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Got Labs, Should We Start Gluten Free Or Wait....

fordena

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fordena Newbie
fordena
Posted

my daughter, 8 just got her labs, anti gliadin 70.8, tiss transglut IGA antibody 79, IGG antibody 84, and EMA Anit Endomys -Postive. , we have an appt. with the pediatric Dr. May 8, we were wondering if we should start going gluten free or wait for further testing? any suggestions. and what are you rinterpretations of the labs if you can help. I have problems sleeping at night worrying and would really appreciate any advice.

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ang1e0251 Contributor
ang1e0251
Posted

Post the full results with the parameters as different labs can have different measurements.

happygirl Collaborator
happygirl
Posted

Sounds like she is positive on all tests run for Celiac. However, do not start the gluten free diet until you have discussed it with your doctor, as they may want to do further tests. Luckily, your appointment is coming up shortly. Use that time to learn a bit about Celiac.

SHEFFIE77 Newbie
SHEFFIE77
Posted

MY DAUGHTER WAS DIAGNOSED 2 YRS AGO AT AGE 8. THE GASTROENTEROLOGIST COULD NOT WORK HER IN FOR 5-6 MONTHS SO, I STARTED HER ON THE GLUTEN FREE DIET.

(SINCE YOU HAVE AN APPOINTMENT SO SOON I WOULD WAIT.)

I HAD TO RESTART GLUTEN 3 WEEKS BEFORE HER BIOPSY SO IT WOULD NOT GIVE A FALSE READING.WHICH OF COURSE WAS NO FUN,SHE WAS SO USE TO NOT BEING IN PAIN AND DID NOT WANT TO EAT IT ANYMORE.

THE ONLY REASON I DID WAS BECAUSE THEY SAID HER LEVELS COULD NOT GET ANY HIGHER OR SHE WOULD BE AT RISK FOR SERIOUS COMPLICATIONS AND ALSO, HER TYPE 1 DIABETES WAS BEING AFFECTED ADVERSLEY,YET THEY COULDNT SEE HER ANY SOONER,GO FIGURE.

PLEASE LET ME KNOW IF YOU NEED ANY HELP,MY DAUGHTER HAS SO MANY DIFFERENT CHRONIC HEALTH CONDITIONS,I AM CONSTANTLY FINDING NEW INFO.

THE DRS ACTUALLY SAID THAT IF THEY WOULD HAVE FOUND THE CELIAC FIRST,THAT SHE MIGHT NOT HAVE DEVELOPED THE TYPE 1 DIABETES.

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      Get your total IGA checked to make sure your celiac antibody test scores are trustworthy.   
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      To give you a frame of reference for pretesting gluten consumption necessary to ensure valid antibody testing, here is the current recommendation for those who have been on a gluten free diet: The daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks. Not sure why you mentioned eggs and chicken. They are not sources of gluten. Was that in reference to dietary iron consumption?
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