Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Daughter Has It - Do I?


3groovygirls

Recommended Posts

3groovygirls Contributor

Hey everyone! My daughter is 2 and has Celiac. She has the HLA-DQ2 gene for it as well. I've never been tested but lately, b/c of her I've been eating a lot less gluten. gluten-free pasta, lasanga, corn tortilla's, cereals, etc.

Recently (Ok, don't laugh) we went to a concert and I had 4-5 "White" beers (the unfiltered wheat kind). My system has been off since that night!! Yes, it's a lot of beer, LOL, I realize that, but I don't mean a hangover. I mean I've had diarrhea EVER since! The first night it was HORRID, then after that it's just been every day and my stomach hurts a little.

Is it possible that I have Celiac as well but I never realized it and now that I've cut out gluten drinking so much of it really effected me? I really should get tested....I'm also 5'9" tall and only 115lbs or so. I just have never gotten tested b/c I don't have symptoms, but now I'm wondering if I do.

PS - I normally DON'T drink that much, LOL - it was a special occasion!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LDJofDenver Apprentice
Hey everyone! My daughter is 2 and has Celiac. She has the HLA-DQ2 gene for it as well. I've never been tested but lately, b/c of her I've been eating a lot less gluten. gluten-free pasta, lasanga, corn tortilla's, cereals, etc.

Recently (Ok, don't laugh) we went to a concert and I had 4-5 "White" beers (the unfiltered wheat kind). My system has been off since that night!! Yes, it's a lot of beer, LOL, I realize that, but I don't mean a hangover. I mean I've had diarrhea EVER since! The first night it was HORRID, then after that it's just been every day and my stomach hurts a little.

Is it possible that I have Celiac as well but I never realized it and now that I've cut out gluten drinking so much of it really effected me? I really should get tested....I'm also 5'9" tall and only 115lbs or so. I just have never gotten tested b/c I don't have symptoms, but now I'm wondering if I do.

PS - I normally DON'T drink that much, LOL - it was a special occasion!

Very possibly. I mean, she had to get it from one parent's side or the other, it is genetic.

My adult son was diagnosed about 11 years ago -- I'd never heard of it, and at the time none of the doctors said anything to us about testing parents or siblings. Eventually, after 10 years of asking my personal physician to test me for it, with all my ongoing gut and touchy bowel problems, weird rashes (which I now know to be dermatitis herpetiformis), migraines, etc, he finally ordered the test. And, yup, I belong to the club as well. Irks me to no end that I've probably had it at least all my adult life, and that it took them 10 years to test even when I was asking!

Didn't mean to go on! My point is definitely get tested. If you have it, the sooner you know the better, in terms of healing.

nasalady Contributor
Hey everyone! My daughter is 2 and has Celiac. She has the HLA-DQ2 gene for it as well. I've never been tested but lately, b/c of her I've been eating a lot less gluten. gluten-free pasta, lasanga, corn tortilla's, cereals, etc.

Recently (Ok, don't laugh) we went to a concert and I had 4-5 "White" beers (the unfiltered wheat kind). My system has been off since that night!! Yes, it's a lot of beer, LOL, I realize that, but I don't mean a hangover. I mean I've had diarrhea EVER since! The first night it was HORRID, then after that it's just been every day and my stomach hurts a little.

Is it possible that I have Celiac as well but I never realized it and now that I've cut out gluten drinking so much of it really effected me? I really should get tested....I'm also 5'9" tall and only 115lbs or so. I just have never gotten tested b/c I don't have symptoms, but now I'm wondering if I do.

PS - I normally DON'T drink that much, LOL - it was a special occasion!

Please see the following topic in the Dermatitis Herpetiformis forum:

https://www.celiac.com/gluten-free/index.php?showtopic=57093

My husband had NO IDEA that he had a gluten problem until he went gluten free with the rest of the family and then drank beer during the Superbowl weekend! Poor guy! He's still paying for it....

I'm betting you are the one that your daughter inherited the problem from.

Good luck!

JoAnn

gfb1 Rookie
My husband had NO IDEA that he had a gluten problem until he went gluten free with the rest of the family and then drank beer during the Superbowl weekend! Poor guy! He's still paying for it....

Open Original Shared Link

its really not that bad --- my brotherinlaw was beer-free for over a year when redbridge was released. he thought it was nectar of the gods...

however, it definitely WON'T help symptoms of consuming one-too-many...

:)

OptimisticMom42 Apprentice

A lot of us found out we were celiacs by going gluten free thanks to the atkins diet and then could not return to the normal American diet. For me it was my 2008 New Years resolution to lose 30lbs. I did really well. Then gave up in July, was sick for six months before going to the dr. Three dr's latter, I'm a celiac, my mom's a celiac, my son is a celiac. Whoooo hooo! Atkins for life plus Fruity Pebbles :P

Welcome aboard, you're one of us!

OptimisticMom42

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.