Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Results!


yellowlilax

Recommended Posts

yellowlilax Rookie

I took the Biocard blood test and it was negative (assuming the drs wouldnt test me - I should have just waited because my doctor suggested it before I even said a thing). I was still concerned and sent a stool culture to Enterolab and it was negative. Here are my results:

Gluten Sensitivity Stool Test

Fecal Anti-gliadin IgA 3 Units

The results took just short of 2 weeks to come in (2 weeks is tomorrow)

Just wanted to post this because I know some (myself included) worry that Enterolab says everyone is positive and questions the validity of the company. I don't have red flags for celiac, but have had alternating diarrhea/constipation for the last few months. I know, I know - some people can't produce IGA at all..) So far everything has tested negative from all the doctors. Blood work, CT scan, MRI, stool cultures, etc. I originally thought this was a GYN issue (pain in low, low left side) and now have been trying probiotics and various supplements. The pain has since gone away and has been gone for several weeks. I have a feeling this may be a dairy intolerance and am on to that now. My blood work has been sent off through the doctor to test for an allergy to all the milk components and a lactose intolerance breath test is up next. Anyways, just thought I'd post this for those interested!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Ok, that is interesting. I kind of had the impression the Enterolab testing was apt to show more intolerances also. I don't think I have seen many people post about negative results, but maybe that is because they just don't post about them, or I miss the posts...

I never did the hydrogen breath test myself, but I didn't really need to. Anytime I ate dairy it was real obvious. You'll have to let us know if the hydrogen breath test is fun though. Do they really make you put your finger on your nose and stand on one leg? :D

Korwyn Explorer
Just wanted to post this because I know some (myself included) worry that Enterolab says everyone is positive and questions the validity of the company.

I think this is because by the time someone has researched to the level that they are willing or able to self-pay they are pretty certain they have it. It is kinda like a self-targeting survey. The people most likely to fill it out already have a predisposition because of the topic. So there would be a abnormal high number of people who test positive compared to the general population.

leadmeastray88 Contributor
I think this is because by the time someone has researched to the level that they are willing or able to self-pay they are pretty certain they have it. It is kinda like a self-targeting survey. The people most likely to fill it out already have a predisposition because of the topic. So there would be a abnormal high number of people who test positive compared to the general population.

That is my belief too.

If you're willing to spend nearly $400 on getting tested, you probably have enough evidence of having a problem with gluten in the first place.

And we do know for a fact that there have been negative tests posted on here before - there's probably even more, but people move on to another thing once they learn gluten isn't a problem. And that doesn't include people who aren't a part of this forum.

yellowlilax Rookie
That is my belief too.

If you're willing to spend nearly $400 on getting tested, you probably have enough evidence of having a problem with gluten in the first place.

And we do know for a fact that there have been negative tests posted on here before - there's probably even more, but people move on to another thing once they learn gluten isn't a problem. And that doesn't include people who aren't a part of this forum.

I only got the basic gluten sensitivity testing for $100. I am a paranoid, worrier! So thats why I got the test. I also am typically never sick - we eat very well - organically, no processed foods, etc. and actively work out, etc. I've had 4 months of alternating constipation and diarrhea that started randomly one day like flipping on a switch. I've been through a ridiculous amount of testing with no answers and came across info on celiac. So to me it was just ruling out another thing and moving on to figuring it out. Its very easy logic to know that most that test there have huge indicators, but I wanted to post for those that are worry warts like myself as well. And to those that doubt their testing.

leadmeastray88 Contributor
I only got the basic gluten sensitivity testing for $100. I am a paranoid, worrier! So thats why I got the test. I also am typically never sick - we eat very well - organically, no processed foods, etc. and actively work out, etc. I've had 4 months of alternating constipation and diarrhea that started randomly one day like flipping on a switch. I've been through a ridiculous amount of testing with no answers and came across info on celiac. So to me it was just ruling out another thing and moving on to figuring it out. Its very easy logic to know that most that test there have huge indicators, but I wanted to post for those that are worry warts like myself as well. And to those that doubt their testing.

Absolutely, that's what I was trying to say. :)

I should have clarified that people who buy Enterolab tests usually have symptoms and have ruled out other things, so the chance is higher that they'll have a positive result, whereas if everyone in the general population got tested there would be more negative tests.

Enterolab is great for that, I certainly found benefits from getting their tests, especially the genetic part of it. It gave me a reason to stay strict on the diet, which is the most important thing.

I was also a worrier, more so that nobody could figure out what was wrong with me, and I was desperate to find answers instead of getting IBS pills. Enterolab definitely helped me this way in the long run.

JamMama Newbie
Absolutely, that's what I was trying to say. :)

I should have clarified that people who buy Enterolab tests usually have symptoms and have ruled out other things, so the chance is higher that they'll have a positive result, whereas if everyone in the general population got tested there would be more negative tests.

Enterolab is great for that, I certainly found benefits from getting their tests, especially the genetic part of it. It gave me a reason to stay strict on the diet, which is the most important thing.

I was also a worrier, more so that nobody could figure out what was wrong with me, and I was desperate to find answers instead of getting IBS pills. Enterolab definitely helped me this way in the long run.

I'm knew to this forum - so don't know how to do this! ARe you saying that Enterolab is worth the $400? I'm interested in testing for dairy and gluten intolerance?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



leadmeastray88 Contributor
I'm knew to this forum - so don't know how to do this! ARe you saying that Enterolab is worth the $400? I'm interested in testing for dairy and gluten intolerance?

Hi there,

I would only recommend Enterolab testing if you've already had other testing done - for example:

1) The Celiac bloodwork panel, which includes:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

2) An endoscopy with biopsy

Reason being, Enterolab's testing methods have not yet been approved/acknowledged by the current medical community. They claim to be able to detect active dietary gluten sensitivity in the stool, but NOT diagnose Celiac Disease.

I think it's extremely important to know how you fare on the other tests first. Because the validity of the tests is sometimes questioned, you may second guess yourself later on and wonder if you actually have Celiac Disease, yet it's too late to test since you'll have tried the diet. It saves a lot of confusion and second guessing in the long run.

What I meant by my last comment was that Enterolab helped me, yes, but it was not the only thing that kept me strict on the diet. My doctor monitored my symptom improvement and B12 deficiency, and a couple family members were also diagnosed, so this gave me more and more assurance that I was doing the right thing. Had it only been for the Enterolab tests, I'm not sure it would have been enough for me. I had negative bloodwork and had no GIs who would give me an endoscopy, so I opted for Enterolab. But please know that you won't know if you have Celiac by taking these tests.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,559
    • Most Online (within 30 mins)
      7,748

    gracedomingo
    Newest Member
    gracedomingo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.