Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick Of The Bloating!

adelaidez

By adelaidez
in Coping with Celiac Disease

Recommended Posts

adelaidez Rookie
adelaidez
Posted

Hi,im new to the forum and recently have gotten told i had to stay away from gluten like a month ago but anyways i had anorexia when i was 15 (now im 18) no one ever gets over it and well i feel that also this is making it worse, i cant stand the bloating i get, it makes me like double my size and i have an obsession over my body and stomach looking good, this has triggered things from the past and i feel that i am safer to stay away from sweets, anything in cans, and live off fruit and veg, and after days of living on fruit etc it goes down very well but it takes a good week for it to go down and still is bloated after a week but if i try and eat normally but stay away from gluten it takes longer and i get paranoid about getting bloating.

I must eat about 1000 calories a day or not even that, and when i hit a gluten grain by accident i binge eat :S so i am def worrying about it, and it def isnt healthy!

My diet has changed alot, i use to eat pasta and bread everyday but now i eat fruit and more fruit, and i always manage to get a grain of gluten in something at least once a week if eat somehting else but veg(im new to this) and as none of my family have this problem they don

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lux Explorer
Lux
Posted
Hi,im new to the forum and recently have gotten told i had to stay away from gluten like a month ago but anyways i had anorexia when i was 15 (now im 18) no one ever gets over it and well i feel that also this is making it worse, i cant stand the bloating i get, it makes me like double my size and i have an obsession over my body and stomach looking good, this has triggered things from the past and i feel that i am safer to stay away from sweets, anything in cans, and live off fruit and veg, and after days of living on fruit etc it goes down very well but it takes a good week for it to go down and still is bloated after a week but if i try and eat normally but stay away from gluten it takes longer and i get paranoid about getting bloating.

I must eat about 1000 calories a day or not even that, and when i hit a gluten grain by accident i binge eat :S so i am def worrying about it, and it def isnt healthy!

My diet has changed alot, i use to eat pasta and bread everyday but now i eat fruit and more fruit, and i always manage to get a grain of gluten in something at least once a week if eat somehting else but veg(im new to this) and as none of my family have this problem they don

Lux Explorer
Lux
Posted

Some exercises I have just started trying: Open Original Shared Link

:-)

kdonov2 Contributor
kdonov2
Posted

i have a very similar experience. in fact, i created a post about this same issue a few days ago. just found out im gluten intolerant and am also "recovering" from anorexia. though your right, the thoughts never leave you and i must admit i do not want to get better if it means gaining weight. gluten makes it all so much worse, and i cannot make the bloating/swelling in my tummy go down, even though i have switched to a gluten free diet a couple weeks ago. the only time i had a flat/concave stomach was when i was eating less than 50 calories a day...which usually came only from the lowest calorie fruits/vegetables. i am hoping to god that this gluten free diet starts flattening my stomach soon, otherwise i fear that i will return to my old ways because i just cannot stand this.

Lexi Enthusiast
Lexi
Posted

I also suffer with eating disorders. You are right - the thoughts NEVER totally go away, but you can get BETTER. I was ALWAYS so afraid to eat, but I have learned that when you don't eat, your metabolism drops to nothing. My husband is in to body building, and he is constantly ressearching information. He has taught me that I can actually eat a lot more than I thought I could without gaining weight. It's just a matter to adjusting to eating that amount of food. It really messes with your head at first - but it really does work. I am so happy to not be starving anymore!! Anyway, I found that taking soy and dairy out of my diet helped SO MUCH with the bloating.

Lux Explorer
Lux
Posted

Can I just ask, what is it about soy that causes bloating?

Lexi Enthusiast
Lexi
Posted

From what I understand, Soy is a hard protein for a lot of people to digest. It's a bummer because SO MANY foods have soy in them. I used to love eating soy ice-cream, but it caused me to be SO BLOATED! I always thought that soy was supposed to be so good for you, but the more I read about it, I'm not so sure.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


caek-is-a-lie Explorer
caek-is-a-lie
Posted
Some exercises I have just started trying: Open Original Shared Link

:-)

I love how the article above the exercises disses patients who think they have a problem with wheat, but then at the bottom they advise patients avoid bread, malted products, beer, vinegar, and soy sauce! rotfl :lol:

mushroom Proficient
mushroom
Posted
the only time i had a flat/concave stomach was when i was eating less than 50 calories a day....

