Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

47 And 3+ Weeks Ago It All Went Crazy


GB2000

Recommended Posts

GB2000 Newbie

Can this just hit you all at once. I thought I could eat anything and Easter day it all went bad. I have been sick since and even in emergency. Tomorrow I go to the gastroligists. sorry about spelling. I cut out all gluten yesterday after the worse day on the toilet. After finding this site Thanks to Elizabeth Hasselback (GMA)I realized I have had this rash around the neck area and even wash tested (negative) for allergies. Bone pain and weird body pains have been the norm. what do I ask my doctor? thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Storm Apprentice

Sorry to hear you have been ill...

I would be up front and ask your doctor if it could be celiacs disease!

Been very open with them, my doctor asked if my bowel movements were regular, what colour the stools were etc

Strange I know, but she said it was part of the diagnosis. I was completely open and upfront with all my symptoms and was finally correctly diagnosed after many many months of illness, pain and substantial weight loss...

Good luck, I hope it goes well.. please let us know what the outcome is

GottaSki Mentor

Celiac has a variety of symptoms...not all are the commonly know ones...best to see a GI that "wants a possible celiac case"...these words came from the primary doc that diagnosed me after many years of mis/undiagnosed problems.

Welcome!

flourgirl Apprentice

I've had health problems all of my life. 2 years ago I fell apart. My doctor was looking for cancer! I truly thought I was dying. When I was scheduled for colonoscopy, it was decided last minute to do an endoscopy at the same time. Thank God! Finally I had a diagnosis, which I had never heard of, and a new road to travel. While I am doing so much better I still have a ways to go. Have discovered recently that I also have Sjogrens, Fibromyalgia and Raynauds....all auto-immune disorders. Good luck with your visit. Request endoscopy if your doctor doesn't. Keep in mind that a negative result is not always actually negative. Once you've had your tests, even if you don't get a positive diagnosis, you can try the gluten free diet anyway and see if it helps. It certainly couldn't hurt. By the way...I'm 50 :)

msmini14 Enthusiast

I didnt get digestive problems until I was 25 years old. My aunt didnt have problems until she was 16. I am not sure what triggers this. I had food poisoning and was never the same after that.

But I had all the other signs growing up, depression, mood swings, irritability, etc.

Only thing you can do is talk to your doctor and ask him to test you. I wish the best of luck to you and hope you feel better soon.

GB2000 Newbie

Finally a doctor that makes sense. Says Viral and after we fix this we retest for Celiac. Thank for all your support. Also says you can have it and a stomach issue sets it free. makes more sense now.

SGWhiskers Collaborator

Although looking back, there were mild symptoms for 10+ years, my "mystery illness" went from normal to crisis over the course of a weekend. It hit hard enough that I went to the urgent care/ER and probably should have gone to the hospital.

Good luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mattathayde Apprentice
I didnt get digestive problems until I was 25 years old. My aunt didnt have problems until she was 16. I am not sure what triggers this. I had food poisoning and was never the same after that.

But I had all the other signs growing up, depression, mood swings, irritability, etc.

Only thing you can do is talk to your doctor and ask him to test you. I wish the best of luck to you and hope you feel better soon.

hmmm you know i had food poisoning around 14 and i guess my gi issues got worse after that (but i did have some issues before that). other than some GI issues i didnt have any symptoms really other than a bit of being tired, around senior year of highschool i started to gain weight ad then freshman year of college i got more brain fog and slightly depressed.

but ya the symptoms can come on over time or all of a sudden, a stressful event could have triggered more to happen and also i wouldnt be surprised if a stressful event could bring it on all together if you have the genetics for it since it is basically an autoimmune disease that is triggered by something

-matt

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748

    tdouglas2901
    Newest Member
    tdouglas2901
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.