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Help With Going Totally Gluten Free

Genna'smom

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Genna'smom Apprentice
Genna'smom
Posted

Hi all

I am looking for advice on what to do for my almost 3 yr old D. She is has been gluten free now for almost 1 year after she stopped eating and drinking and had to be put on a feeding tube to live. She is now starting to eat and drink more but we have been through her being sick for the last 4 months (cold, constant running nose, chronic cough and vomiting off and on) she has been on so many meds I finally just stopped them all. She is doing ok but is clingy, cries a lot, bites, has tantrum and does not sleep through the night...... When I approached her GI dr about making sure our whole house went gluten free he told me NO that is not necessary she is not that bad...... is there varing degrees of celiac's disease.... He told me her test showed only early warning signs - I aksed them about challenging her and he said no way as we do not want to be where we were 1 year ago with her not eating or drinking at all. My husband and I were both tested and no one has it in either of our families. Any advice or help from you all. I am seriously thinking of trying it for a couple of weeks to see what kind of reaction I get. Any help on a good bread and my 5 yr old and husband eat sandwhiches almost every day......

Thanks from a frustrated mom....

Bonnie

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MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

No, there is no varying of Celiac Disease. If you have it, you have it. Your baby girl needs to be 100% gluten-free. This, however, does not mean your family has to be. As long as you keep her stuff separate, then you're fine. Some families find it easier to all be gluten-free. My family is 3 out of 4 Celiac but my Father isn't gluten-free. I live with my boyfriend and he isn't gluten-free. I have my pans, my shelves, and my food. He knows to not touch my stuff and your family will have to learn this, too. You do need to get her her own toaster and such because you don't want to cross-contaminate her food. You will get the hang of it! It just takes time! Good luck to your little girl!

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    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Hi Thanks for answering so quickly. Not sure about any other blood tests, all I have is a copy of what my daughter sent to me. Hopefully she’ll get the biopsy soon cos she’s really anxious about the whole thing, but she tends to have a lot of anxiety anyway and has done for a long time
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      nuts.com -- no longer Celiac safe?

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