Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick Of The Bloating!

adelaidez

By adelaidez
in Coping with Celiac Disease

Recommended Posts

adelaidez Rookie
adelaidez
Posted

Hi,im new to the forum and recently have gotten told i had to stay away from gluten like a month ago but anyways i had anorexia when i was 15 (now im 18) no one ever gets over it and well i feel that also this is making it worse, i cant stand the bloating i get, it makes me like double my size and i have an obsession over my body and stomach looking good, this has triggered things from the past and i feel that i am safer to stay away from sweets, anything in cans, and live off fruit and veg, and after days of living on fruit etc it goes down very well but it takes a good week for it to go down and still is bloated after a week but if i try and eat normally but stay away from gluten it takes longer and i get paranoid about getting bloating.

I must eat about 1000 calories a day or not even that, and when i hit a gluten grain by accident i binge eat :S so i am def worrying about it, and it def isnt healthy!

My diet has changed alot, i use to eat pasta and bread everyday but now i eat fruit and more fruit, and i always manage to get a grain of gluten in something at least once a week if eat somehting else but veg(im new to this) and as none of my family have this problem they don

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lux Explorer
Lux
Posted
Hi,im new to the forum and recently have gotten told i had to stay away from gluten like a month ago but anyways i had anorexia when i was 15 (now im 18) no one ever gets over it and well i feel that also this is making it worse, i cant stand the bloating i get, it makes me like double my size and i have an obsession over my body and stomach looking good, this has triggered things from the past and i feel that i am safer to stay away from sweets, anything in cans, and live off fruit and veg, and after days of living on fruit etc it goes down very well but it takes a good week for it to go down and still is bloated after a week but if i try and eat normally but stay away from gluten it takes longer and i get paranoid about getting bloating.

I must eat about 1000 calories a day or not even that, and when i hit a gluten grain by accident i binge eat :S so i am def worrying about it, and it def isnt healthy!

My diet has changed alot, i use to eat pasta and bread everyday but now i eat fruit and more fruit, and i always manage to get a grain of gluten in something at least once a week if eat somehting else but veg(im new to this) and as none of my family have this problem they don

Lux Explorer
Lux
Posted

Some exercises I have just started trying: Open Original Shared Link

:-)

kdonov2 Contributor
kdonov2
Posted

i have a very similar experience. in fact, i created a post about this same issue a few days ago. just found out im gluten intolerant and am also "recovering" from anorexia. though your right, the thoughts never leave you and i must admit i do not want to get better if it means gaining weight. gluten makes it all so much worse, and i cannot make the bloating/swelling in my tummy go down, even though i have switched to a gluten free diet a couple weeks ago. the only time i had a flat/concave stomach was when i was eating less than 50 calories a day...which usually came only from the lowest calorie fruits/vegetables. i am hoping to god that this gluten free diet starts flattening my stomach soon, otherwise i fear that i will return to my old ways because i just cannot stand this.

Lexi Enthusiast
Lexi
Posted

I also suffer with eating disorders. You are right - the thoughts NEVER totally go away, but you can get BETTER. I was ALWAYS so afraid to eat, but I have learned that when you don't eat, your metabolism drops to nothing. My husband is in to body building, and he is constantly ressearching information. He has taught me that I can actually eat a lot more than I thought I could without gaining weight. It's just a matter to adjusting to eating that amount of food. It really messes with your head at first - but it really does work. I am so happy to not be starving anymore!! Anyway, I found that taking soy and dairy out of my diet helped SO MUCH with the bloating.

Lux Explorer
Lux
Posted

Can I just ask, what is it about soy that causes bloating?

Lexi Enthusiast
Lexi
Posted

From what I understand, Soy is a hard protein for a lot of people to digest. It's a bummer because SO MANY foods have soy in them. I used to love eating soy ice-cream, but it caused me to be SO BLOATED! I always thought that soy was supposed to be so good for you, but the more I read about it, I'm not so sure.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


caek-is-a-lie Explorer
caek-is-a-lie
Posted
Some exercises I have just started trying: Open Original Shared Link

:-)

I love how the article above the exercises disses patients who think they have a problem with wheat, but then at the bottom they advise patients avoid bread, malted products, beer, vinegar, and soy sauce! rotfl :lol:

mushroom Proficient
mushroom
Posted
the only time i had a flat/concave stomach was when i was eating less than 50 calories a day....

Please excuse me for saying this but I do not think that this is something to aim for, or something which is very attractive. Especially if you have to limit yourself to 50 calories a day to achieve it. You have probably heard and ignored this 50 times before, but I could not hold my tongue. Sorry.

spinsterwitch Rookie
spinsterwitch
Posted

I cannot imagine how triggering having to be on a gluten free diet is for people dealing with anorexia. My hope is that those of you who are dealing with this are working with mental health professionals. The only way to have a healthy body is to be able to work on loving your body (which means working on loving it even when its bloated). Peace!

kdonov2 Contributor
kdonov2
Posted

sorry mushroom, i realize that it is completely unhealthy and i do not advocate that lifestyle in any way. just trying to make the point that yes, eating disorders are really darned and the person who has one has a very skewed thought process. adding gluten intolerance in the mix really exacerbates this terrible process and makes the afflicted person go to even more extreme measures to "get rid of the bloat." but once again, that is absolutely not something to strive for. health should be the ultimate goal.

fnord Rookie
fnord
Posted

I'm not anorexic but have always been pretty thin for my height and have been accused of being anorexic. The bloating is my #1 problem as well - not only uncomfortable but makes me look 6 months pregnant or like I have a blubber belly, which I don't. Some days I can wear a pair of pants that are very loose in the waist and if I eat the wrong thing within a couple of hours the pants feel tight in the waist. I hate it. It seems that when I am very careful to avoid any gluten my abdomen is flat again within a couple of days.

adelaidez Rookie
adelaidez
Posted
  • Author

Thanks everyone for your replies. Sorry i don

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

      These symptoms started initially in 2009/2010 and I've had normal blood sugar readings in all the blood tests - so never been diagnosed with diabetes or pre-diabetes. I did request another blood test recently (yesterday in fact) which I have had, and if the blood sugar looks high it'll come up in my results which I'll be able to see next week. I don't have...
    2. Scott Adams
      0

      Gluten-Free Foods in Mexico: A Study Raises Safety and Labeling Concerns

    3. Russ H
      - Russ H replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease...
    4. Jane02
      - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread.
    5. Jane02
      - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores).
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,586
    • Most Online (within 30 mins)
      7,748
    canmich111
    Newest Member
    canmich111
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      These symptoms started initially in 2009/2010 and I've had normal blood sugar readings in all the blood tests - so never been diagnosed with diabetes or pre-diabetes. I did request another blood test recently (yesterday in fact) which I have had, and if the blood sugar looks high it'll come up in my results which I'll be able to see next week. I don't have any other symptoms relevant to diabetes except for the nerve pain, which had been in existence for many years with "normoglycaemia", but we'll see. In terms of my current diet: I get roughly 60% of my calories from fat and protein, and 40% from carbs (an estimation). I'm on currently about 2200 calories per day, which is too low for someone of my size, so I've been slowly losing weight that I want to put back on again. But I don't want to do that without using weights, which flare my pain up unfortunately. 
    • Russ H
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By Russ H · Posted

      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease and going on a strict gluten free diet that I accidentally consumed dairy products and didn't react. From then on, I have been fine with diary. 
    • Jane02
      Terrible Neurological Symptoms

      By Jane02 · Posted

      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Terrible Neurological Symptoms

      By Jane02 · Posted

      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.