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Positive Test 21

kt2tk

By kt2tk
in Coping with Celiac Disease

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kt2tk Newbie
kt2tk
Posted

I have just had the results over the phone to my blood test, have to wait to see a doctor, but was told it was positive 21, to me that means I have it but maybe mild, does anyone know, also before my test I had been mainly gluten free. Would just like to feel normal again and eat what I should.

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ang1e0251 Contributor
ang1e0251
Posted

The way I understand it there is no mild or strong, you just have it like being pregnant or not. I'm not sure there is any distinction between the test numbers and the amount of damage to your system.

I'm glad you're getting a dx. That should answer a lot of questions for you.

wschmucks Contributor
wschmucks
Posted

Mine was 20 and I wasnt eating very much gluten at that point. the blood tests are an indication...I followed up with endoscopy and was confirmed Celiac. You should have a biopsy to see what it looks like (dont got gluten free until AFTER the endoscopy-- you need the Celiac to be full blown and 100% present otherwise you might miss the diagnosis). Good luck

kt2tk Newbie
kt2tk
Posted
  • Author

Thanks for the replies, I had an colonoscopy about 6 weeks ago, they took 7 biopsy's but were looking for cancer, thankfully the results came back with no cancer present, but the person doing the colonoscopy thought I should get the blood test, I don't go back to the hospital till the end of May, so had the blood test done as advised, not sure what it means though and can't get an appointment till next week with my doctor, also with the blood test they were checking if there was food I should not eat, that was 7 weeks ago and still not back, I am lucky as I don't feel to bad, but would like to feel better.

ang1e0251 Contributor
ang1e0251
Posted

Thanks for the replies, I had an colonoscopy about 6 weeks ago, they took 7 biopsy's but were looking for cancer, thankfully the results came back with no cancer present, but the person doing the colonoscopy thought I should get the blood test, I don't go back to the hospital till the end of May, so had the blood test done as advised, not sure what it means though and can't get an appointment till next week with my doctor, also with the blood test they were checking if there was food I should not eat, that was 7 weeks ago and still not back, I am lucky as I don't feel to bad, but would like to feel better.

Your colonoscopy cannot show celiac disease. Are you scheduled for an endoscopy? That's the way to biopsy for it. And she's right, you have to keep eating gluten for it. Make sure you are scheduled for the correct tests.

  • 2 weeks later...
kt2tk Newbie
kt2tk
Posted
  • Author
Thanks for the replies, I had an colonoscopy about 6 weeks ago, they took 7 biopsy's but were looking for cancer, thankfully the results came back with no cancer present, but the person doing the colonoscopy thought I should get the blood test, I don't go back to the hospital till the end of May, so had the blood test done as advised, not sure what it means though and can't get an appointment till next week with my doctor, also with the blood test they were checking if there was food I should not eat, that was 7 weeks ago and still not back, I am lucky as I don't feel to bad, but would like to feel better.

Your colonoscopy cannot show celiac disease. Are you scheduled for an endoscopy? That's the way to biopsy for it. And she's right, you have to keep eating gluten for it. Make sure you are scheduled for the correct tests.

My blood test were back with my local doctor, he said it reads that I have celiacs, but really I don't think he understood the results apart from the anti bodies for gluton, it was .37 for eggs, wheat, soya and another 2 which I really can't remember, but he seemed to think it was just the gluton, so really not much better of, he said to avoid gluton till I see the specalist at the end of May, Thanks for replys, its nice to know I am not on my own

  • 2 months later...
kt2tk Newbie
kt2tk
Posted
  • Author
My blood test were back with my local doctor, he said it reads that I have celiacs, but really I don't think he understood the results apart from the anti bodies for gluton, it was .37 for eggs, wheat, soya and another 2 which I really can't remember, but he seemed to think it was just the gluton, so really not much better of, he said to avoid gluton till I see the specalist at the end of May, Thanks for replys, its nice to know I am not on my own

Now have to have endoscopy on 14th July, but because I was told to stop taking Gluten I am worried about how accruate the biopsy will be as I will only have been having gluten again for a total of 4 wks when I have it done, I am now suffering again as well, I tried to postpone it but the doctor wants me to get back to gluten-free as soon as poss, its such a pain, but I hope to be sorted soon.

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ravenwoodglass Mentor
ravenwoodglass
Posted
Now have to have endoscopy on 14th July, but because I was told to stop taking Gluten I am worried about how accruate the biopsy will be as I will only have been having gluten again for a total of 4 wks when I have it done, I am now suffering again as well, I tried to postpone it but the doctor wants me to get back to gluten-free as soon as poss, its such a pain, but I hope to be sorted soon.

You have to stay on gluten until the biopsy, however if you had eliminated gluten and then your symptoms become severe again after you added it back in that is also diagnostic. The choice of whether to continue on the gluten is your choice. With a postive blood test and a reaction to adding gluten back in that is pretty diagnostic in itself.

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