Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sleep

sdore

By sdore
in Related Issues & Disorders

Recommended Posts

sdore Enthusiast
sdore
Posted

Hi. I am trying to read these posts and I can't find one that goes directly with my question. Is sleep and gluten-free releated?

I have been diagnosed with the disease for about a month and since I have been on the diet I cannot get to sleep, and on last Saturaday I could not wake up?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ianm Apprentice
ianm
Posted

You're going to need at least three months before you start to feel better. That seems to be what most experienced. Your body is trying to heal and clean all of the poisons out of your body. It will be a good year before you can really say your healthy. There is no instant "cure" for this disease. Before going gluten-free I had all kinds of sleep problems. Now I sleep pretty well and don't seem to need as much as I used to. It just takes time but things do get better.

Ianm

sdore Enthusiast
sdore
Posted
  • Author

Thanks!

I have always had trouble sleeping when I am stressed but now it is horrible!

I wake up at all hours in the night.

I take Melatonin ( a natural sleeping aid) but it seems to not work all the time.

So anyone else that reads this you may want to try Melatonin.

Guest ajlauer
Guest ajlauer
Posted

OooO be careful with melatonin!!! I (and a few others I know that took it) became completely irritable while on it!! To the point where you want to fork people's eyes out!!!!!

Note: I'm not using "Fork" in place of another 4-letter word starting with F. I mean literally, you want to grab a fork and jab somebody with it. :blink:

plantime Contributor
plantime
Posted

AJ, you are meaning that it made you feel absolutely psychotic? It is good to know that it has that side-effect sometimes, before starting to use it!

Guest ajlauer
Guest ajlauer
Posted

Imagine you had quit smoking after 40 years.... got the worst case of PMS..... it was a full moon.... your house burnt down....... everyone you care about died and you were accused of killing them....... and you hadn't slept for 2 weeks - ALL AT ONCE!!! That's about what it felt like, yes. I would highly discourage anyone from taking melatonin. however, I'm sure if everyone reacted that way with it, it would have been pulled off the market by now. So obviously, it is safe for some people. If you decide to try it, and get really irritable and mean, just realize it's probably the melatonin, and stop taking it. That would be my best advice. I've had good results with valerian root before - no weird side effects!

  • 7 months later...
RiceGuy Collaborator
RiceGuy
Posted

All too often, it seems the medical community tries to force the body into acting a certain way rather than helping it obtain a proper balance.

Anyway, perhaps you should look into Open Original Shared Link. This is an essential amino acid (the body cannot manufacture it), so it has to come from food. It is apparently what the body uses to produce serotonin, melatonin and niacin.

We've all heard how eating turkey seems to make people sleepy, and that the Tryptophan is what does it. Other foods have Tryptophan too, such as bananas, dried dates, and peanuts to name a few. This is probably why I found I sleep better if I eat a handfull of peanuts about 30 minutes before trying to sleep.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


racergirl435 Newbie
racergirl435
Posted

I am glad I found this thread. I have been gluten-free truly for the last 4 or 5 months. Within that time my mother in-law was diagnosed with terminal brain cancer and so the family has been dealing with that too. On top of the stress from work, mom's cancer and my lovely new diet I am virtually not sleeping. Sometimes literally. I have always been a light sleeper but now it is to the point that every little noise wakes me up. I go days without any real sleep and when I do get sleep it's not for a long enough time period to matter. I am the type of person that requires a good 8 hours of sleep on a daily basis to be fully functional. I haven't gotten than in over 2 months and it is catching up with me. Seems I am constantly sick because I am so run down. I feel like I have been stretched to my limits and I do feel like I want to stick a fork in somebody (mostly myself at this point) and that's without melatonin. :o Anyway, I finally made an appointment with my doctor and am hoping she has a solution (natural or chemical doesn't matter to me at this point. Hell, I've even considered smoking p** at this point). Anything...I'm desperate as I can feel my marriage suffering from it all. I never thought about tryptophan and didn't know some of the other foods. I will try that and see if it has any effect.

Cindy H Newbie
Cindy H
Posted

I am the complete opposite. All my body wants to do is sleep. As I sit here I wish I could be having a nap, but I have to start teaching again in 10 minutes. Some nights I sleep as long as 12 hours.

Cindy

mommida Enthusiast
mommida
Posted

Has everyone had their thyroids checked? Sleeping or not can be a symptom.

Laura

  • 2 weeks later...
num1habsfan Rising Star
num1habsfan
Posted

Yeah my sleep patterns are always insanely screwed up. Everyday, it chooses for itself, regardless of just how gluten-free I am. Some days, like today, I can sleep about 24 hours a day and would probably still feel tired .. Then there is some days I manage to go on 3 hours of sleep without falling over.

Its odd, but .. I know its because of Celiac..

I dont think it helped you any, but thats ok.

~lisa~

  • 4 weeks later...
Forest1 Newbie
Forest1
Posted

Hi, I find i pass out in an instance, for example watching tv,

i am so interested in the show i am watching but my body turns off suddenly.

And when i go to bed, i cant remember a dream, been like that for over 10 years.

On the occassion i would remember a dream very well, im guessing it related to

something i ate before, and i will make a note of it next time it happens to

share that a particular food is good for sleeping. but i imagine you all have info on this

already, im new to this topic, ive tried to figure it out for years and just less then a week

ago i found out. So glad to find you all here. tks

i canary Rookie
i canary
Posted

This is has been my experience also. There doesn't seem to be any rhyme or reason as to when I will sleep thru the night and when like today I wake up over and over again. I have had nights when I didn't sleep at all, but functioned all day just fine.

Yeah my sleep patterns are always insanely screwed up. Everyday, it chooses for itself, regardless of just how gluten-free I am. Some days, like today, I can sleep about 24 hours a day and would probably still feel tired .. Then there is some days I manage to go on 3 hours of sleep without falling over.

Its odd, but .. I know its because of Celiac..

I dont think it helped you any, but thats ok.

~lisa~

CMCM Rising Star
CMCM
Posted

Before going gluten-free I would get sleepy in the daytime a lot...and every time we'd be in the car I would get sleepy...honestly, I never wanted to drive longer distances because I was afraid I'd fall asleep driving. But then at night I'd never be able to get to sleep early, and every so often I have a night where I can never fall asleep. My body will be tired, but I just can't doze off. This still happens. But one interesting thing I've noticed since going gluten-free....I dream more, and now I member the dreams. Before this, I honestly thought I never dreamed, or at least, I could never remember anything at all, and that seemed weird.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Son's legs shaking

      @lizzie42, You're being a good mom, seeking answers for your son. Cheers! Subclinical thiamine deficiency commonly occurs with anemia. An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal. Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps...
    2. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
    3. knitty kitty
      - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease. Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease. Though having the genes for Celiac...
    4. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining...
    5. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748
    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      High TTG-IgG and Normal TTG-IgA

      By knitty kitty · Posted

      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.