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- trents commented on Scott Adams's article in Kids and Celiac Disease2New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing
The practical takeaway: "For people who care about celiac disease, especially families who have children at higher risk, the findings highlight the importance of self-advocacy." It's the only parameter that the affected individual or their family members have control over. We need to learn to become "politely pushy" in order to get proper testing done when...- age
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New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)
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- Tanisha L commented on Scott Adams's article in Kids and Celiac Disease2New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing
I am a 47yr old African American woman and did not receive a celiac diagnosis until 2yrs ago. This late diagnosis proved to be challenging to me because it was a culture shock to me. I have a cultural background of Hispanic and West Indian and a lot of our foods are heavy flour based. I was told be my dietician that unfortunately African American families...- 1
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By knitty kitty · Posted
In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/ -
By knitty kitty · Posted
Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids). This results in foods not being digested thoroughly. If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them. This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid. Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies. PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine. Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety. Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency. Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin. Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables. Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations. Yes, a child can be born with nutritional deficiencies if the parents were deficient. Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children. A person can struggle along for years with subclinical vitamin deficiencies. Been here, done this. Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms. Benfotiamine helps with improving intestinal health. A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also. -
By knitty kitty · Posted
@pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body burns its stored fat as a source of fuel. That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency. Correction of thiamine deficiency can help restore that fat pad. Best wishes for your recovery! Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS. -
Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems. It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
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