Looking For Celiac Dr. In Minneapolis Area

[Sierra's Mommy]

Hello:

I was recently diagnosed with Celiac, through a routine screening of family members. (My 6.5 year old was diagnosed two months ago.) My endo showed inflamed, flat lining with "no villi present". My internal medicine Doctor does not appear to understand Celiac, and I am concerned that I will not receive proper follow up care to ensure that I am responding to gluten-free. I am 44, and feel that I have had Celiac all of my life. I want to be assured that I do not have refractory sprue, etc. Does anyone know a good doctor in the twin cities that I can consult with for follow up care?

Thanks for any assistance you can provide.

[Roda]

Hello:

I was recently diagnosed with Celiac, through a routine screening of family members. (My 6.5 year old was diagnosed two months ago.) My endo showed inflamed, flat lining with "no villi present". My internal medicine Doctor does not appear to understand Celiac, and I am concerned that I will not receive proper follow up care to ensure that I am responding to gluten-free. I am 44, and feel that I have had Celiac all of my life. I want to be assured that I do not have refractory sprue, etc. Does anyone know a good doctor in the twin cities that I can consult with for follow up care?

Thanks for any assistance you can provide.

I can't help you with any doctors, but I do have a suggestion. Does your 6 1/2 yo see a specialist? Maybe they can recommend someone for you.

[jcc]

Hello:

I was recently diagnosed with Celiac, through a routine screening of family members. (My 6.5 year old was diagnosed two months ago.) My endo showed inflamed, flat lining with "no villi present". My internal medicine Doctor does not appear to understand Celiac, and I am concerned that I will not receive proper follow up care to ensure that I am responding to gluten-free. I am 44, and feel that I have had Celiac all of my life. I want to be assured that I do not have refractory sprue, etc. Does anyone know a good doctor in the twin cities that I can consult with for follow up care?

Thanks for any assistance you can provide.

Joseph Murray, M.D, is a reknown gastroenterologist at Mayo~

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I may have a recommendation for you by the end of the day for a primary care doctor who understands celiac disease. My DIL is in medical school at Mayo, and she shadowed a doctor in the area who has celiac disease herself. I'm just not sure if she was a primary care doctor or not. I'll let you know soon as I find out.

Cara

Well, the doctor is in Family Medicine but she is Rochester...Margaret Gill, MD

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But, my DIL is going to ask around about someone in the cities. Are you looking for a primary care doc who "knows" celiac, or a gastroenterologist ?

Also, you may want to check with a local support group... celiacs recommending celiac doctors probably give the most trustworthy recommendations. I always get a little nervous about doctors recommending doctors....unless they really know them. I know Margaret Gill is very knowledgeable because my DIL talked with her and Dr. Gill has celiac disease, but unfortunately she's not in the cities.

Minneapolis/St. Paul Area Support Group

Contact 1: Carol Hansen

Northland Celiac Support Group (formerly Midwest Gluten Intolerance Group)

Tel: (651) 489-0645

E-mail: carolahansen@comcast.net

Contact 2: Barbara Wojcik

Tel: (651) 653-4523

E-mail: barbara1760@comcast.net

Internet: Open Original Shared Link

[Sierra's Mommy]

.northlandceliacs.org

[Sierra's Mommy]

Joseph Murray, M.D, is a reknown gastroenterologist at Mayo~

Open Original Shared Link

I may have a recommendation for you by the end of the day for a primary care doctor who understands celiac disease. My DIL is in medical school at Mayo, and she shadowed a doctor in the area who has celiac disease herself. I'm just not sure if she was a primary care doctor or not. I'll let you know soon as I find out.

Cara

Well, the doctor is in Family Medicine but she is Rochester...Margaret Gill, MD

Open Original Shared Link

But, my DIL is going to ask around about someone in the cities. Are you looking for a primary care doc who "knows" celiac, or a gastroenterologist ?

Also, you may want to check with a local support group... celiacs recommending celiac doctors probably give the most trustworthy recommendations. I always get a little nervous about doctors recommending doctors....unless they really know them. I know Margaret Gill is very knowledgeable because my DIL talked with her and Dr. Gill has celiac disease, but unfortunately she's not in the cities.

Minneapolis/St. Paul Area Support Group

Contact 1: Carol Hansen

Northland Celiac Support Group (formerly Midwest Gluten Intolerance Group)

Tel: (651) 489-0645

E-mail: carolahansen@comcast.net

Contact 2: Barbara Wojcik

Tel: (651) 653-4523

E-mail: barbara1760@comcast.net

Internet: Open Original Shared Link

Thanks so much for your response and for checking with your daughter. I would really like a primary care doctor who understands Celiac. I have experienced a myriad of related ailments over the years looking back, and of course, no one "connected the dots". However, now that I have a diagnosis, I would like someone who understands the importance of routine follow up testing, etc. I had to request a bone density test from my current internal medicine doctor. I feel he should have known to do that in light of the recently discovered fact that I have been living with undiagnosed Celiac for 44 years. Any assistance your daughter can provide in finding a primary care doctor would be appreciated.

I'll also check out the support groups. Thanks so much!

[ek327]

I have a couple of suggestions in the Twin Cities. Dr. Karen Krenik is an internal medicine specialist in Edina--not sure of the group. She is very aware of the celiac disease.

I work at Allina Clinic in Champlin--I am an Nurse Practitioner in family practice, and have DH (gluten free x 6.5 years), my daughter has celiac (8 yo--diagnosed one year ago). I work in Family Practice. We also have a pediatrician at our clinic who has DH--Andrea Spandl. Because 2 of our providers at the clinic are gluten free/celiac/DH, all of our providers are pretty aware of the disease. Dr. Catherine Reed, at Southlake Pediatrics, at Children's west is another pediatrician who has family connection to celiac disease and is especially sensitive.

hope this helps.

Janet Siciliano

[DaphneC]

If he's in network for your insurance I would go see Dr. Joseph Murray at the Mayo Clinic. Just saw him last week and he was excellent. He's doing a lot of cutting edge Celiac research right now.

[kbtoyssni]

There's a couple suggestions for GPs in this thread: https://www.celiac.com/gluten-free/index.php?showtopic=55010