Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Should I Introduce Wheat?


kprince

Recommended Posts

kprince Apprentice

Hi Everyone-

The day I found out I was pregnant, I also found out that I had celiacs. Though out my pregnancy I heard different opinions on when to introduce wheat. Now that my daughter is 2 months, I wanted to go to ( who I belive are the experts) You all and see what you opinion is on when to introduce wheat. I am currently exclusivelt breasfeeding. With my older son, I introduced food at 6 months ( rice, oatmeal and barley) and he is fine thus far. Any thoughts would really help-

Thanks,

Kathy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Well, I have no children, but my suggestion would be, wait until he can talk. That way he can tell you if something doesn't feel right.

ChemistMama Contributor

I just went to a talk by Dr. Fasano from the U. of Maryland, he's one of the leading celiac researchers in the US. He's actually doing a clinical study right now to see if delaying giving your baby gluten can delay the onset of celiac.

Open Original Shared Link

He presented some preliminary results that suggested that waiting at least a year is best. His results showed the delaying giving gluten seems to delay the onset of celiac symptoms. I tried fo find his results online with no luck. the link above is for the clinical study. They're only 2 years into a 18 year study, so they don't know really how delaying gluten affects at-risk babies. But to be safe, I'd wait awhile.

Kibbie Contributor
Hi Everyone-

The day I found out I was pregnant, I also found out that I had celiacs. Though out my pregnancy I heard different opinions on when to introduce wheat. Now that my daughter is 2 months, I wanted to go to ( who I belive are the experts) You all and see what you opinion is on when to introduce wheat. I am currently exclusivelt breasfeeding. With my older son, I introduced food at 6 months ( rice, oatmeal and barley) and he is fine thus far. Any thoughts would really help-

Thanks,

Kathy

I'm not so much of an expert but I can tell you that I followed the American Pediatric guidelines for my daughter and introduced gluten grains around 6 months of age.... she developed celaic when she was 18 months.

My son is now 6 months old and he has the genetic marker for celiac disease. Because of this we are keeping him gluten free for the foreseeable future, there may be a day down the road that he chooses to test the gluten waters but it will be his choice. The new studies suggest that waiting unilt after 1 year old to children "at risk" of celiac either dramatically delays the onset or possibly prevents the disease all together.

I exclusively breast fed my son until 6 months old I was gluten free for about 1 month to see if that helped with his reflux but it did nothing so I am back on gluten.

kprince Apprentice
I'm not so much of an expert but I can tell you that I followed the American Pediatric guidelines for my daughter and introduced gluten grains around 6 months of age.... she developed celaic when she was 18 months.

My son is now 6 months old and he has the genetic marker for celiac disease. Because of this we are keeping him gluten free for the foreseeable future, there may be a day down the road that he chooses to test the gluten waters but it will be his choice. The new studies suggest that waiting unilt after 1 year old to children "at risk" of celiac either dramatically delays the onset or possibly prevents the disease all together.

I exclusively breast fed my son until 6 months old I was gluten free for about 1 month to see if that helped with his reflux but it did nothing so I am back on gluten.

I did not know you could get your kids tested for the celiac gene/marker. How do you go about doing this?

Jestgar Rising Star
I did not know you could get your kids tested for the celiac gene/marker. How do you go about doing this?

The gene tested DOES NOT indicate celiac disease. It only gives you information about increased risk. It's a lot of money for something that doesn't really tell you anything.

jmjsmomma Apprentice
The gene tested DOES NOT indicate celiac disease. It only gives you information about increased risk. It's a lot of money for something that doesn't really tell you anything.

This confuses me. My daughter had a negative panel but was IGA deficient so we did the genetic test through Prometheus lab in San Diego. Her results came back negative for any celiac gene. Our GI told us that it would be highly unlikely that she would ever develop celiac as she had zero markers. I thought that told me a lot and felt such peace that she would not likely develop celiac (my 5 yo is our only celiac in the family).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

The genes they test for, the DQ genes, have not been shown to be causative, you can have the gene and not have celiac disease. DQ2, however, has been found in higher percentages in celiac disease people. (Pulling these memories out of my head). DQ8 has also been found in higher percentages, but again, not causative.

I'll try to remember to look up some actual studies tomorrow.

caek-is-a-lie Explorer

Wait until at least 6 months of age. It takes babies a few months to grow a proper lining in the gut and introducing gluten before then could increase her risk of getting Celiac later.

Kibbie Contributor
The gene tested DOES NOT indicate celiac disease. It only gives you information about increased risk. It's a lot of money for something that doesn't really tell you anything.

It is a lot of $$ if your insurance doesn't cover it but mine was covered 100% so I figgured what the heck... I think its smart to at least check with your insurance.

Jestgar Rising Star
It is a lot of $$ if your insurance doesn't cover it but mine was covered 100% so I figgured what the heck... I think its smart to at least check with your insurance.

Most insurance premiums are tied to how much the insurance company paid out the previous year. If you work at a large company, you probably won't notice it. If you work at a small company, overusing your insurance will cause the premiums to go up for everyone.

Kibbie Contributor
Most insurance premiums are tied to how much the insurance company paid out the previous year. If you work at a large company, you probably won't notice it. If you work at a small company, overusing your insurance will cause the premiums to go up for everyone.

Finding out if celiac disease is a possibility in the future of a child can dramatically change the course a parent takes with said child. As in our case because of this information we have chosen not to give him gluten for the foreseeable future. I do not consider this "Overusing my insurance" by any means.

B'sgirl Explorer
Well, I have no children, but my suggestion would be, wait until he can talk. That way he can tell you if something doesn't feel right.

I agree with this suggestion. It can be really hard to read the symptoms when they are little. If the baby is gluten sensitive feeding it to her could prevent the absorption of important nutrients and you won't realize it until the damage is already done.

Amyleigh0007 Enthusiast

My daughter is 20 months and has never had gluten. I do not want her to go through the same thing my son did before he was diagnosed. It is a no brainer. The world does not revolve around gluten and I don't feel like I am depriving her of anything.

Amelia01 Rookie

I recently asked the same question to the University of Chicago celiac program (did not receive a reply) and the University of Maryland. Yes, they are just now recruiting for the test program but we are not eligble (we live out of the US). Based on a Swedish study done it was suggested to us by a colleague of Dr Fassano's to start introducing a little bit of gluten starting at 7 months and increasing from there (it was also suggested that we test for the HLA markers).

Of course given any gluten to baby frightens me and I am unsure what I will do.

luvs2eat Collaborator

I fed my babies really carefully and only started them on solid food at 6 mo. I didn't know anything about Celiac (I didn't develop symptoms till I was older), but didn't give them some of the more common allergy foods, like eggs and citrus or milk, till they were a year old. I don't guess not feeding them gluten for that year would have changed anything... one of my 3 daughters is a Celiac.

HiDee Rookie

I asked a similar question a few months ago. Here is the link to the thread about what others recommended to me. My two little kids are both gluten-free and I plan on keeping it that way until they are older and able to make that choice for themselves. It just seems to be the most practical choice as both of us are sensitive to gluten. And research keeps changing with so many conflicting ideas about feeding children that I'm just going with my instincts on this one and keeping them gluten-free like mom and dad. After all, it can't hurt if they don't get it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.