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I'm Freaking Out!


jklatt

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jklatt Rookie

Okay, so I am beginning to think I might be a hypochondriac, but I feel absolutely horrible and I'm so worried there is something really wrong with me. I have been gluten free for about 6 weeks and I immediately noticed a change for the better. But it's been with certain ups and downs...however now there are some things happening that are worrying me. I keep trying to dismiss how I feel, by assuming that I got accidentally glutened and the symptoms will pass. However starting on Monday at about 10 am I started to feel weird...I had my monthly cycle early last week and was done by mid week last week. But on Monday my tummy started to hurt and I felt really really wiped out...and my skin broke out. I noticed that I was bleeding a little again...and I felt pretty miserable all that day. The next day I felt about the same, but even more groggy, like I had been drugged. But no bleeding since that time on Monday. Now it's Friday and it's been the same thing over and over everyday, but today I seem to have a bit more energy but I feel sick whenever I eat (kind of like I feel full and hungry at the same time) and it's kind of hard to breath (has been all week), my throat feels irritated and my tummy and back hurt. Also, all week my joints have been so so sore. I just get worried that maybe something else is going on. Does this sound like a possible glutening and when should I see it pass. I have been keeping my diet as simple as possible. Lots of water and very raw food. Anyone, help?


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Liveenjoylife Apprentice

I had the same similar probs.No appetite, constant joint pain I also felt like some one was pressing down on my rib cage stopping me from taking full deep breaths, etc. All classic signs of celiac disease. Are you taking any vitamins? Get on calcium and magnisium vitamins as well as b12 and multi vitamin. As soon as I started taking those vitamins I felt 100% better. Also, for good measure I would recommend seeing a doctor, just to be on the safe side. :)

jklatt Rookie

Okay, so I think after so much trial and error...that milk is the culprit! I know that everyone has said to be careful with milk, but I just figured I wouldn't have that problem (it's so hard to give up all this stuff). Anyway I think last week that I had gotten glutened because I felt horrible, I mean awful awful awful. But this weekend I had milk products and probably too much and pretty soon I was cramping and bloating and so uncomfortable. And it seems whenever I eat them I get like that. Now that being said I seem to be able to tolerate things like half and half or cream. It is more just the milk products that are more concentrated that seems to irritate me. Being that my doctors are complete idiots and don't seem to bother to want to help me I am having to do this all on my own, and it has been really hard with all these ups and downs. The only comfort I have is that I don't seem to be alone :-)....so thanks for all the help!

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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