replace wheat. By telling her she cannot eat like other kids will cause emotional issues. & stress.. Our grandkids stated being gluten-free when one was 2 1/2 & the other was 6 1/2.... they are not deprived or starved. They go to parties, school functions, scouts , football & more.

It will take time on your part to make sure she has goodies to match the other childrens. I make lunches for school to match what the school is serving that day , somtimes they just want something different to eat.... About once a month they can have what the school offers....

Make her understand that she still can have ice cream, popcorn, snickers, chocolate bars ( without krispies), fruit snacks , chips, doritos, gluten-free pretzels, popscicles to name a few.....

When the kids get invited to CHuckie Cheese for a party we see that they take their pizza in foil cooked & then the server will heat it up. Same for home parties or stay overs. We let the parents know they can not eat certain mainstream things & we always send a care pkg. for the children for supper, breakfast & snacks. A toasta bag helps for toast.... when I make cupcakes , cookies I alway send enough for everyone to share that way again the child does not feel different. I have kids who ask at parties for the gluten-free goodies!

Sharing with extended family members also makes it easier...I always make dessert for everyone & that way all of us can enjoy dessert ..

So she can eat like everyone else......plus there is a ton of things you still can buy at the regular grocery store...

If possible rave about all the gluten-free goodies..today there is so much in gluten-free choices & some way better than wheat.....if you need to know whats good & whats not let me know .... with all foods some are much better than others.

I will recomend Open Original Shared Link this is a flour blend. I use it to make hot pockets crossiants & more.... A great cookbook is from Annalise Roberts called Baking Classics.

Amy's makes gluten-free mac & cheese. Joan's gluten-free great bakes has english muffins & bagles & pizza that are excellent. We make Mickey D's breakfast sandwiches out of these....

If I can help just let me know.

blessings

mamaw

mamaw Community Regular
mamaw
Posted

Hello

Yes , let me know what some of her favorite foods are & I will guide you to purchasing or making them from scratch....

you can send me a pm if you like & I will give you my reg e-mail addy also. Either way....

I have started a cookbook for each of the kids... so someday when they are grown they will have their favorites......

It is over whelming at first. Many go through the six stages of mourning or grieving. This is natural . You are losing a very important part of your daily being.FOOD! ANd it doesn't help that we all have been programed into thinking wheat is a staple of good life & eating. But for some it is deadly. That is hard to change what was bred into us all from early years.It will take time.

I think that is wonderful that you all may go gluten-free...we humans only have one stomach to digest & I do not believe we are able to digest these hard grains. Cows can a better chance since they have more than one stomach...

Another thing I can say is with most other illness one must take a battery of drugs, chemo,& terrible surgeries but for celiacs we just must change our diet. I for one love this dx's over my doctor dx's of Lou Gerhig's Disease, a death sentence...

Being gluten-free is a lifestyle not just a diet.

AS I tell everyone Special Food For Special People.............

Lets make your daughter happy & get her some of her favorite things!

blessings

mamaw

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


linsmad Rookie
linsmad
Posted

My 7 year old daughter was just diagnosed with celiac too! My husband has celiac so we have eaten quite a bit of gluten-free food over the years. When I told her that she needs to eats gluten-free like her dad she said-OK. That was it. She sees that he eats well-and she eats most of the same stuff too. It is a great idea to make the homemade lunch enviable. Someone recommended Annalise Roberts cookbook-and I can't say enough about that one too! Amazing. You don't miss the gluten in those recipes at all! My non gluten-free family members LOVE the bread! (And they don't even have to eat gluten-free!)

What did everyone do with the school-did you let them know right away? Just the teacher and school nurse? I am not sure how to go about informing everyone. Did you send a note or anything to classmates parents so that you can get a heads-up of class birthdays and such? Any help would be great.

Thanks,

Tracey

CeliacMom2008 Enthusiast
CeliacMom2008
Posted

Regarding the school question...

We told our son's teacher, the principal and the school nurse. We don't feel comfortable with him eating hot lunches, so we didn't tell the cafeteria. We have sat down with all of his teachers and the principal and talked face to face as well as leaving them with some written info on Celiac.

As for birthday treats, we got a list of birthdays from the teacher and then I send in a treat on the days there are birthdays. We also give the teachers goodie boxes - tupperware filled with gluten free goodies he likes for occasions when there are treats that I don't know about ahead of time.

Ask the teacher to let you know if there will be any food related activities in the classroom (for example, our son's teacher used pretzel sticks for a math activity and she gave him toothpicks instead).

As for lunch, we bought a lunch box that opens up sort of like the old fashioned metal ones with the cartoons on the side. It's a cloth type fabric with a plastic tray inside. This is nice because he can keep all of his food inside the box, removing the need to set the food on the table and possibly get contamination from crumbs on the table.

A thermos is very valuable for our lunch routines. He takes things like mac & cheese, lasagna, fried rice, quiche, chilli, etc. in it. He also LOVES PB&J on Pamela's pancakes. For special treats I use the pancake/egg thingies that you can pour the batter into and make the pancake into a shape. I got Mickey Mouse ones for Christmas and even at 9 he really likes getting Mickey sandwiches. I just bought a star one this week for another option.

For birthday parties, I keep pieces of cake frozen that I can just send with him. He actually likes this better because he always has the kind of cake that HE likes.

I know it's very overwhelming right now, but trust me that it gets much easier and this is really not that bad. It's just different.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,016
    • Most Online (within 30 mins)
      7,748
    HONEYSUCKLE
    Newest Member
    HONEYSUCKLE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.