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ohsroac

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ohsroac Apprentice
ohsroac
Posted

Since going gluten free, my stomach and IBS symptoms are better.....yet I have been so sick. I have been gluten free for 6 weeks now and I had intestional flu one week, two weeks later mouth ulcers and strep throat so bad I had to go to the hospital and missed a week of work. Now, I am sick again.. I have not had energy, I have felt so sick.. I don't understand it..

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GottaSki Mentor
GottaSki
Posted
Since going gluten free, my stomach and IBS symptoms are better.....yet I have been so sick. I have been gluten free for 6 weeks now and I had intestional flu one week, two weeks later mouth ulcers and strep throat so bad I had to go to the hospital and missed a week of work. Now, I am sick again.. I have not had energy, I have felt so sick.. I don't understand it..

I have nothing to help explain...can only tell you I too am at 6 weeks and the past 3 weeks have had very severe arthritis -- this was only mild before going gluten-free -- am hoping this will improve in the coming months...Celiac Doc is going to run more tests on me to look for reasons other than Celiac for my symptoms... yippee...can't wait more tests (joking).

Take care, I hope you are feeling better soon. :unsure:

ohsroac Apprentice
ohsroac
Posted
  • Author
I have nothing to help explain...can only tell you I too am at 6 weeks and the past 3 weeks have had very severe arthritis -- this was only mild before going gluten-free -- am hoping this will improve in the coming months...Celiac Doc is going to run more tests on me to look for reasons other than Celiac for my symptoms... yippee...can't wait more tests (joking).

Take care, I hope you are feeling better soon. :unsure:

Thanks, hope you feel better as well! Do you, or anyone, think that our bodies have been fighting something that was bad for us and now that we are not eating bad foods, the body gets confused? I don't know, just thinking what in the world, I am a person who hardly ever gets sick.. I get tired and run down and aching body, hardly ever sick.. YIKES... Lately I just can't get well!

cat3883 Explorer
cat3883
Posted

I am 7 months gluten free and feel good but I can tell you the first 2 months were really tough. It was as if I was going through withdrawals. I ached where I had never ached before. I was so exhausted yet I couldn't sleep. Remember we have compromised digestive systems and you are healing. I promise it gets easier. Please Please Please stay on the diet . Another thing I did was cut way back on my dairy. And I do so much better with cooked vegetables vs raw due to the compromised digestive system. Keep a journal of what you are eating and how you feel right after you eat and 2 hours later. It helps to figure out what foods make you feel yucky. Good Luck.

GlutenGalAZ Enthusiast
GlutenGalAZ
Posted

I remember when I first went Gluten Free I felt sick for about the first 2 months (achey, swore, sick feeling, tired...).

Have you been checked for any vitamin deficiencies?

Before I went gluten free all my life I got sick/colds very easily. After being gluten free and taking vitamins I haven't been sick. Well I shouldn't say haven't... I have gotten the beginning part of colds but nothing compared to how I was in the past.

This past year though I have been taking extra Vitamin C which has really helped.

Hope you stick with the diet. Things should get better.

GOOD LUCK!

Amber M Explorer
Amber M
Posted
Since going gluten free, my stomach and IBS symptoms are better.....yet I have been so sick. I have been gluten free for 6 weeks now and I had intestional flu one week, two weeks later mouth ulcers and strep throat so bad I had to go to the hospital and missed a week of work. Now, I am sick again.. I have not had energy, I have felt so sick.. I don't understand it..

I have been gluten free for about 8 or 9 months now, and it has been an up and down battle of getting well. I have discovered many other food intolerances as well. I already had some other food allergies for years prior too. I have been keeping a food journal as well, (pain) but worth it because I can pinpoint pretty easily now what is giving me problems. Some of it is still a mystery, but I am learning as I go. I had to give up corn about 3 months ago because every time I ate it, I got canker sores and full blown lip cold sores within 12 to 24 hours. (usually right after eating it) Then, last Saturday night I decided to try one ear of fresh corn on the cob. Well, by the next evening, not only did I have all the sores, but the roof of my mouth hurt so bad it was hard to eat all week. All of my neurological problems with gluten came back and I have been a mess all week.

It's still hard for me to believe that one ear of corn could set off all of it again, but I have read that ANY foods with "Similar" proteins as wheat will fool the body into a gluten reaction.

I seem to do okay with some cheese, but I notice when I overload I seem to do worse too. (I came out okay on that test, but who knows) All I know is I appreciate the good days and the others just plain "suck".

I've had a week long neck ache as I usually do too. I just want to get well again and I will not eat the dang corn!

Good luck, I know how hard it is!

mushroom Proficient
mushroom
Posted

I know you have been feeling bad, but know you are not alone. I gave up eating gluten, and within two weeks caught flu which hung around for three weeks over Christmas and New Year. I had one good week and then came down with acute bronchitis and was sick for another three weeks. It didn't seem fair--ruined my whole summer and no reward for my lifestyle change. However, once our bodies have been running on empty for so long it takes a while to refill the tank, so to speak, and regain our immunity. So don't be discouraged; this too shall pass and you will feel better. Make sure you check all your vitamin and mineral levels and replenish anything you are deficient in; e.g., Vitamins D, B12, folate; magnesium, calcium, zinc, potassium. Most of us have one or more of these deficiencies that need to be corrected.

Good luck on feeling better soon.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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