Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unusual Question


Rebecca's mom

Recommended Posts

Rebecca's mom Rookie

Hi all,

I am not sure if this is due to celiac disease or something else. I have NEVER been lactose intolerant. I have DH, but my bloodwork came back negative for celiac disease - since the 2 are associated with each other, I have been on a GFD for the past year. I haven't had any problems with any dairy products until just recently. I am wondering if it is possible to develop LI this long after initiating a GFD.

I should also mention that I have been on a pretty intensive dose of Bactrim for the past 6 weeks. Normally, I don't have any problem taking antibiotics, but I am wondering if the length of time combined with the dosage might be what is contributing to my stomach feeling queasy, instead of a lactose intolerance. I am taking the Bactrim to clear up the last few stubborn sores of my DH, so I can probably back off of the dosage if I need to.

Has anyone else had anything remotely like this happen to them? I don't have a problem with the gluten-free diet, but I love my dairy products - that would be MUCH harder for me to give up!!!!!!

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



samcarter Contributor

It's funny you should post this, because I'm suspecting I have developed dairy issues. I've only been gluten free for about 9 months, and up until recently I was eating cheese, ice cream, yogurt, and having no problems. Then a few weeks ago, I noticed that I'd get nauseated after eating something with cheese on it, and the day after eating dairy I'd wake up with a runny nose and sinus issues.

Now, it's possible that I always had dairy issues but the celiac masked it. Maybe my body was so busy reacting to the gluten that it took this long for my body to start objecting to the dairy.

I'm also considering that we just got through about a month and a half of a stomach virus (possibly e coli from our well) in the house, so maybe that contributed. But in the meantime, I'm using coconut milk in my chai and avoiding dairy as much as possible.

Sweetfudge Community Regular

I had a similar situation where I was gluten-free for almost a year before I started getting sick from dairy. Lactaid helped for awhile, but eventually I had to go off dairy completely. My GI says I may have developed an allergy to dairy.

heathen Apprentice
It's funny you should post this, because I'm suspecting I have developed dairy issues. I've only been gluten free for about 9 months, and up until recently I was eating cheese, ice cream, yogurt, and having no problems. Then a few weeks ago, I noticed that I'd get nauseated after eating something with cheese on it, and the day after eating dairy I'd wake up with a runny nose and sinus issues.

Now, it's possible that I always had dairy issues but the celiac masked it. Maybe my body was so busy reacting to the gluten that it took this long for my body to start objecting to the dairy.

I'm also considering that we just got through about a month and a half of a stomach virus (possibly e coli from our well) in the house, so maybe that contributed. But in the meantime, I'm using coconut milk in my chai and avoiding dairy as much as possible.

I had mondo lactose intolerance while I was recovering. For me, it got progressively better, but I still can't eat a big bowl of ice cream without thinking twice. If you think about it, it makes sense that lactose intolerance and celiac disease goes together--lactase (the enzyme that breaks down lactose) is made and works at the villus lining of the intestines. If all else fails, you can check into the over the counter enzyme replacements if you don't want to give up dairy all together. If you do give up dairy, make sure you are getting good calcium intake!!! Celiac Disease predisposes us to osteoporosis as well!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.