Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleep

sdore

By sdore
in Related Issues & Disorders

Recommended Posts

sdore Enthusiast
sdore
Posted

Hi. I am trying to read these posts and I can't find one that goes directly with my question. Is sleep and gluten-free releated?

I have been diagnosed with the disease for about a month and since I have been on the diet I cannot get to sleep, and on last Saturaday I could not wake up?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ianm Apprentice
ianm
Posted

You're going to need at least three months before you start to feel better. That seems to be what most experienced. Your body is trying to heal and clean all of the poisons out of your body. It will be a good year before you can really say your healthy. There is no instant "cure" for this disease. Before going gluten-free I had all kinds of sleep problems. Now I sleep pretty well and don't seem to need as much as I used to. It just takes time but things do get better.

Ianm

sdore Enthusiast
sdore
Posted
  • Author

Thanks!

I have always had trouble sleeping when I am stressed but now it is horrible!

I wake up at all hours in the night.

I take Melatonin ( a natural sleeping aid) but it seems to not work all the time.

So anyone else that reads this you may want to try Melatonin.

Guest ajlauer
Guest ajlauer
Posted

OooO be careful with melatonin!!! I (and a few others I know that took it) became completely irritable while on it!! To the point where you want to fork people's eyes out!!!!!

Note: I'm not using "Fork" in place of another 4-letter word starting with F. I mean literally, you want to grab a fork and jab somebody with it. :blink:

plantime Contributor
plantime
Posted

AJ, you are meaning that it made you feel absolutely psychotic? It is good to know that it has that side-effect sometimes, before starting to use it!

Guest ajlauer
Guest ajlauer
Posted

Imagine you had quit smoking after 40 years.... got the worst case of PMS..... it was a full moon.... your house burnt down....... everyone you care about died and you were accused of killing them....... and you hadn't slept for 2 weeks - ALL AT ONCE!!! That's about what it felt like, yes. I would highly discourage anyone from taking melatonin. however, I'm sure if everyone reacted that way with it, it would have been pulled off the market by now. So obviously, it is safe for some people. If you decide to try it, and get really irritable and mean, just realize it's probably the melatonin, and stop taking it. That would be my best advice. I've had good results with valerian root before - no weird side effects!

  • 7 months later...
RiceGuy Collaborator
RiceGuy
Posted

All too often, it seems the medical community tries to force the body into acting a certain way rather than helping it obtain a proper balance.

Anyway, perhaps you should look into Open Original Shared Link. This is an essential amino acid (the body cannot manufacture it), so it has to come from food. It is apparently what the body uses to produce serotonin, melatonin and niacin.

We've all heard how eating turkey seems to make people sleepy, and that the Tryptophan is what does it. Other foods have Tryptophan too, such as bananas, dried dates, and peanuts to name a few. This is probably why I found I sleep better if I eat a handfull of peanuts about 30 minutes before trying to sleep.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


racergirl435 Newbie
racergirl435
Posted

I am glad I found this thread. I have been gluten-free truly for the last 4 or 5 months. Within that time my mother in-law was diagnosed with terminal brain cancer and so the family has been dealing with that too. On top of the stress from work, mom's cancer and my lovely new diet I am virtually not sleeping. Sometimes literally. I have always been a light sleeper but now it is to the point that every little noise wakes me up. I go days without any real sleep and when I do get sleep it's not for a long enough time period to matter. I am the type of person that requires a good 8 hours of sleep on a daily basis to be fully functional. I haven't gotten than in over 2 months and it is catching up with me. Seems I am constantly sick because I am so run down. I feel like I have been stretched to my limits and I do feel like I want to stick a fork in somebody (mostly myself at this point) and that's without melatonin. :o Anyway, I finally made an appointment with my doctor and am hoping she has a solution (natural or chemical doesn't matter to me at this point. Hell, I've even considered smoking p** at this point). Anything...I'm desperate as I can feel my marriage suffering from it all. I never thought about tryptophan and didn't know some of the other foods. I will try that and see if it has any effect.

Cindy H Newbie
Cindy H
Posted

I am the complete opposite. All my body wants to do is sleep. As I sit here I wish I could be having a nap, but I have to start teaching again in 10 minutes. Some nights I sleep as long as 12 hours.

Cindy

mommida Enthusiast
mommida
Posted

Has everyone had their thyroids checked? Sleeping or not can be a symptom.

Laura

  • 2 weeks later...
num1habsfan Rising Star
num1habsfan
Posted

Yeah my sleep patterns are always insanely screwed up. Everyday, it chooses for itself, regardless of just how gluten-free I am. Some days, like today, I can sleep about 24 hours a day and would probably still feel tired .. Then there is some days I manage to go on 3 hours of sleep without falling over.

Its odd, but .. I know its because of Celiac..

I dont think it helped you any, but thats ok.

~lisa~

  • 4 weeks later...
Forest1 Newbie
Forest1
Posted

Hi, I find i pass out in an instance, for example watching tv,

i am so interested in the show i am watching but my body turns off suddenly.

And when i go to bed, i cant remember a dream, been like that for over 10 years.

On the occassion i would remember a dream very well, im guessing it related to

something i ate before, and i will make a note of it next time it happens to

share that a particular food is good for sleeping. but i imagine you all have info on this

already, im new to this topic, ive tried to figure it out for years and just less then a week

ago i found out. So glad to find you all here. tks

i canary Rookie
i canary
Posted

This is has been my experience also. There doesn't seem to be any rhyme or reason as to when I will sleep thru the night and when like today I wake up over and over again. I have had nights when I didn't sleep at all, but functioned all day just fine.

Yeah my sleep patterns are always insanely screwed up. Everyday, it chooses for itself, regardless of just how gluten-free I am. Some days, like today, I can sleep about 24 hours a day and would probably still feel tired .. Then there is some days I manage to go on 3 hours of sleep without falling over.

Its odd, but .. I know its because of Celiac..

I dont think it helped you any, but thats ok.

~lisa~

CMCM Rising Star
CMCM
Posted

Before going gluten-free I would get sleepy in the daytime a lot...and every time we'd be in the car I would get sleepy...honestly, I never wanted to drive longer distances because I was afraid I'd fall asleep driving. But then at night I'd never be able to get to sleep early, and every so often I have a night where I can never fall asleep. My body will be tired, but I just can't doze off. This still happens. But one interesting thing I've noticed since going gluten-free....I dream more, and now I member the dreams. Before this, I honestly thought I never dreamed, or at least, I could never remember anything at all, and that seemed weird.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      High TTG-IgG and Normal TTG-IgA

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining...
    2. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    3. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    4. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    5. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748
    yooperjb
    Newest Member
    yooperjb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.