Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Your Help: 100% Gluten Free Products.


Gobbie

Recommended Posts

Gobbie Apprentice

Hi, I am a gluten intolerant myself and the failure to be on a strict gluten free diet has worsened my symptoms. I know it is silly but sometimes it is hard to find replacement or alternative foods! Or there have been many situations where those supposedly 'gluten free' products are more of a 'gluten reduced' and the consequences have been rather annoying.

Despite most supermakrets having their own (small) 'Free From' range corner or their own products, since they are of all different brands, their definition of 'gluten free' seem to be different.

Some just avoid 'wheat' but somehow managed to get away with gluten free lables.

Or others are gluten redcued.

The best ones are the those who keep true to their words!

Could you tell me the brands & products that are 100% GLUTEN FREE?

I am aware of the 'Certified Gluten Free' labelling system but they accept 10ppm amount of gluten and I know there are people with extremly sensitive digestive systems including myself..

Thank you so much.

x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Welcome!

Are you living in the US?

I think you will find it difficult to find a product that claims to be 100% gluten free. Gluten free labeling in the US is voluntary, until a definition is established. Many companies will list "no gluten added", but without testing, they cannot guarantee 100% gluten free.

Here is a listing of companies who will clearly list all forms of gluten, to include wheat, barely, malt and rye:

Open Original Shared Link

Gobbie Apprentice

Thank you so much for such a quick & helpful feedback!

I live in the UK but none the less knowing US products are of good use too.

So.. does this mean that there are barely any 100% GLUTEN FREE food products available?

For the main dishes, I cook from scratch so they are 100% gluten free where as snacks or pastries, nor do I have the money, knowledge or experience to make them so I try to purchase them from supermarkets or alternative food shops. Obviously this takes ages as I read through all the ingredients lists and often discover a 'GLUTEN FREE' baked goods using RYE as their main source of ingredients... LOL or others are just mixtures of other alternative flours like potato, rice or chestnuts etc. They must be 100% gluten free, right?

x

ChemistMama Contributor

You need to contact the government agency in the UK that's in charge of controlling food labeling; in the US it's the Food and Drug Administration. Make sure you understand the food labelling laws, and if they're voluntary or not in the UK. If you want to be sure something is gluten free, contact the company that makes the product and make sure that they use uncontaminated starting ingredients and that their facility does not process any gluten containing foods. Ener-g (Seattle) and Kinnikinnick Foods (Canada) are two that take care to not make any gluten foods. Unfortunately you'll have to do your homework on this one! Best of luck!

Juliebove Rising Star

Whole foods would be your best choices. Fresh fruit and vegetables, plain meat, eggs, most cheeses. Prepared foods can be tougher.

Gobbie Apprentice

Thank you for the replies everyone :)

NorthernElf Enthusiast

I was in the UK last July (I live in Canada). I was so excited to see the "free from" areas of the supermarket, the green label gluten-free beer...but I did get mildly sick a few times. The first time it took me awhile to figure it out - a bed & breakfast poached my eggs in water with malt vinegar...gosh, most condiments over there have malt vinegar in them (where we have white vinegar here). I had noticed a vinegary taste on my second egg and when I mentioned it later in the day (feeling ill) it was my SIL that mentioned that sometimes vinegar is used to keep the eggs together, just a small amount. :rolleyes: Anyway, I found some yummy pita bread and naan bread, I was so excited. However, I think I spent a lot of my time having a mild reaction to the small amounts of gluten they contained. I was there for 3 weeks and I avoided most of the "free from" stuff after 2.

It's like it is here - I either make it myself (which I wasn't set up to do there) or choose naturally gluten-free stuff (potatoes, rices). It just seems that processed/baked stuff gets contaminated somewhere down the line. Recently some of the "free from" branded stuff is showing up here at our health food store...I won't be buying it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
Gobbie Apprentice
I was in the UK last July (I live in Canada). I was so excited to see the "free from" areas of the supermarket, the green label gluten-free beer...but I did get mildly sick a few times. The first time it took me awhile to figure it out - a bed & breakfast poached my eggs in water with malt vinegar...gosh, most condiments over there have malt vinegar in them (where we have white vinegar here). I had noticed a vinegary taste on my second egg and when I mentioned it later in the day (feeling ill) it was my SIL that mentioned that sometimes vinegar is used to keep the eggs together, just a small amount. :rolleyes: Anyway, I found some yummy pita bread and naan bread, I was so excited. However, I think I spent a lot of my time having a mild reaction to the small amounts of gluten they contained. I was there for 3 weeks and I avoided most of the "free from" stuff after 2.

It's like it is here - I either make it myself (which I wasn't set up to do there) or choose naturally gluten-free stuff (potatoes, rices). It just seems that processed/baked stuff gets contaminated somewhere down the line. Recently some of the "free from" branded stuff is showing up here at our health food store...I won't be buying it.

Yes, I agree with you on that..

The specially made 'Gluten Free' products are always 'Gluten Reduced' :(

It seems that we are highly dependent on gluten after all.

FACT, it is inavoidable.

UK Free From products are not that reliable.

Whether they are imports or made in UK, they all contain some moderate amount..

Now, if miss gluten containing food then I just have it. Ofcourse I don't do this very often but it is better than looking for replacements that taste horrible and make me ill anyway. I figured it is better to have the thing I want that tastes good and fall ill. Sometimes it is worth it lol.

Thank you for your reply :)

Hope your gluten free diet goes well!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748

    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.