Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Should I Introduce Wheat?


kprince

Recommended Posts

kprince Apprentice

Hi Everyone-

The day I found out I was pregnant, I also found out that I had celiacs. Though out my pregnancy I heard different opinions on when to introduce wheat. Now that my daughter is 2 months, I wanted to go to ( who I belive are the experts) You all and see what you opinion is on when to introduce wheat. I am currently exclusivelt breasfeeding. With my older son, I introduced food at 6 months ( rice, oatmeal and barley) and he is fine thus far. Any thoughts would really help-

Thanks,

Kathy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Well, I have no children, but my suggestion would be, wait until he can talk. That way he can tell you if something doesn't feel right.

ChemistMama Contributor

I just went to a talk by Dr. Fasano from the U. of Maryland, he's one of the leading celiac researchers in the US. He's actually doing a clinical study right now to see if delaying giving your baby gluten can delay the onset of celiac.

Open Original Shared Link

He presented some preliminary results that suggested that waiting at least a year is best. His results showed the delaying giving gluten seems to delay the onset of celiac symptoms. I tried fo find his results online with no luck. the link above is for the clinical study. They're only 2 years into a 18 year study, so they don't know really how delaying gluten affects at-risk babies. But to be safe, I'd wait awhile.

Kibbie Contributor
Hi Everyone-

The day I found out I was pregnant, I also found out that I had celiacs. Though out my pregnancy I heard different opinions on when to introduce wheat. Now that my daughter is 2 months, I wanted to go to ( who I belive are the experts) You all and see what you opinion is on when to introduce wheat. I am currently exclusivelt breasfeeding. With my older son, I introduced food at 6 months ( rice, oatmeal and barley) and he is fine thus far. Any thoughts would really help-

Thanks,

Kathy

I'm not so much of an expert but I can tell you that I followed the American Pediatric guidelines for my daughter and introduced gluten grains around 6 months of age.... she developed celaic when she was 18 months.

My son is now 6 months old and he has the genetic marker for celiac disease. Because of this we are keeping him gluten free for the foreseeable future, there may be a day down the road that he chooses to test the gluten waters but it will be his choice. The new studies suggest that waiting unilt after 1 year old to children "at risk" of celiac either dramatically delays the onset or possibly prevents the disease all together.

I exclusively breast fed my son until 6 months old I was gluten free for about 1 month to see if that helped with his reflux but it did nothing so I am back on gluten.

kprince Apprentice
I'm not so much of an expert but I can tell you that I followed the American Pediatric guidelines for my daughter and introduced gluten grains around 6 months of age.... she developed celaic when she was 18 months.

My son is now 6 months old and he has the genetic marker for celiac disease. Because of this we are keeping him gluten free for the foreseeable future, there may be a day down the road that he chooses to test the gluten waters but it will be his choice. The new studies suggest that waiting unilt after 1 year old to children "at risk" of celiac either dramatically delays the onset or possibly prevents the disease all together.

I exclusively breast fed my son until 6 months old I was gluten free for about 1 month to see if that helped with his reflux but it did nothing so I am back on gluten.

I did not know you could get your kids tested for the celiac gene/marker. How do you go about doing this?

Jestgar Rising Star
I did not know you could get your kids tested for the celiac gene/marker. How do you go about doing this?

The gene tested DOES NOT indicate celiac disease. It only gives you information about increased risk. It's a lot of money for something that doesn't really tell you anything.

jmjsmomma Apprentice
The gene tested DOES NOT indicate celiac disease. It only gives you information about increased risk. It's a lot of money for something that doesn't really tell you anything.

This confuses me. My daughter had a negative panel but was IGA deficient so we did the genetic test through Prometheus lab in San Diego. Her results came back negative for any celiac gene. Our GI told us that it would be highly unlikely that she would ever develop celiac as she had zero markers. I thought that told me a lot and felt such peace that she would not likely develop celiac (my 5 yo is our only celiac in the family).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

The genes they test for, the DQ genes, have not been shown to be causative, you can have the gene and not have celiac disease. DQ2, however, has been found in higher percentages in celiac disease people. (Pulling these memories out of my head). DQ8 has also been found in higher percentages, but again, not causative.

I'll try to remember to look up some actual studies tomorrow.

caek-is-a-lie Explorer

Wait until at least 6 months of age. It takes babies a few months to grow a proper lining in the gut and introducing gluten before then could increase her risk of getting Celiac later.

Kibbie Contributor
The gene tested DOES NOT indicate celiac disease. It only gives you information about increased risk. It's a lot of money for something that doesn't really tell you anything.

It is a lot of $$ if your insurance doesn't cover it but mine was covered 100% so I figgured what the heck... I think its smart to at least check with your insurance.

Jestgar Rising Star
It is a lot of $$ if your insurance doesn't cover it but mine was covered 100% so I figgured what the heck... I think its smart to at least check with your insurance.

Most insurance premiums are tied to how much the insurance company paid out the previous year. If you work at a large company, you probably won't notice it. If you work at a small company, overusing your insurance will cause the premiums to go up for everyone.

Kibbie Contributor
Most insurance premiums are tied to how much the insurance company paid out the previous year. If you work at a large company, you probably won't notice it. If you work at a small company, overusing your insurance will cause the premiums to go up for everyone.

Finding out if celiac disease is a possibility in the future of a child can dramatically change the course a parent takes with said child. As in our case because of this information we have chosen not to give him gluten for the foreseeable future. I do not consider this "Overusing my insurance" by any means.

B'sgirl Explorer
Well, I have no children, but my suggestion would be, wait until he can talk. That way he can tell you if something doesn't feel right.

I agree with this suggestion. It can be really hard to read the symptoms when they are little. If the baby is gluten sensitive feeding it to her could prevent the absorption of important nutrients and you won't realize it until the damage is already done.

Amyleigh0007 Enthusiast

My daughter is 20 months and has never had gluten. I do not want her to go through the same thing my son did before he was diagnosed. It is a no brainer. The world does not revolve around gluten and I don't feel like I am depriving her of anything.

Amelia01 Rookie

I recently asked the same question to the University of Chicago celiac program (did not receive a reply) and the University of Maryland. Yes, they are just now recruiting for the test program but we are not eligble (we live out of the US). Based on a Swedish study done it was suggested to us by a colleague of Dr Fassano's to start introducing a little bit of gluten starting at 7 months and increasing from there (it was also suggested that we test for the HLA markers).

Of course given any gluten to baby frightens me and I am unsure what I will do.

luvs2eat Collaborator

I fed my babies really carefully and only started them on solid food at 6 mo. I didn't know anything about Celiac (I didn't develop symptoms till I was older), but didn't give them some of the more common allergy foods, like eggs and citrus or milk, till they were a year old. I don't guess not feeding them gluten for that year would have changed anything... one of my 3 daughters is a Celiac.

HiDee Rookie

I asked a similar question a few months ago. Here is the link to the thread about what others recommended to me. My two little kids are both gluten-free and I plan on keeping it that way until they are older and able to make that choice for themselves. It just seems to be the most practical choice as both of us are sensitive to gluten. And research keeps changing with so many conflicting ideas about feeding children that I'm just going with my instincts on this one and keeping them gluten-free like mom and dad. After all, it can't hurt if they don't get it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.