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I'm Hungry


JBaby

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JBaby Enthusiast

Hello,

I am new here. I am new to gluten intolerance/celiac disease. Can anyone tel me if they have been hungry all the time once they go gluten free. I was never hungry pre-gluten free, in fact i despised eating, didnt look forward to it. Now I do even though it has only been a week. I dont have the stomache issues or headaches and I feel incredible in every way. But, I am always hungry. I wake up hungry which never happenend before.

Thanks.


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Traveller Rookie

I've been gluten-free for almost two months now. The first few weeks I was ravenous, but then the hunger went away. Also, I eat much less now. I figure that I ate much more beforehand simply to compensate for not getting the nutrition I should from the food I was eating. Now that some healing has taken place, I do get better nutrition from less food, I'm not hungry, and I eat less. At least that's my working theory.

And like you, I feel much better.

Stick with it. It's worth it.

happygirl Collaborator

Welcome to the board.

Here are two other threads that may be of interest to you - others reporting the same thing.

https://www.celiac.com/gluten-free/index.php?showtopic=56225

https://www.celiac.com/gluten-free/index.php?showtopic=55604

Newbie Celiac Newbie

I was diagnosed on April 20, 2009 and I was starving the first few weeks. I'm still having moments of it even right after I have eaten but I'm getting better and making sure not to go snack crazy.

JBaby Enthusiast

Thanks for the response. I was mistaken and have been mostly gluten free for 2 weeks not 1. Its been difficult with the hunger since I am new and not knowing what I can and cant eat. I work 40 hours a week so its hard to sit there all day and starve. One night after work I came home and ate a big steak and 3 baked potatoes. The other day at work I ate almost 3/4 tube of Lays Stax(are gluten free). Last wednesday I assumed KFC Grilled chicken was gluten wheat free since i have been eatin grilled chicken elsewhere with no issues. Well I got so sick from it that I had to leave work early and come home and spent the remainder of the day on the couch in pain with several trips to the bathroom. I checked their website which has their allergy lists, wish I checked beforehand but why would I think grilled chicken would have gluten and wheat in it. Theirs does. It is listed as such and I got sick.

Gluten free wheat free prepackaged prepared foods are expensive. Any thoughts on how to cut the cost down and have variety in my diet for a full time working girl(not that kind) who also works out 2-3 days a week doing Zumba. Any suggestions GREATLY appreciated.

JBaby

  • 3 weeks later...
LadyBugLuv Rookie

I can relate... gluten free for about a month, (and I had been for a bit before that, too, while on an elimination diet...) and it seems my appetite is HUGE. I can't seem to get enough to eat, ever. I ate 6 tacos for dinner, and I didn't even feel full. 6 tacos!!!! I always used to get bloated and uncomfy, and my stomach would stick out, and I'd have indigestion... but I don't feel that way anymore. But it's hard, when I literally have to eat something every hour because my stomach is so hungry, and is growling "feed me". If I don't, I feel weak and shaky. Like now, I just ate lunch - left over taco stuff in a bowl (kind of taco salad, w/ a lot of meat), and some honey nut rice chex. What's the deal? I feel like I hardly ate anything, and that's quite a substantial lunch. Not to mention I've eaten a hard boiled egg, a yogurt, a banana, and 2 small chex treats today. I was counting down to lunch because I was so hungry, too. It's kind of annoying. will this ever end? I chuckled at the steak w/ 3 baked potatoes... to me, right now, that sounds just great! Just give me a whole beef roast. haha.

what do you do when you have to eat something literally hourly? what's the best thing to eat to stave off the hunger. I try almonds, and eggs, and yogurt... because of the protein... and yeah, they only work for so long.

thanks :lol: (he's saying "FEED ME")

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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