Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ive Had It With This!

Firegirl43

Recommended Posts

Firegirl43 Contributor
Firegirl43
Posted

Ok so Ive been doing really well with the whole gluten free diet thing and realizeing that this is me. I am totally cool with it. Then I find out I have a allergy to eggs. Ok kinda sucks but I can deal with that. But now I am allergic to tree nuts. Ok seriously this is crap. I have allergys 365 days a freeking year and now you want to add more food allergys to me on top of it! come on.

I went to one allergist and he doesnt want to do that desensatizeing thing( he gave me some reason but I dont remember ) Honestly if all this is connected to being a celiac ,what is the point of behaveing yourself? :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Liveenjoylife Apprentice
Liveenjoylife
Posted

Boy, do I understand your frustration! :blink: ...I never had any allergies till I became lactose intolerant in 2007, which if any one is you usually get c.d.. now I can't eat any shell fish, drink caffine coffee, or eat acidic foods and eat meat or fatty foods, for ex.greasy chips.which I miss, they had the best flavoring. I'm waiting to see if any other "food allergies" will pop up. I am so hoping NOT. It's not easy at all as I am sure you understand.

mysecretcurse Contributor
mysecretcurse
Posted

Gosh Im so sorry I understand how you feel too.

I am gluten sensitive but it wasn't until awhile being gluten free that I began to notice how much dairy bothers me too. My dairy sensitivity is tolerable, I mean dairy doesn't cause me the painful bright red cystic rash on my face and scalp that gluten does (its not pretty) but it does cause me a lot of unpleasant gas and bloating. So while I'll probably still eat a little bit of dairy here and there I've decided to avoid it which makes me sad. There goes even more favorite foods. :(

My theory is that maybe we were always allergic to these foods but the gluten intolerance was the worst so maybe we didn't notice the other symptoms while still on gluten? I'm not sure. I'm curious, how did it happen for you that you found out about these other sensitivities? Did you go gluten free, have good health for awhile, and then symptoms began returning and you figured it was something else? Or did you never find health the entire time and simply have to keep eliminating things?

*hugs* for you.. It sucks feeling like an alien in a world with nothing but poisonous food.

lizard00 Enthusiast
lizard00
Posted

It sucks, that's for sure! I'm allergic to eggs, too, can't do soy or dairy. The soy I really don't care about, except that it's in EVERYTHING. Dairy and eggs is a bummer.

I've always been allergic to egg whites, but before celiac, I could eat anything else. There are times I get really frustrated because things that every one else takes for granted, I can't do. Like going to a restaurant and ordering an omelet, or anything without worrying for that matter!

HOWEVER, I do the best that I can to work around it. It is extremely frustrating at times, but I still consider myself to be fortunate that I know what my problems are, and I can control them very simply. I do think rare is the celiac whose sole problem is gluten.

mushroom Proficient
mushroom
Posted
I do think rare is the celiac whose sole problem is gluten.

Oh yeah!!! Wouldn't it be grand if it were ONLY gluten!! I think you are right.

Piccolo Apprentice
Piccolo
Posted

There is a way to get around the problem with eggs. Eat duck eggs. I showed a sensitivity to egg white via blood test. It had a recommendation of eating duck eggs. I have had no problem with them. They are slightly richer then chicken eggs. They also are about $6.00 per dozen. So eat away and enjoy.

Susan :D

samcarter Contributor
samcarter
Posted

I completely understand your frustration. In less than one year, I've gone from eating anything that didn't eat me first, to eliminating gluten, dairy, apples, bananas, green beans, and now high-oxalate foods, including soy, in the hopes of resolving some irritating health issues.

You know what is high oxalate? CHOCOLATE. Dangit. I tried a mint-carob rice-based frozen dessert last night and got slammed with a horrible sinus headache--re-read the label and realized they'd sweetened the carob with barley malt. So that's out.

It's frustrating and honestly I dislike shopping at the stores now, it seems if i want a cracker it costs three times as much, ditto with any kind of ice cream. I'm very grateful for the coconut milk ice cream but because it's new, it's so expensive!

I agree with mysecretcurse, that we probably always had these sensitivities/allergies, but the problems with gluten were masking them. I know even though I had tested positive for bananas, apples and beans, that i was able to eat them with no apparent problems, until i'd been gluten free for many months.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


karen McIntosh Newbie
karen McIntosh
Posted

I agree with all of you - I have been trying to stick to a gluten-free diet for the past 8 years or so, but have just spent the last few months with horrible crampy, urgent diarrhea! Am thinking a complete physical is in order with tests to see what else is causing my problems. Sometimes I get so tired of reading labels on packages and worrying about what's in a restaurant meal I get so frustrated I go to Macdonalds and pack away a 1/4 pounder and fries just to have a few moments of enjoyment!!! I know it's bad and that I will pay for it, but sometimes cheating doesn't bother me as much as something hidden in a meal that I will react to very shortly afterward. Think I need to check out the possibility of other allergens. On top of all that, I was stung by a wasp on the golf course a few years ago and had a severe anaphylactic reaction and am supposed to carry an epipen with me - had never been allergic to bee venom before. I am 57 years young and feel the life draining out of me sometimes and want to feel good even if it's for short periods of time......... Does anyone know of a good "quick" cleanse I can use to get me through whatever I'm having this severe reaction to right now???? Thanks for listening........

