Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Nephew


mollyb

Recommended Posts

mollyb Newbie

Hi there,

My name is Molly Burk and my 18 month old nephew was just finally, after a long process diagnosed with celiac disease. I have done some research, thanks to sites like this on this and have a concern about his diet.

His mother, who is a great person and I love dearly, is also a vegeterian, and has passed this on to her children. She does not eat red meat so her children therefore do not either and I am having a real hard time with this. Especially, now that I know that the main things she was feeding him he cannot have.

I have tried to talk with her about this and she refuses to feed him, actually any kind of meat. From what I have read, this is important for him and I do not know how to get through to her on the importance of his diet.

He only weighs 16 pounds, and is 18 months old. I had a hard time with this before he was diagnosed, with both her children, and now I am scared that he is never going to develop normally.

I am asking for any information on this, if anyone knows so I can show her some proof on the importance of the protein in his diet. She has taken all the precautionary measures and went to the health food store but she has not given him ANY meat at all yet, and he was diagnosed over a week ago.

I love my nephew and his mother, but without going crazy and getting angry at her, I need some facts on this??

Any one that I show a picture of him to, say he looks malnourished??? Please correct me if I am wrong, i may just not be educated on this!

Thank you

Molly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

My, that's tiny! Is she not using dairy products either? Milk and eggs?

mommida Enthusiast

I don't know the amount of expertise the mother has with the vegan diet. Well trained vegans have a variety of protein options. Once the gluten free diet has started and the villi have healed, your nephew should start gaining weight very soon. The month- weight ratio was about the same for my daughter before diagnoses (meat eating diet). Keep an open mind and listen to the mother's answer to your protein questions. You may also suggest some of the bean flours to replace the rice, tapiocca, potato flours for the gluten free diet.

Laura

Meadow Newbie

Hi Molly,

This probably isn't the best site to learn about the nutritional advantages of a vegetarian diet. My son has type 1 diabetes and is a vegetarian (the rest of our family is not). His medical team is completely supportive of this approach. With a little research, you will find overwhelming evidence that being vegetarian is perhaps the best diet approach you can chose for lifelong health.

Meadow :)

Merika Contributor

Hi,

Being vegetarian and celiac are two very different things, and I don't believe one really impacts the other. Whether or not to be veggie is entirely its own issue.

That said, your nephews small size IS the result of celiac and in a year or so, he'll probably look just like other kids his size, but give it some time.

You don't mention if the mother is still breastfeeding. From what I know, it is very important for a vegetarian baby/toddler to be getting breastmilk, so that they get enough fats (of the right kind) in their diet. Anthropologists theorize that one of the reasons humans can wean their young so early compared to similar mammals is that we introduce meat at an early age. So if meat is not introduced, breastmilk is all the more important.

.02,

Merika

tarnalberry Community Regular

It is not necessarily problematic for him to be vegetarian and gluten-free. In fact, many of the grains that celiacs turn to when wheat is out have MORE protein than wheat does - and in some cases, a much more complete protein than wheat does.

If she is well versed in vegetarian nutrition, there is no reason why being vegetarian will cause problems with his development. (This is different from being vegan, of course, and you haven't yet noted which one they are. He can be healthy growing up vegan as well, but it is more difficult.) The only thing that a vegetarian has trouble with is B-12, and if he eats eggs, that's not likely to be a problem. Vegetarian diets still have plenty of protein (from beans, whole grains, soy, and fruits and vegetables, not to mention dairy and eggs if they have them) and when well balanced and supplemented with B-12 are just as nutritious as a similar diet containing meat, and, of course, plenty of fat and fiber.

If she's having trouble converting to gluten free, and his food choices are limited because of that, that is a different issue, and one that she can overcome through learning. Please keep in mind that he may look malnourished NOT because he's vegetarian, but because he's celiac - so he IS malnourished (because his intestines were not absorbing the nutrients he was ingesting). It will take much longer than a week for him to see significant systemic improvement, so please be patient, and supportive, of the transition to a gluten-free diet.

Feel free to encourage her to stop by here, and keep coming back yourself, for more information and just some general support on living gluten free!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.