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Sick Of The Bloating!


adelaidez

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adelaidez Rookie

Hi,im new to the forum and recently have gotten told i had to stay away from gluten like a month ago but anyways i had anorexia when i was 15 (now im 18) no one ever gets over it and well i feel that also this is making it worse, i cant stand the bloating i get, it makes me like double my size and i have an obsession over my body and stomach looking good, this has triggered things from the past and i feel that i am safer to stay away from sweets, anything in cans, and live off fruit and veg, and after days of living on fruit etc it goes down very well but it takes a good week for it to go down and still is bloated after a week but if i try and eat normally but stay away from gluten it takes longer and i get paranoid about getting bloating.

I must eat about 1000 calories a day or not even that, and when i hit a gluten grain by accident i binge eat :S so i am def worrying about it, and it def isnt healthy!

My diet has changed alot, i use to eat pasta and bread everyday but now i eat fruit and more fruit, and i always manage to get a grain of gluten in something at least once a week if eat somehting else but veg(im new to this) and as none of my family have this problem they don


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Lux Explorer
Hi,im new to the forum and recently have gotten told i had to stay away from gluten like a month ago but anyways i had anorexia when i was 15 (now im 18) no one ever gets over it and well i feel that also this is making it worse, i cant stand the bloating i get, it makes me like double my size and i have an obsession over my body and stomach looking good, this has triggered things from the past and i feel that i am safer to stay away from sweets, anything in cans, and live off fruit and veg, and after days of living on fruit etc it goes down very well but it takes a good week for it to go down and still is bloated after a week but if i try and eat normally but stay away from gluten it takes longer and i get paranoid about getting bloating.

I must eat about 1000 calories a day or not even that, and when i hit a gluten grain by accident i binge eat :S so i am def worrying about it, and it def isnt healthy!

My diet has changed alot, i use to eat pasta and bread everyday but now i eat fruit and more fruit, and i always manage to get a grain of gluten in something at least once a week if eat somehting else but veg(im new to this) and as none of my family have this problem they don

Lux Explorer

Some exercises I have just started trying: Open Original Shared Link

:-)

kdonov2 Contributor

i have a very similar experience. in fact, i created a post about this same issue a few days ago. just found out im gluten intolerant and am also "recovering" from anorexia. though your right, the thoughts never leave you and i must admit i do not want to get better if it means gaining weight. gluten makes it all so much worse, and i cannot make the bloating/swelling in my tummy go down, even though i have switched to a gluten free diet a couple weeks ago. the only time i had a flat/concave stomach was when i was eating less than 50 calories a day...which usually came only from the lowest calorie fruits/vegetables. i am hoping to god that this gluten free diet starts flattening my stomach soon, otherwise i fear that i will return to my old ways because i just cannot stand this.

Lexi Enthusiast

I also suffer with eating disorders. You are right - the thoughts NEVER totally go away, but you can get BETTER. I was ALWAYS so afraid to eat, but I have learned that when you don't eat, your metabolism drops to nothing. My husband is in to body building, and he is constantly ressearching information. He has taught me that I can actually eat a lot more than I thought I could without gaining weight. It's just a matter to adjusting to eating that amount of food. It really messes with your head at first - but it really does work. I am so happy to not be starving anymore!! Anyway, I found that taking soy and dairy out of my diet helped SO MUCH with the bloating.

Lux Explorer

Can I just ask, what is it about soy that causes bloating?

Lexi Enthusiast

From what I understand, Soy is a hard protein for a lot of people to digest. It's a bummer because SO MANY foods have soy in them. I used to love eating soy ice-cream, but it caused me to be SO BLOATED! I always thought that soy was supposed to be so good for you, but the more I read about it, I'm not so sure.


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caek-is-a-lie Explorer
Some exercises I have just started trying: Open Original Shared Link

:-)

I love how the article above the exercises disses patients who think they have a problem with wheat, but then at the bottom they advise patients avoid bread, malted products, beer, vinegar, and soy sauce! rotfl :lol:

mushroom Proficient
the only time i had a flat/concave stomach was when i was eating less than 50 calories a day....

Please excuse me for saying this but I do not think that this is something to aim for, or something which is very attractive. Especially if you have to limit yourself to 50 calories a day to achieve it. You have probably heard and ignored this 50 times before, but I could not hold my tongue. Sorry.

spinsterwitch Rookie

I cannot imagine how triggering having to be on a gluten free diet is for people dealing with anorexia. My hope is that those of you who are dealing with this are working with mental health professionals. The only way to have a healthy body is to be able to work on loving your body (which means working on loving it even when its bloated). Peace!

kdonov2 Contributor

sorry mushroom, i realize that it is completely unhealthy and i do not advocate that lifestyle in any way. just trying to make the point that yes, eating disorders are really darned and the person who has one has a very skewed thought process. adding gluten intolerance in the mix really exacerbates this terrible process and makes the afflicted person go to even more extreme measures to "get rid of the bloat." but once again, that is absolutely not something to strive for. health should be the ultimate goal.

fnord Rookie

I'm not anorexic but have always been pretty thin for my height and have been accused of being anorexic. The bloating is my #1 problem as well - not only uncomfortable but makes me look 6 months pregnant or like I have a blubber belly, which I don't. Some days I can wear a pair of pants that are very loose in the waist and if I eat the wrong thing within a couple of hours the pants feel tight in the waist. I hate it. It seems that when I am very careful to avoid any gluten my abdomen is flat again within a couple of days.

adelaidez Rookie

Thanks everyone for your replies. Sorry i don

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    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
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    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
    • EssexMum
      Hi, I am after some advice re my step daughter and her Coeliac Disease. She is 9 years old and had a very limited diet before being diagnosed (very fussy and very lenient parents), since being diagnosed it has become hard to find places out that will cater for her, but we manage.  History: She had been having severe tummy pains on and off every few months so had a bunch of tests and eventually was diagnosed with celiac disease a number of months ago. We was told that she is at a very high level and should avoid gluten for the rest of her lift, we was told that the gluten she has been eating has damaged the 'fingers' inside her and they will not replenish. We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesnt react to the gluten straight away, it will be a build up and then the pains start. We was advised that by her not reacting straight away, it did not mean it wasnt harming her inside. We was given literature about buying a separate toaster and cutting board etc to avoid cross contamination and have been checking all food labels etc.  Problem: the issue is the novelty seems to have worn off with her Mum and we are now posed with a situation. They are going on holiday to Disneyland Paris for 3 nights and she phoned the hotel who said they cannot cater for gluten free. She phoned the GP and had a conversation and then told my partner that the GP had said it was fine for her to have gluten for the 3-4 days. He questioned it and she said no its fine, she hasnt had it for months so a few days wont hurt and she exposed to it anyway without knowing so it will be fine and shes not ruining her holiday etc.   My partner could see from the online notes that his ex wife had told the doctor that the child does not follow a strict gluten-free diet anyway - not true. At least not with us! My partner requested a call with the same doctor who told him that it is the mums discretion and that the child should be monitored for reactions - he explained that the issue is she doesnt react straight away. The GP said no its all mums discretion and she knows best. We are going to try to speak to the consultant at the hospital, but I just wanted to gauge some thoughts. It just seems bizarre to me that we can go from being told to avoid gluten for the rest of her life and how harmful it is to her body, to now it being ok for her to have it for a few days. Thanks in advance  
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