Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Labs, Should We Start Gluten Free Or Wait....


fordena

Recommended Posts

fordena Newbie

my daughter, 8 just got her labs, anti gliadin 70.8, tiss transglut IGA antibody 79, IGG antibody 84, and EMA Anit Endomys -Postive. , we have an appt. with the pediatric Dr. May 8, we were wondering if we should start going gluten free or wait for further testing? any suggestions. and what are you rinterpretations of the labs if you can help. I have problems sleeping at night worrying and would really appreciate any advice.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Post the full results with the parameters as different labs can have different measurements.

happygirl Collaborator

Sounds like she is positive on all tests run for Celiac. However, do not start the gluten free diet until you have discussed it with your doctor, as they may want to do further tests. Luckily, your appointment is coming up shortly. Use that time to learn a bit about Celiac.

SHEFFIE77 Newbie

MY DAUGHTER WAS DIAGNOSED 2 YRS AGO AT AGE 8. THE GASTROENTEROLOGIST COULD NOT WORK HER IN FOR 5-6 MONTHS SO, I STARTED HER ON THE GLUTEN FREE DIET.

(SINCE YOU HAVE AN APPOINTMENT SO SOON I WOULD WAIT.)

I HAD TO RESTART GLUTEN 3 WEEKS BEFORE HER BIOPSY SO IT WOULD NOT GIVE A FALSE READING.WHICH OF COURSE WAS NO FUN,SHE WAS SO USE TO NOT BEING IN PAIN AND DID NOT WANT TO EAT IT ANYMORE.

THE ONLY REASON I DID WAS BECAUSE THEY SAID HER LEVELS COULD NOT GET ANY HIGHER OR SHE WOULD BE AT RISK FOR SERIOUS COMPLICATIONS AND ALSO, HER TYPE 1 DIABETES WAS BEING AFFECTED ADVERSLEY,YET THEY COULDNT SEE HER ANY SOONER,GO FIGURE.

PLEASE LET ME KNOW IF YOU NEED ANY HELP,MY DAUGHTER HAS SO MANY DIFFERENT CHRONIC HEALTH CONDITIONS,I AM CONSTANTLY FINDING NEW INFO.

THE DRS ACTUALLY SAID THAT IF THEY WOULD HAVE FOUND THE CELIAC FIRST,THAT SHE MIGHT NOT HAVE DEVELOPED THE TYPE 1 DIABETES.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    2. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    3. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    5. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,237
    • Most Online (within 30 mins)
      7,748

    Nancy MacManus
    Newest Member
    Nancy MacManus
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
    • trents
      Welcome to celiac.com, @Teaganwhowantsanexpltion! Joint pain is a well-established symptom of celiac disease. But joint pain may also be caused by other medical problems such as rheumatoid arthritis, chronic fatigue syndrome, etc. Make sure you share these concerns with your physician so that he or she can initiate testing or make referrals to specialists. As someone with celiac disease it is very important that you be consistent with the gluten free diet.
    • Scott Adams
      Let us know how things go.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.