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I Was Off Gluten For 3 Weeks But Would Like To Get Tested


Libbyanne

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Libbyanne Newbie

I have been tested for Celiacs before (maybe twice) via blood tests but was always just told the tests were negative. I never saw my actual results so I don't know if they were high or if they tested for everything necessary. After dealing with "IBS" problems for years (and now realizing all the other problems I have that are related - nightmares, vertigo, mood swings, hunger, brain fog, etc.) I stumbled upon an article discussing Gluten Intolerance and decided to give the gluten free diet a shot. I felt better instantly, in all areas, and stuck with it for three weeks. My doctor is still pushing for a colonoscopy to rule out Crohn's but I've decided if I'm going to do that I would also like the endoscopy to test for Celiacs. My question is ... since I was gluten-free for three weeks, how long would I have to go back on gluten in order for the test results to be accurate? Also, if I wanted to try the blood test again first, or even have them test for Gluten Intolerance first, would the time "back on gluten" be the same for those tests?? I'm pretty miserable when I'm eating gluten so I'm hoping I wouldn't have to do the full 3-month gluten challenge that I keep hearing people talk about, but I do want the results to be accurate.

Any advice is appreciated. Thanks!


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karenhockley Apprentice

Don't quote me on this but I think you have to be on gluten for at least 3 months (not too sure though). If I were you I'd also get the Doctor to test for gluten allergy, I've got a few friends who have gluten allergy and the symptoms they had mimic Celiac. They were also tested for Celiac but test was negative. Hope this helps out a bit and good luck. What ever the results of the tests are do what makes you feel better and if that means staying on the gluten free diet then do that

Libbyanne Newbie
Don't quote me on this but I think you have to be on gluten for at least 3 months (not too sure though). If I were you I'd also get the Doctor to test for gluten allergy, I've got a few friends who have gluten allergy and the symptoms they had mimic Celiac. They were also tested for Celiac but test was negative. Hope this helps out a bit and good luck. What ever the results of the tests are do what makes you feel better and if that means staying on the gluten free diet then do that

Thanks for the info, Karen. I'm not sure I'm up for 3 months...especially during swimsuit season :(. I've requested to have all my lab results sent to me so I guess I'll start by making sure they tested me correctly and go from there.

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    • trents
      But you haven't yet answered my question about how sensitive to you are to minor amounts of gluten.
    • Healthierbody2026
      @trents my apologies my doctor has been saying that I’m pre-diabetic for years now sorry I didn’t include that information 
    • trents
      @Healthierbody2026, as I said above, there is not a separate forum within this community for NCGS people and I do not know of one anywhere else. You sound uncertain whether your physician ordered blood tests for celiac disease or for diabetes. Do you have access online to your medical records and test results?
    • Healthierbody2026
      @trents first response: can you direct me to that particular section of this site for NCGS or and are there any groups I can join for people with NCGS? second response: I can’t really remember due to it was some or a few years back but I believe she did blood tests or work on me or I think she did a glucose test on me.
    • trents
      There is not a distinct section in this particular online resource and community devoted to those with NCGS. And I cannot say with any certainty whether or not such a thing exists elsewhere online. But your question makes me think celiac.com might entertain the idea of starting a forum within our community for that purpose. I should explain that celiac.com is divided into a number of separate forums, each devoted to a different topic or concern within the gluten intolerant/gluten sensitive population. Having said that, the main is on those with celiac disease (or their support systems) rather than those with NCGS because it has more serious long-term health implications. I see. Can you elaborate on how you were tested to arrive at this diagnosis?
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