Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick Of The Bloating!

adelaidez

By adelaidez
in Coping with Celiac Disease

Recommended Posts

adelaidez Rookie
adelaidez
Posted

Hi,im new to the forum and recently have gotten told i had to stay away from gluten like a month ago but anyways i had anorexia when i was 15 (now im 18) no one ever gets over it and well i feel that also this is making it worse, i cant stand the bloating i get, it makes me like double my size and i have an obsession over my body and stomach looking good, this has triggered things from the past and i feel that i am safer to stay away from sweets, anything in cans, and live off fruit and veg, and after days of living on fruit etc it goes down very well but it takes a good week for it to go down and still is bloated after a week but if i try and eat normally but stay away from gluten it takes longer and i get paranoid about getting bloating.

I must eat about 1000 calories a day or not even that, and when i hit a gluten grain by accident i binge eat :S so i am def worrying about it, and it def isnt healthy!

My diet has changed alot, i use to eat pasta and bread everyday but now i eat fruit and more fruit, and i always manage to get a grain of gluten in something at least once a week if eat somehting else but veg(im new to this) and as none of my family have this problem they don

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lux Explorer
Lux
Posted
Hi,im new to the forum and recently have gotten told i had to stay away from gluten like a month ago but anyways i had anorexia when i was 15 (now im 18) no one ever gets over it and well i feel that also this is making it worse, i cant stand the bloating i get, it makes me like double my size and i have an obsession over my body and stomach looking good, this has triggered things from the past and i feel that i am safer to stay away from sweets, anything in cans, and live off fruit and veg, and after days of living on fruit etc it goes down very well but it takes a good week for it to go down and still is bloated after a week but if i try and eat normally but stay away from gluten it takes longer and i get paranoid about getting bloating.

I must eat about 1000 calories a day or not even that, and when i hit a gluten grain by accident i binge eat :S so i am def worrying about it, and it def isnt healthy!

My diet has changed alot, i use to eat pasta and bread everyday but now i eat fruit and more fruit, and i always manage to get a grain of gluten in something at least once a week if eat somehting else but veg(im new to this) and as none of my family have this problem they don

Lux Explorer
Lux
Posted

Some exercises I have just started trying: Open Original Shared Link

:-)

kdonov2 Contributor
kdonov2
Posted

i have a very similar experience. in fact, i created a post about this same issue a few days ago. just found out im gluten intolerant and am also "recovering" from anorexia. though your right, the thoughts never leave you and i must admit i do not want to get better if it means gaining weight. gluten makes it all so much worse, and i cannot make the bloating/swelling in my tummy go down, even though i have switched to a gluten free diet a couple weeks ago. the only time i had a flat/concave stomach was when i was eating less than 50 calories a day...which usually came only from the lowest calorie fruits/vegetables. i am hoping to god that this gluten free diet starts flattening my stomach soon, otherwise i fear that i will return to my old ways because i just cannot stand this.

Lexi Enthusiast
Lexi
Posted

I also suffer with eating disorders. You are right - the thoughts NEVER totally go away, but you can get BETTER. I was ALWAYS so afraid to eat, but I have learned that when you don't eat, your metabolism drops to nothing. My husband is in to body building, and he is constantly ressearching information. He has taught me that I can actually eat a lot more than I thought I could without gaining weight. It's just a matter to adjusting to eating that amount of food. It really messes with your head at first - but it really does work. I am so happy to not be starving anymore!! Anyway, I found that taking soy and dairy out of my diet helped SO MUCH with the bloating.

Lux Explorer
Lux
Posted

Can I just ask, what is it about soy that causes bloating?

Lexi Enthusiast
Lexi
Posted

From what I understand, Soy is a hard protein for a lot of people to digest. It's a bummer because SO MANY foods have soy in them. I used to love eating soy ice-cream, but it caused me to be SO BLOATED! I always thought that soy was supposed to be so good for you, but the more I read about it, I'm not so sure.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


caek-is-a-lie Explorer
caek-is-a-lie
Posted
Some exercises I have just started trying: Open Original Shared Link

:-)

I love how the article above the exercises disses patients who think they have a problem with wheat, but then at the bottom they advise patients avoid bread, malted products, beer, vinegar, and soy sauce! rotfl :lol:

mushroom Proficient
mushroom
Posted
the only time i had a flat/concave stomach was when i was eating less than 50 calories a day....

Please excuse me for saying this but I do not think that this is something to aim for, or something which is very attractive. Especially if you have to limit yourself to 50 calories a day to achieve it. You have probably heard and ignored this 50 times before, but I could not hold my tongue. Sorry.

spinsterwitch Rookie
spinsterwitch
Posted

I cannot imagine how triggering having to be on a gluten free diet is for people dealing with anorexia. My hope is that those of you who are dealing with this are working with mental health professionals. The only way to have a healthy body is to be able to work on loving your body (which means working on loving it even when its bloated). Peace!

kdonov2 Contributor
kdonov2
Posted

sorry mushroom, i realize that it is completely unhealthy and i do not advocate that lifestyle in any way. just trying to make the point that yes, eating disorders are really darned and the person who has one has a very skewed thought process. adding gluten intolerance in the mix really exacerbates this terrible process and makes the afflicted person go to even more extreme measures to "get rid of the bloat." but once again, that is absolutely not something to strive for. health should be the ultimate goal.

fnord Rookie
fnord
Posted

I'm not anorexic but have always been pretty thin for my height and have been accused of being anorexic. The bloating is my #1 problem as well - not only uncomfortable but makes me look 6 months pregnant or like I have a blubber belly, which I don't. Some days I can wear a pair of pants that are very loose in the waist and if I eat the wrong thing within a couple of hours the pants feel tight in the waist. I hate it. It seems that when I am very careful to avoid any gluten my abdomen is flat again within a couple of days.

adelaidez Rookie
adelaidez
Posted
  • Author

Thanks everyone for your replies. Sorry i don

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      @Jmartes71, I understand your frustration and anger. I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone. My doctors did not recognize nutritional deficiencies. Doctors are trained in medical learning institutions that are funded by pharmaceutical companies...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in...
    3. marion wheaton
      - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Are Lindt chocolate balls gluten free?

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
    4. Dorothy O.
      - Dorothy O. commented on Scott Adams's article in Latest Research
      7

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      Even though my brother almost died in his 40s because of coeliac disease, no one ever told family members that we should be tested. As a result, I was almost 70 years old when an orthopaedic doctor suggested that I be tested for coeliac disease. My count was greater than 250. I had loved my bread, baking, especially pies and was never sick, but did not absorb...
    5. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,404
    • Most Online (within 30 mins)
      7,748
    Starr98
    Newest Member
    Starr98
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.