Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Freaking Out!

jklatt

By jklatt
in Coping with Celiac Disease

Recommended Posts

jklatt Rookie
jklatt
Posted

Okay, so I am beginning to think I might be a hypochondriac, but I feel absolutely horrible and I'm so worried there is something really wrong with me. I have been gluten free for about 6 weeks and I immediately noticed a change for the better. But it's been with certain ups and downs...however now there are some things happening that are worrying me. I keep trying to dismiss how I feel, by assuming that I got accidentally glutened and the symptoms will pass. However starting on Monday at about 10 am I started to feel weird...I had my monthly cycle early last week and was done by mid week last week. But on Monday my tummy started to hurt and I felt really really wiped out...and my skin broke out. I noticed that I was bleeding a little again...and I felt pretty miserable all that day. The next day I felt about the same, but even more groggy, like I had been drugged. But no bleeding since that time on Monday. Now it's Friday and it's been the same thing over and over everyday, but today I seem to have a bit more energy but I feel sick whenever I eat (kind of like I feel full and hungry at the same time) and it's kind of hard to breath (has been all week), my throat feels irritated and my tummy and back hurt. Also, all week my joints have been so so sore. I just get worried that maybe something else is going on. Does this sound like a possible glutening and when should I see it pass. I have been keeping my diet as simple as possible. Lots of water and very raw food. Anyone, help?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Liveenjoylife Apprentice
Liveenjoylife
Posted

I had the same similar probs.No appetite, constant joint pain I also felt like some one was pressing down on my rib cage stopping me from taking full deep breaths, etc. All classic signs of celiac disease. Are you taking any vitamins? Get on calcium and magnisium vitamins as well as b12 and multi vitamin. As soon as I started taking those vitamins I felt 100% better. Also, for good measure I would recommend seeing a doctor, just to be on the safe side. :)

jklatt Rookie
jklatt
Posted
  • Author

Okay, so I think after so much trial and error...that milk is the culprit! I know that everyone has said to be careful with milk, but I just figured I wouldn't have that problem (it's so hard to give up all this stuff). Anyway I think last week that I had gotten glutened because I felt horrible, I mean awful awful awful. But this weekend I had milk products and probably too much and pretty soon I was cramping and bloating and so uncomfortable. And it seems whenever I eat them I get like that. Now that being said I seem to be able to tolerate things like half and half or cream. It is more just the milk products that are more concentrated that seems to irritate me. Being that my doctors are complete idiots and don't seem to bother to want to help me I am having to do this all on my own, and it has been really hard with all these ups and downs. The only comfort I have is that I don't seem to be alone :-)....so thanks for all the help!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,027
    • Most Online (within 30 mins)
      7,748
    EmmaGraceeee
    Newest Member
    EmmaGraceeee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.