TES Newbie
TES
Posted

Wow! Are you sure it is the chocolate? I am still trying to figure this out. I have read that M&M's and Snickers are safe, but my DH tells me different. I wonder if the vanilla in these chocolate goodies are more the problem. While I don't have a gut reaction as I do with gluten foods, (plus many other symptoms), I do have the skin reaction. I am thinking that any amount of gluten, (as in distilled vinegar,it bugs me too) any trace that is considered safe, really isn't safe for any of us. And I wonder if the gluten comes first, then all the other probems and allergies. Anyway, you take away the vanilla and the distiled vinegar foods, plus the gluten foods...it really does suck!

mattathayde Apprentice
mattathayde
Posted

you should try and find some one that does the bioset method (they will be an applied kinesiologist, kind of like chiropractor but its also some weird eastern medicine). these people can treat/reduce sensitivities and allergies, some times it takes a few times but there is no needles and no pain, ya its really weird but it works

i dont believe in any of the "modern medicine" allergy treatments because honestly they just cover it up and you have to keep getting treated where as this other system corrects the issues with in your body not covers them

-matt

samcarter Contributor
samcarter
Posted
Wow! Are you sure it is the chocolate? I am still trying to figure this out. I have read that M&M's and Snickers are safe, but my DH tells me different. I wonder if the vanilla in these chocolate goodies are more the problem. While I don't have a gut reaction as I do with gluten foods, (plus many other symptoms), I do have the skin reaction. I am thinking that any amount of gluten, (as in distilled vinegar,it bugs me too) any trace that is considered safe, really isn't safe for any of us. And I wonder if the gluten comes first, then all the other probems and allergies. Anyway, you take away the vanilla and the distiled vinegar foods, plus the gluten foods...it really does suck!

If you're referring to my chocolate reference....I'm cutting chocolate out for a while because it is high in oxalates, which can contribute to some health issues. Not cutting it out because of gluten. :) I've never had a reaction to chocolate unless it had milk in it (though, thinking, maybe that Cadbury bar had gluten in it, the way my head started hurting immediately!).

ang1e0251 Contributor
ang1e0251
Posted
Wow! Are you sure it is the chocolate? I am still trying to figure this out. I have read that M&M's and Snickers are safe, but my DH tells me different. I wonder if the vanilla in these chocolate goodies are more the problem. While I don't have a gut reaction as I do with gluten foods, (plus many other symptoms), I do have the skin reaction. I am thinking that any amount of gluten, (as in distilled vinegar,it bugs me too) any trace that is considered safe, really isn't safe for any of us. And I wonder if the gluten comes first, then all the other probems and allergies. Anyway, you take away the vanilla and the distiled vinegar foods, plus the gluten foods...it really does suck!

Are you sure it's a gluten reaction? The dyes in the M & M's can cause skin rashes for some people. Do other foods with dyes bother you? I've never had DH from either of those foods.

mattathayde Apprentice
mattathayde
Posted
Wow! Are you sure it is the chocolate? I am still trying to figure this out. I have read that M&M's and Snickers are safe, but my DH tells me different. I wonder if the vanilla in these chocolate goodies are more the problem. While I don't have a gut reaction as I do with gluten foods, (plus many other symptoms), I do have the skin reaction. I am thinking that any amount of gluten, (as in distilled vinegar,it bugs me too) any trace that is considered safe, really isn't safe for any of us. And I wonder if the gluten comes first, then all the other probems and allergies. Anyway, you take away the vanilla and the distiled vinegar foods, plus the gluten foods...it really does suck!

honestly i personally dont believe that alcohol and vinegar messes with people due to the supposed gluten that is carried over (because i dont logically see how it can carry over, or even is there when gluten gets broken down in these strong fermentation processes and distillations) but more so because of an allergy to what it is made from

idk maybe im trying to split hairs that are not there but i think a lot of the extreme reactions some people around here have are not gluten issues but other allergies that give similar reactions or that increase the reactions from gluten

-matt

Judyin Philly Enthusiast
Judyin Philly
Posted
idk maybe im trying to split hairs that are not there but i think a lot of the extreme reactions some people around here have are not gluten issues but other allergies that give similar reactions or that increase the reactions from gluten

-matt

I'd be interested to see if you younger members also are having these additional issues.

I'm 67 and know most of friends my age have so many more. IMO it's b/c we were undx'd for so long.

i'm also elim the High Oxalates and it has helped me.

4 years gluten-free, soy, dairy lite and addding some back FINALLY but the only flours i can use are rice and potato tho high in oxalates

Judy

mattathayde Apprentice
mattathayde
Posted
I'd be interested to see if you younger members also are having these additional issues.

I'm 67 and know most of friends my age have so many more. IMO it's b/c we were undx'd for so long.

i'm also elim the High Oxalates and it has helped me.

4 years gluten-free, soy, dairy lite and addding some back FINALLY but the only flours i can use are rice and potato tho high in oxalates

Judy

i wouldnt be surprised if those of us that got it caught at a younger age have the less issues

-matt

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.