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Newly Diagnosed And Gluten Free But Still Plenty Of Sxs


kqh

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kqh Newbie

Hi - I was recently diagnosed with celiac. While I was waiting for my endoscopy results I did my own mini trial of gluten free for three days and immediately saw that my stomach aches and diarhhea significantly decreased. I then went back to eating gluten until I got my official diagnosis. I slowly was taking gluten, and then finally stoped all gluten about 5 days ago. My issues is that since I have stopped eating all gluten, my stomaches and diarhhea have come back with full force. I have double checked that the small amount of proceessed food I have is truly gluten free - and I do not believe I am being hiddenly contaminated. How long did others find it took to be gluten free before the GI symptoms went away?


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psawyer Proficient

Welcome to the board.

I began to see some improvement within a week, but it took about thee months for symptoms to go away.

Gluten is just the start of the chain. It triggers the production of antibodies. This continues for about two weeks after exposure, although levels may decline. Once the antibodies are gone, the intestines are no longer under attack and can begin to heal.

Be patient.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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