Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick Of The Bloating!

adelaidez

By adelaidez
in Coping with Celiac Disease

Recommended Posts

adelaidez Rookie
adelaidez
Posted

Hi,im new to the forum and recently have gotten told i had to stay away from gluten like a month ago but anyways i had anorexia when i was 15 (now im 18) no one ever gets over it and well i feel that also this is making it worse, i cant stand the bloating i get, it makes me like double my size and i have an obsession over my body and stomach looking good, this has triggered things from the past and i feel that i am safer to stay away from sweets, anything in cans, and live off fruit and veg, and after days of living on fruit etc it goes down very well but it takes a good week for it to go down and still is bloated after a week but if i try and eat normally but stay away from gluten it takes longer and i get paranoid about getting bloating.

I must eat about 1000 calories a day or not even that, and when i hit a gluten grain by accident i binge eat :S so i am def worrying about it, and it def isnt healthy!

My diet has changed alot, i use to eat pasta and bread everyday but now i eat fruit and more fruit, and i always manage to get a grain of gluten in something at least once a week if eat somehting else but veg(im new to this) and as none of my family have this problem they don

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lux Explorer
Lux
Posted
Hi,im new to the forum and recently have gotten told i had to stay away from gluten like a month ago but anyways i had anorexia when i was 15 (now im 18) no one ever gets over it and well i feel that also this is making it worse, i cant stand the bloating i get, it makes me like double my size and i have an obsession over my body and stomach looking good, this has triggered things from the past and i feel that i am safer to stay away from sweets, anything in cans, and live off fruit and veg, and after days of living on fruit etc it goes down very well but it takes a good week for it to go down and still is bloated after a week but if i try and eat normally but stay away from gluten it takes longer and i get paranoid about getting bloating.

I must eat about 1000 calories a day or not even that, and when i hit a gluten grain by accident i binge eat :S so i am def worrying about it, and it def isnt healthy!

My diet has changed alot, i use to eat pasta and bread everyday but now i eat fruit and more fruit, and i always manage to get a grain of gluten in something at least once a week if eat somehting else but veg(im new to this) and as none of my family have this problem they don

Lux Explorer
Lux
Posted

Some exercises I have just started trying: Open Original Shared Link

:-)

kdonov2 Contributor
kdonov2
Posted

i have a very similar experience. in fact, i created a post about this same issue a few days ago. just found out im gluten intolerant and am also "recovering" from anorexia. though your right, the thoughts never leave you and i must admit i do not want to get better if it means gaining weight. gluten makes it all so much worse, and i cannot make the bloating/swelling in my tummy go down, even though i have switched to a gluten free diet a couple weeks ago. the only time i had a flat/concave stomach was when i was eating less than 50 calories a day...which usually came only from the lowest calorie fruits/vegetables. i am hoping to god that this gluten free diet starts flattening my stomach soon, otherwise i fear that i will return to my old ways because i just cannot stand this.

Lexi Enthusiast
Lexi
Posted

I also suffer with eating disorders. You are right - the thoughts NEVER totally go away, but you can get BETTER. I was ALWAYS so afraid to eat, but I have learned that when you don't eat, your metabolism drops to nothing. My husband is in to body building, and he is constantly ressearching information. He has taught me that I can actually eat a lot more than I thought I could without gaining weight. It's just a matter to adjusting to eating that amount of food. It really messes with your head at first - but it really does work. I am so happy to not be starving anymore!! Anyway, I found that taking soy and dairy out of my diet helped SO MUCH with the bloating.

Lux Explorer
Lux
Posted

Can I just ask, what is it about soy that causes bloating?

Lexi Enthusiast
Lexi
Posted

From what I understand, Soy is a hard protein for a lot of people to digest. It's a bummer because SO MANY foods have soy in them. I used to love eating soy ice-cream, but it caused me to be SO BLOATED! I always thought that soy was supposed to be so good for you, but the more I read about it, I'm not so sure.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


caek-is-a-lie Explorer
caek-is-a-lie
Posted
Some exercises I have just started trying: Open Original Shared Link

:-)

I love how the article above the exercises disses patients who think they have a problem with wheat, but then at the bottom they advise patients avoid bread, malted products, beer, vinegar, and soy sauce! rotfl :lol:

mushroom Proficient
mushroom
Posted
the only time i had a flat/concave stomach was when i was eating less than 50 calories a day....

Please excuse me for saying this but I do not think that this is something to aim for, or something which is very attractive. Especially if you have to limit yourself to 50 calories a day to achieve it. You have probably heard and ignored this 50 times before, but I could not hold my tongue. Sorry.

spinsterwitch Rookie
spinsterwitch
Posted

I cannot imagine how triggering having to be on a gluten free diet is for people dealing with anorexia. My hope is that those of you who are dealing with this are working with mental health professionals. The only way to have a healthy body is to be able to work on loving your body (which means working on loving it even when its bloated). Peace!

kdonov2 Contributor
kdonov2
Posted

sorry mushroom, i realize that it is completely unhealthy and i do not advocate that lifestyle in any way. just trying to make the point that yes, eating disorders are really darned and the person who has one has a very skewed thought process. adding gluten intolerance in the mix really exacerbates this terrible process and makes the afflicted person go to even more extreme measures to "get rid of the bloat." but once again, that is absolutely not something to strive for. health should be the ultimate goal.

fnord Rookie
fnord
Posted

I'm not anorexic but have always been pretty thin for my height and have been accused of being anorexic. The bloating is my #1 problem as well - not only uncomfortable but makes me look 6 months pregnant or like I have a blubber belly, which I don't. Some days I can wear a pair of pants that are very loose in the waist and if I eat the wrong thing within a couple of hours the pants feel tight in the waist. I hate it. It seems that when I am very careful to avoid any gluten my abdomen is flat again within a couple of days.

adelaidez Rookie
adelaidez
Posted
  • Author

Thanks everyone for your replies. Sorry i don

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    2. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    3. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    4. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
    5. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,140
    • Most Online (within 30 mins)
      7,748
    Staticgypsy
    Newest Member
    Staticgypsy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      Airborne Gluten?

      By Jmartes71 · Posted

      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.