Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Undiagnosed Celiac On Gluten-free Diet


bchrisc

Recommended Posts

bchrisc Newbie

Hello. My mom was diagnosed with Celiac Disease two years ago and has been on a gluten-free diet ever since. I joined her on the diet about a year ago, because of chronic stomach troubles and severe depression. I was never formally diagnosed and, while my stomach troubles seem to have gone away, I still am experiencing severe depression. Should I leave the diet and go through the formal testing process? Or is the cessation of my stomach issues a sign that I am, indeed, a Celiac? Any help or suggestions would be greatly appreciated. I also hope this is the right forum for my question.

Thanks!

Brian


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
Hello. My mom was diagnosed with Celiac Disease two years ago and has been on a gluten-free diet ever since. I joined her on the diet about a year ago, because of chronic stomach troubles and severe depression. I was never formally diagnosed and, while my stomach troubles seem to have gone away, I still am experiencing severe depression. Should I leave the diet and go through the formal testing process? Or is the cessation of my stomach issues a sign that I am, indeed, a Celiac? Any help or suggestions would be greatly appreciated. I also hope this is the right forum for my question.

Thanks!

Brian

Hi Brian, and welcome.

The disappearance of your symptoms would seem to implicate gluten as the culprit for your stomach troubles, whether gluten intolerance or celiac. Could the depression be a separate issue for you, or did the two seem to go hand in hand for you, if you remember?

bchrisc Newbie
Hi Brian, and welcome.

The disappearance of your symptoms would seem to implicate gluten as the culprit for your stomach troubles, whether gluten intolerance or celiac. Could the depression be a separate issue for you, or did the two seem to go hand in hand for you, if you remember?

I think you may be right. The stomach troubles were around for most of my life, whereas the depression is relatively (past 5-6 years) recent. I just got a full blood panel done, and am hoping it's just something that hasn't quite caught up yet. Thanks so much for the quick response. It means a lot to me. :-)

-Brian

Jestgar Rising Star

It seems to me, if you feel better not eating gluten, then there's no point in getting a formal diagnosis. Your diet is entirely up to you.

gfb1 Rookie
I think you may be right. The stomach troubles were around for most of my life, whereas the depression is relatively (past 5-6 years) recent. I just got a full blood panel done, and am hoping it's just something that hasn't quite caught up yet. Thanks so much for the quick response. It means a lot to me. :-)

-Brian

if you've been gluten-free for a year, and your 'blood panel' is looking for celiac markers... then don't be surprised if the tests are negative. after one year; the celiac panel of tests would definitely be negative EVEN IF YOU ARE A CELIAC.

as for depression; that's one of the worst (and insidious) problems a person can have. get to your primary care doc and talk about it; get some decent meds. the meds these days are MUCH better than the old -- here's some valium -- scripts from my youth. it may take a while to get the proper med and proper dosage; BUT, your quality of life will be much improved. if you don't like the idea of taking pills/meds, then go talk to somebody -- ask around for a reference for a decent psychologist. there isn't the stigma that there used to be; and some are VERY good... to badly mangle robert.zimmerman 'it may be your preacher and it may be your doc; but, you gotta talk to somebody...'

i echo jestgar's comments... if you feel better being gluten free; just do it. while noone i know has done a formal analysis; being gluten free has other added benefits. being an analretentivescientisttype, i have years of dietary intake spreadsheets from my wife's gluten-free diet. in general, her diet is slightly higher in protein (more eggs for breakfast, legumes 2xweek), higher in fiber (legumes, oatmeal, rice bran and more fresh veggies) and, strangely enough, lower in fat. overall its about 10-15% lower in calories than our previous diet -- its not just replacing the gluten; but the associated awareness and behavioural changes that have accompanied it.

gfb1 Rookie

from my mouth to gods ears...

:)

Open Original Shared Link

check it out.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Theresa2407 replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

    3. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    4. - Scott Adams replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

    5. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748

    Joanne Ham
    Newest Member
    Joanne Ham
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.