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Anyone From Missouri?


ohsroac

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bbuster Explorer

....I went to Mama Jean's today on Republic Rd and I must say that I was totally overwhelmed! ... The main thing I wanted to find, that my local store didn't have was pancake mix and flour. I honestly don't understand the flours and why we have to use so many different ones. I also didn't find any flour...I think I must have been missing it :(. I did find the pancake mix and I'm thinking I must try it out this weekend! Anyone have any ideas on the flours? I found a soy flour at a local to me store, now if I could just figure out what to do with it. HELP Please!

I have been to Mama Jeans maybe 5 times total (in 5 years). I went just last week and bought some Udi's bread, which my son liked. But honestly, while they are big on organic foods, etc. I really don't find the gluten-free things I use there. I think Akins (on Battlefield) has a much better selection of the gluten-free things I use regularly. To save money, I buy the flour staples at the Asian markets - they only carry rice, potato and tapioca starch (maybe soy too, but I don't use that). These I can all get for about $1/lb, more or less. If I am in the neighborhood, I go to the North Town Wal-Mart and buy a few things there (sorghum flour, pretzels, breakfast bars, almond flour) and then I get everything else at Akins (Pamela's mix, garfava flour, egg replacer, oreo-type cookies).

I mostly mix up my own flour mixes - I'm very fond of Bette Hagman's Featherlight blend, and I like Pamela's Baking & Pancake mix a lot, but it is expensive so I go back and forth.

Also, our local Price Cutter sells this Maple Grove gluten-free pancake mix that we like a lot - have not used it for anything but pancakes, while the Pamela's is versatile for a lot of things.

With regard to soy flour, it can have a strong taste, so if I had some I would just use a little at a time and blend with something else.

And in general, check out Bette Hagman's cookbook The Gluten-Free Gourmet Bakes Bread - it has a nice explanation on all the different flours. They have this in the Greene County Library system.

Final note: many flours should be kept refrigerated for best shelf life, so some stores keep them there.


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bbuster Explorer

Hi. I am also from Missouri, about 1 1/2 away from Springfield. I was diagnosed with Celiace Disease about 6 weeks ago. I am noticing a big difference in how I feel. I am just looking for friends that understand my excitement over learning something new, making a new connection about things/my condition, or finding a new food I can eat.

Speaking of excitement... I found a recipe today for a rice pizza crust and had pizza again for the first time in 6 weeks. It wasn't perfect, but by gosh it was Pizza! LOL

When my son was diagnosed, pizza was the thing he missed the most, so I made it my quest to learn to make a good one. After many, many different recipes, I came across Bette Hagman's recipe from The Gluten-Free Gourmet Bakes Bread. It has a lot of ingredients, so that can be intimidating, but it ended up being the best - by far - of all we tried. My son loves it. I mix up a batch of the dry mix and keep it in the pantry at all times. I make this about every other week - I always make a double batch and make extra crusts that I freeze after the first bake, to use when I have less time. Whenever my son has a friend over I make this pizza for everyone, and everyone loves it.

dmetria Newbie

When my son was diagnosed, pizza was the thing he missed the most, so I made it my quest to learn to make a good one. After many, many different recipes, I came across Bette Hagman's recipe from The Gluten-Free Gourmet Bakes Bread. It has a lot of ingredients, so that can be intimidating, but it ended up being the best - by far - of all we tried. My son loves it. I mix up a batch of the dry mix and keep it in the pantry at all times. I make this about every other week - I always make a double batch and make extra crusts that I freeze after the first bake, to use when I have less time. Whenever my son has a friend over I make this pizza for everyone, and everyone loves it.

Thanks, I will keep that in mind for the summer. Finding anything but Soy flour has been impossible so far, locally. I know of a few places to try that are a distance away, but for now I'm just keeping it simple. I did order a few things from a website and I can't wait to get them in. I hope it proves to be as good as I hope. It's just me at home now, so I try not to do a whole lot of cooking, altho I should.

On a diff note...I did notice my first msg had a missing word, I am 1 1/2 hours from Springfield. (I forgot hours...lol) I don't regularly shop in Springfield, but if I head that direction, I certainly plan to ask for a few places to check out.

I do have another question for anyone... I seem to be able to eat most dairy just fine, but when I drink milk, I get sick. Does this make sense to anyone? I go back to the Dr. in early May so I plan to talk to him about it. I don't want to give up dairy on top of everything else, but I'm so encouraged by feeling better.

sunnybabi1986 Contributor

I do have another question for anyone... I seem to be able to eat most dairy just fine, but when I drink milk, I get sick. Does this make sense to anyone? I go back to the Dr. in early May so I plan to talk to him about it. I don't want to give up dairy on top of everything else, but I'm so encouraged by feeling better.

I have this same problem. I can tolerate small amounts of cheese, yogurt, and ice cream, but milk makes me sick pretty quick. I think I read somewhere that people with lactose intolerance find dairy liquids to cause more a reaction than dairy solids because liquids pass through your intestines faster, giving your body less time to try to break down the lactose. With the solids, your body has a bit more time to try to break down the lactose and you don't get as sick.

  • 3 months later...
Branny Newbie

SHOP ONLINE FOR ALLERGY PRODUCTS! It may take a few days to come in, but most don't charge a SH Fee and you can Search at home on your PC for the best deals!

I have gone to the specialty stores and they are so over priced, shopping online saves me time, gas, and money in the end. You just have to do some online research... its worth it in the end!

  • 1 month later...
Glamma Newbie

So glad to have found this group too. I was just diagnosed two days ago. Colonoscopy and endo set for mid October. My plan is to stock my kitchen so after these tests I can go gluten-free (not supposed to until then). Tracking down the support group in Springfield also. My diagnosis was easy since my birth daughter has Celiac. She found me a couple of years ago for my medical information and it turns out she has been a huge help to me!

  • 4 weeks later...
mikejes Newbie

I live in a small town in Missouri.. it takes at least 45 mins to go the movie theater better yet almost 2 hours to go to a speciality store.. anyone else feel like everything takes forever to get too? Its so hard!

My wife has Celiac Disease and we keep our house gluten-free(my choice, just don't want cross contamination). We live in Joplin and have found two great places that we love to get things from. Take Nature's Path off Range Line in Webb City. And probably best bakery in town is called PJ's Bakery in Joplin, MO. She bakes anything from Diabetic food to normal everyday bakery stuff, to closing down the shop on Mondays and cleaning everything and ONLY doing Gluten Free Food on Mondays. She sells Cinnamon Rolls, Cakes, Bread(Sour dough-the best, white, cinnamon swirl), Dinner rolls, hamburger buns, hot dog buns, Pizza Dough(AWESOME-make your own pizza), pie crust, muffins, and all kinds of flavored bread as well. She makes it and can be picked up on Tuesday of each week or she will ship it to you as well. She ships all over the U.S. I'll tell you from not having to eat gluten free(but choose too) that we have found that there isn't anything that taste as good as PJ's. She is wonderful, have your order in by Friday and pick it up on Tuesday. And for like pizza dough it sells for $3, and we can make two pizza's out of one dough. So great price as well. A loaf of sour dough bread is $3.50.


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  • Recent Activity

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      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Are Lindt chocolate balls gluten free?

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      Are Lindt chocolate balls gluten free?


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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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