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How Do I Make It Stop?

Aeman56

By Aeman56
in Dermatitis Herpetiformis

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Aeman56 Apprentice
Aeman56
Posted

I posted under children but got just 2 replies and am looking for more help.

My son had a rash on his face they told me was from celiacs. Well he eats gluten-free now and the rash comes and goes, even when he is eating gluten-free stuff!

Yesterday it came back full force and I honestly wonder if its not caused by celiacs.

Does anyone know why the rash would come and go?

Does anyone have pictures of a face rash on them or their children so I could compare? (it does NOT look like what I find on google)

I read up on and found the following products to be safe (actually some were suggestions from people on this site), but does anyone know something I don't about Swanson's beef broth 14oz can or Sweet baby rays bbq sauce? What about salt and pepper??? Ballpark hot dogs?? Those are the only add ins we had yesterday. Everything else was fresh and unaltered.

The drs are NO help, I have read books, online, called places, talked with other celiacs, everything I can think of to become gluten-free and the rash will not go away!! Its so depressing!!!

Thank you for any help.

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daphniela Explorer
daphniela
Posted
I posted under children but got just 2 replies and am looking for more help.

My son had a rash on his face they told me was from celiacs. Well he eats gluten-free now and the rash comes and goes, even when he is eating gluten-free stuff!

Yesterday it came back full force and I honestly wonder if its not caused by celiacs.

Does anyone know why the rash would come and go?

Does anyone have pictures of a face rash on them or their children so I could compare? (it does NOT look like what I find on google)

I read up on and found the following products to be safe (actually some were suggestions from people on this site), but does anyone know something I don't about Swanson's beef broth 14oz can or Sweet baby rays bbq sauce? What about salt and pepper??? Ballpark hot dogs?? Those are the only add ins we had yesterday. Everything else was fresh and unaltered.

The drs are NO help, I have read books, online, called places, talked with other celiacs, everything I can think of to become gluten-free and the rash will not go away!! Its so depressing!!!

Thank you for any help.

What kind of soap and detergent do you use?

Aeman56 Apprentice
Aeman56
Posted
  • Author
What kind of soap and detergent do you use?

All free and clear detergent and he uses huggies baby body wash currently but he had the rash back when he used Johnson and Johnson baby wash.

daphniela Explorer
daphniela
Posted
All free and clear detergent and he uses huggies baby body wash currently but he had the rash back when he used Johnson and Johnson baby wash.

I would switch to Aveeno. Since making the switch, my son no longer gets a rash.

TES Newbie
TES
Posted

I am still learning about celiac. Swansons broth is unsafe. (made me sick) Unless it is printed on the label, it is not safe. I have used the Swansons "cardboard" container, which it is labeled gluten free. When I have been glutened, it always takes the skin reaction the longest to heal. I thought for a awhile I was touching gluten or soaps, shampooes, etc were making me ill, but have found, it is only whern I ingest it, that it gets me. The hidden gluten is the worst! Lately, I have tried the Walmart Great Value products that have gluten free labels, but they sure make me sick. I think their products are being made on non-dedicated lines, thus cross-contaminated. They should have to label that as well. Any food made on a non-dedicated line, makes me sick. The best way of finding out what is making your baby sick, is to go back to unprocessed foods, adding only one new thing at a time and then wait several days to a week for reaction.

Salt and pepper are ok, I don't know about the hotdogs and I would question the bbq as most bbq sauces have gluten in them.

ravenwoodglass Mentor
ravenwoodglass
Posted
I would switch to Aveeno. Since making the switch, my son no longer gets a rash.

I would have to disagree with this. Large amounts of Aveeno products contain oats, a no-no for most of us. A good soap to try would be a pure castile soap.

I also use the All free and clear detergent and have no issues with it.

Aeman56 Apprentice
Aeman56
Posted
  • Author
I am still learning about celiac. Swansons broth is unsafe. (made me sick) Unless it is printed on the label, it is not safe. I have used the Swansons "cardboard" container, which it is labeled gluten free. When I have been glutened, it always takes the skin reaction the longest to heal. I thought for a awhile I was touching gluten or soaps, shampooes, etc were making me ill, but have found, it is only whern I ingest it, that it gets me. The hidden gluten is the worst! Lately, I have tried the Walmart Great Value products that have gluten free labels, but they sure make me sick. I think their products are being made on non-dedicated lines, thus cross-contaminated. They should have to label that as well. Any food made on a non-dedicated line, makes me sick. The best way of finding out what is making your baby sick, is to go back to unprocessed foods, adding only one new thing at a time and then wait several days to a week for reaction.

Salt and pepper are ok, I don't know about the hotdogs and I would question the bbq as most bbq sauces have gluten in them.

Thank you. I contacted Swanson... they said they practice "truth labeling" same with sara lee who makes the hot dogs. I did not see gluten ingredients in either however. Back to the drawing board I guess.

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daphniela Explorer
daphniela
Posted
I would have to disagree with this. Large amounts of Aveeno products contain oats, a no-no for most of us. A good soap to try would be a pure castile soap.

I also use the All free and clear detergent and have no issues with it.

Baby Naturals is also gentle and doesn't contain any oats.

ChemistMama Contributor
ChemistMama
Posted

1. How long has your son been gluten free? If the rash is in fact DH it may take several months or a year before the breakouts completely clear up.

2. Does the rash itch? One hallmark of DH is that it is extremely itchy. Worse than poision ivy.

3. In my experience, after I went gluten-free it took about 36 hours for me to react to gluten...it may have been something he ate the day before.

4. If it isn't DH, he may have a food allergy, as other posters have mentioned. You may want to find an allergist and get him tested.

hope this helps!

Sprite Newbie
Sprite
Posted

Might want to have him checked for vitamin deficiencies also. I'd have them check for everything but here are some related to skin and mucous membranes problems. (Vitamin D is a big problem so might as well check that too).

Zinc, Iron, riboflavin, niacin, folate and vitamin B12, vitamin K, A and essential fatty acids

Here's a pretty good pic link; there's a children's section, under picture gallery, but it starts with DH pics:

Open Original Shared Link

warning: some are pretty graphic, don't be eating lunch while viewing.

Caseysmommy Apprentice
Caseysmommy
Posted

My daughter is 2 and we have been gluten free since Aug 1 2008. She has done very well. Her main problems was diarriah and a rash on her face. The rash went away after going gluten-free but comes back every so often. We have no idea why her face swells and she will get a low grade fever and her race will be back. She says it hurts so im guessing she means itches. Any help would be great. I agree with the orginal poster Drs are no help.

angie

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    • Jmartes71
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