Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Labs, Should We Start Gluten Free Or Wait....


fordena

Recommended Posts

fordena Newbie

my daughter, 8 just got her labs, anti gliadin 70.8, tiss transglut IGA antibody 79, IGG antibody 84, and EMA Anit Endomys -Postive. , we have an appt. with the pediatric Dr. May 8, we were wondering if we should start going gluten free or wait for further testing? any suggestions. and what are you rinterpretations of the labs if you can help. I have problems sleeping at night worrying and would really appreciate any advice.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Post the full results with the parameters as different labs can have different measurements.

happygirl Collaborator

Sounds like she is positive on all tests run for Celiac. However, do not start the gluten free diet until you have discussed it with your doctor, as they may want to do further tests. Luckily, your appointment is coming up shortly. Use that time to learn a bit about Celiac.

SHEFFIE77 Newbie

MY DAUGHTER WAS DIAGNOSED 2 YRS AGO AT AGE 8. THE GASTROENTEROLOGIST COULD NOT WORK HER IN FOR 5-6 MONTHS SO, I STARTED HER ON THE GLUTEN FREE DIET.

(SINCE YOU HAVE AN APPOINTMENT SO SOON I WOULD WAIT.)

I HAD TO RESTART GLUTEN 3 WEEKS BEFORE HER BIOPSY SO IT WOULD NOT GIVE A FALSE READING.WHICH OF COURSE WAS NO FUN,SHE WAS SO USE TO NOT BEING IN PAIN AND DID NOT WANT TO EAT IT ANYMORE.

THE ONLY REASON I DID WAS BECAUSE THEY SAID HER LEVELS COULD NOT GET ANY HIGHER OR SHE WOULD BE AT RISK FOR SERIOUS COMPLICATIONS AND ALSO, HER TYPE 1 DIABETES WAS BEING AFFECTED ADVERSLEY,YET THEY COULDNT SEE HER ANY SOONER,GO FIGURE.

PLEASE LET ME KNOW IF YOU NEED ANY HELP,MY DAUGHTER HAS SO MANY DIFFERENT CHRONIC HEALTH CONDITIONS,I AM CONSTANTLY FINDING NEW INFO.

THE DRS ACTUALLY SAID THAT IF THEY WOULD HAVE FOUND THE CELIAC FIRST,THAT SHE MIGHT NOT HAVE DEVELOPED THE TYPE 1 DIABETES.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,863
    • Most Online (within 30 mins)
      7,748

    Check Freedman
    Newest Member
    Check Freedman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.