Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Your Help: 100% Gluten Free Products.

Gobbie

Recommended Posts

Gobbie Apprentice
Gobbie
Posted

Hi, I am a gluten intolerant myself and the failure to be on a strict gluten free diet has worsened my symptoms. I know it is silly but sometimes it is hard to find replacement or alternative foods! Or there have been many situations where those supposedly 'gluten free' products are more of a 'gluten reduced' and the consequences have been rather annoying.

Despite most supermakrets having their own (small) 'Free From' range corner or their own products, since they are of all different brands, their definition of 'gluten free' seem to be different.

Some just avoid 'wheat' but somehow managed to get away with gluten free lables.

Or others are gluten redcued.

The best ones are the those who keep true to their words!

Could you tell me the brands & products that are 100% GLUTEN FREE?

I am aware of the 'Certified Gluten Free' labelling system but they accept 10ppm amount of gluten and I know there are people with extremly sensitive digestive systems including myself..

Thank you so much.

x

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Welcome!

Are you living in the US?

I think you will find it difficult to find a product that claims to be 100% gluten free. Gluten free labeling in the US is voluntary, until a definition is established. Many companies will list "no gluten added", but without testing, they cannot guarantee 100% gluten free.

Here is a listing of companies who will clearly list all forms of gluten, to include wheat, barely, malt and rye:

Open Original Shared Link

Gobbie Apprentice
Gobbie
Posted
  • Author

Thank you so much for such a quick & helpful feedback!

I live in the UK but none the less knowing US products are of good use too.

So.. does this mean that there are barely any 100% GLUTEN FREE food products available?

For the main dishes, I cook from scratch so they are 100% gluten free where as snacks or pastries, nor do I have the money, knowledge or experience to make them so I try to purchase them from supermarkets or alternative food shops. Obviously this takes ages as I read through all the ingredients lists and often discover a 'GLUTEN FREE' baked goods using RYE as their main source of ingredients... LOL or others are just mixtures of other alternative flours like potato, rice or chestnuts etc. They must be 100% gluten free, right?

x

ChemistMama Contributor
ChemistMama
Posted

You need to contact the government agency in the UK that's in charge of controlling food labeling; in the US it's the Food and Drug Administration. Make sure you understand the food labelling laws, and if they're voluntary or not in the UK. If you want to be sure something is gluten free, contact the company that makes the product and make sure that they use uncontaminated starting ingredients and that their facility does not process any gluten containing foods. Ener-g (Seattle) and Kinnikinnick Foods (Canada) are two that take care to not make any gluten foods. Unfortunately you'll have to do your homework on this one! Best of luck!

Juliebove Rising Star
Juliebove
Posted

Whole foods would be your best choices. Fresh fruit and vegetables, plain meat, eggs, most cheeses. Prepared foods can be tougher.

Gobbie Apprentice
Gobbie
Posted
  • Author

Thank you for the replies everyone :)

NorthernElf Enthusiast
NorthernElf
Posted

I was in the UK last July (I live in Canada). I was so excited to see the "free from" areas of the supermarket, the green label gluten-free beer...but I did get mildly sick a few times. The first time it took me awhile to figure it out - a bed & breakfast poached my eggs in water with malt vinegar...gosh, most condiments over there have malt vinegar in them (where we have white vinegar here). I had noticed a vinegary taste on my second egg and when I mentioned it later in the day (feeling ill) it was my SIL that mentioned that sometimes vinegar is used to keep the eggs together, just a small amount. :rolleyes: Anyway, I found some yummy pita bread and naan bread, I was so excited. However, I think I spent a lot of my time having a mild reaction to the small amounts of gluten they contained. I was there for 3 weeks and I avoided most of the "free from" stuff after 2.

It's like it is here - I either make it myself (which I wasn't set up to do there) or choose naturally gluten-free stuff (potatoes, rices). It just seems that processed/baked stuff gets contaminated somewhere down the line. Recently some of the "free from" branded stuff is showing up here at our health food store...I won't be buying it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
Gobbie Apprentice
Gobbie
Posted
  • Author
I was in the UK last July (I live in Canada). I was so excited to see the "free from" areas of the supermarket, the green label gluten-free beer...but I did get mildly sick a few times. The first time it took me awhile to figure it out - a bed & breakfast poached my eggs in water with malt vinegar...gosh, most condiments over there have malt vinegar in them (where we have white vinegar here). I had noticed a vinegary taste on my second egg and when I mentioned it later in the day (feeling ill) it was my SIL that mentioned that sometimes vinegar is used to keep the eggs together, just a small amount. :rolleyes: Anyway, I found some yummy pita bread and naan bread, I was so excited. However, I think I spent a lot of my time having a mild reaction to the small amounts of gluten they contained. I was there for 3 weeks and I avoided most of the "free from" stuff after 2.

It's like it is here - I either make it myself (which I wasn't set up to do there) or choose naturally gluten-free stuff (potatoes, rices). It just seems that processed/baked stuff gets contaminated somewhere down the line. Recently some of the "free from" branded stuff is showing up here at our health food store...I won't be buying it.

Yes, I agree with you on that..

The specially made 'Gluten Free' products are always 'Gluten Reduced' :(

It seems that we are highly dependent on gluten after all.

FACT, it is inavoidable.

UK Free From products are not that reliable.

Whether they are imports or made in UK, they all contain some moderate amount..

Now, if miss gluten containing food then I just have it. Ofcourse I don't do this very often but it is better than looking for replacements that taste horrible and make me ill anyway. I figured it is better to have the thing I want that tastes good and fall ill. Sometimes it is worth it lol.

Thank you for your reply :)

Hope your gluten free diet goes well!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,562
    • Most Online (within 30 mins)
      7,748
    Picklz
    Newest Member
    Picklz
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.