Please excuse me for saying this but I do not think that this is something to aim for, or something which is very attractive. Especially if you have to limit yourself to 50 calories a day to achieve it. You have probably heard and ignored this 50 times before, but I could not hold my tongue. Sorry.

spinsterwitch Rookie
spinsterwitch
Posted

I cannot imagine how triggering having to be on a gluten free diet is for people dealing with anorexia. My hope is that those of you who are dealing with this are working with mental health professionals. The only way to have a healthy body is to be able to work on loving your body (which means working on loving it even when its bloated). Peace!

kdonov2 Contributor
kdonov2
Posted

sorry mushroom, i realize that it is completely unhealthy and i do not advocate that lifestyle in any way. just trying to make the point that yes, eating disorders are really darned and the person who has one has a very skewed thought process. adding gluten intolerance in the mix really exacerbates this terrible process and makes the afflicted person go to even more extreme measures to "get rid of the bloat." but once again, that is absolutely not something to strive for. health should be the ultimate goal.

fnord Rookie
fnord
Posted

I'm not anorexic but have always been pretty thin for my height and have been accused of being anorexic. The bloating is my #1 problem as well - not only uncomfortable but makes me look 6 months pregnant or like I have a blubber belly, which I don't. Some days I can wear a pair of pants that are very loose in the waist and if I eat the wrong thing within a couple of hours the pants feel tight in the waist. I hate it. It seems that when I am very careful to avoid any gluten my abdomen is flat again within a couple of days.

adelaidez Rookie
adelaidez
Posted
  • Author

Thanks everyone for your replies. Sorry i don

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      329

      Terrible Neurological Symptoms

      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I...
    2. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      329

      Terrible Neurological Symptoms

      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Doctors
      8

      Second chance

      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever
    4. knitty kitty
      - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

      It's important to correct the B12 deficiency first, replenishing the stores of B12 in the body within organs and tissues. As more B12 becomes available, the body will adjust how much folate to absorb from the diet. Dietary folate sources include leafy greens, broccoli, and Brussels sprouts, and liver. (Avoid spinach due to high oxalates and risk...
    5. Scott Adams
      - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated....
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,670
    • Most Online (within 30 mins)
      7,748
    PamelaV
    Newest Member
    PamelaV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Second chance

      By Jmartes71 · Posted

      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      It's important to correct the B12 deficiency first, replenishing the stores of B12 in the body within organs and tissues.    As more B12 becomes available, the body will adjust how much folate to absorb from the diet.  Dietary folate sources include leafy greens, broccoli, and Brussels sprouts, and liver.  (Avoid spinach due to high oxalates and risk of kidney stone formation.). Folate level should be checked in future just in case Celiac malabsorption affects it.   Thiamine deficiency can be found with B12 deficiency.  B12, Pyridoxine B6, and Thiamine B1 all are involved with nerve health and nerve transmission.  These three vitamins together to improve nerve health better than just one of them alone.  They relieve neuropathy and pain, and improve brain function.  You're being an amazing mom for advocating for your daughter's health!  Hurrah! Interesting Reading: B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pmc.ncbi.nlm.nih.gov/articles/PMC6930825/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Thiamin metabolism in vitamin B6 or vitamin B12 deficient rats https://pubmed.ncbi.nlm.nih.gov/859042/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/#:~:text=The neurotropic B vitamins -B1,neuropathies [3%2C 4].
    • Scott Adams
      Pain in the right side of abdomen

      By Scott Adams · Posted

      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated. This is because folic acid supplementation can correct anemia caused by B12 deficiency without addressing the underlying neurological damage. Some studies suggest that excessive folic acid intake might increase the risk of certain cancers, such as colorectal cancer, particularly in individuals who have precancerous lesions.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.