Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Your Help: 100% Gluten Free Products.


Gobbie

Recommended Posts

Gobbie Apprentice

Hi, I am a gluten intolerant myself and the failure to be on a strict gluten free diet has worsened my symptoms. I know it is silly but sometimes it is hard to find replacement or alternative foods! Or there have been many situations where those supposedly 'gluten free' products are more of a 'gluten reduced' and the consequences have been rather annoying.

Despite most supermakrets having their own (small) 'Free From' range corner or their own products, since they are of all different brands, their definition of 'gluten free' seem to be different.

Some just avoid 'wheat' but somehow managed to get away with gluten free lables.

Or others are gluten redcued.

The best ones are the those who keep true to their words!

Could you tell me the brands & products that are 100% GLUTEN FREE?

I am aware of the 'Certified Gluten Free' labelling system but they accept 10ppm amount of gluten and I know there are people with extremly sensitive digestive systems including myself..

Thank you so much.

x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Welcome!

Are you living in the US?

I think you will find it difficult to find a product that claims to be 100% gluten free. Gluten free labeling in the US is voluntary, until a definition is established. Many companies will list "no gluten added", but without testing, they cannot guarantee 100% gluten free.

Here is a listing of companies who will clearly list all forms of gluten, to include wheat, barely, malt and rye:

Open Original Shared Link

Gobbie Apprentice

Thank you so much for such a quick & helpful feedback!

I live in the UK but none the less knowing US products are of good use too.

So.. does this mean that there are barely any 100% GLUTEN FREE food products available?

For the main dishes, I cook from scratch so they are 100% gluten free where as snacks or pastries, nor do I have the money, knowledge or experience to make them so I try to purchase them from supermarkets or alternative food shops. Obviously this takes ages as I read through all the ingredients lists and often discover a 'GLUTEN FREE' baked goods using RYE as their main source of ingredients... LOL or others are just mixtures of other alternative flours like potato, rice or chestnuts etc. They must be 100% gluten free, right?

x

ChemistMama Contributor

You need to contact the government agency in the UK that's in charge of controlling food labeling; in the US it's the Food and Drug Administration. Make sure you understand the food labelling laws, and if they're voluntary or not in the UK. If you want to be sure something is gluten free, contact the company that makes the product and make sure that they use uncontaminated starting ingredients and that their facility does not process any gluten containing foods. Ener-g (Seattle) and Kinnikinnick Foods (Canada) are two that take care to not make any gluten foods. Unfortunately you'll have to do your homework on this one! Best of luck!

Juliebove Rising Star

Whole foods would be your best choices. Fresh fruit and vegetables, plain meat, eggs, most cheeses. Prepared foods can be tougher.

Gobbie Apprentice

Thank you for the replies everyone :)

NorthernElf Enthusiast

I was in the UK last July (I live in Canada). I was so excited to see the "free from" areas of the supermarket, the green label gluten-free beer...but I did get mildly sick a few times. The first time it took me awhile to figure it out - a bed & breakfast poached my eggs in water with malt vinegar...gosh, most condiments over there have malt vinegar in them (where we have white vinegar here). I had noticed a vinegary taste on my second egg and when I mentioned it later in the day (feeling ill) it was my SIL that mentioned that sometimes vinegar is used to keep the eggs together, just a small amount. :rolleyes: Anyway, I found some yummy pita bread and naan bread, I was so excited. However, I think I spent a lot of my time having a mild reaction to the small amounts of gluten they contained. I was there for 3 weeks and I avoided most of the "free from" stuff after 2.

It's like it is here - I either make it myself (which I wasn't set up to do there) or choose naturally gluten-free stuff (potatoes, rices). It just seems that processed/baked stuff gets contaminated somewhere down the line. Recently some of the "free from" branded stuff is showing up here at our health food store...I won't be buying it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
Gobbie Apprentice
I was in the UK last July (I live in Canada). I was so excited to see the "free from" areas of the supermarket, the green label gluten-free beer...but I did get mildly sick a few times. The first time it took me awhile to figure it out - a bed & breakfast poached my eggs in water with malt vinegar...gosh, most condiments over there have malt vinegar in them (where we have white vinegar here). I had noticed a vinegary taste on my second egg and when I mentioned it later in the day (feeling ill) it was my SIL that mentioned that sometimes vinegar is used to keep the eggs together, just a small amount. :rolleyes: Anyway, I found some yummy pita bread and naan bread, I was so excited. However, I think I spent a lot of my time having a mild reaction to the small amounts of gluten they contained. I was there for 3 weeks and I avoided most of the "free from" stuff after 2.

It's like it is here - I either make it myself (which I wasn't set up to do there) or choose naturally gluten-free stuff (potatoes, rices). It just seems that processed/baked stuff gets contaminated somewhere down the line. Recently some of the "free from" branded stuff is showing up here at our health food store...I won't be buying it.

Yes, I agree with you on that..

The specially made 'Gluten Free' products are always 'Gluten Reduced' :(

It seems that we are highly dependent on gluten after all.

FACT, it is inavoidable.

UK Free From products are not that reliable.

Whether they are imports or made in UK, they all contain some moderate amount..

Now, if miss gluten containing food then I just have it. Ofcourse I don't do this very often but it is better than looking for replacements that taste horrible and make me ill anyway. I figured it is better to have the thing I want that tastes good and fall ill. Sometimes it is worth it lol.

Thank you for your reply :)

Hope your gluten free diet goes well!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,086
    • Most Online (within 30 mins)
      7,748

    M A Humphries
    Newest Member
    M A Humphries
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.