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? Gluten Allergy

Raynee

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Raynee Rookie
Raynee
Posted

Hello everyone,

I just wanted to get some opinions and feedback on my symptoms. I see a gastroenterologist in two weeks. Have seen one in the past but gave up. I don't know if I have this condition so I am asking opinions who those who do. I have had severe bloating of my stomach for about seven years now. I have tried every medication known with no help. I look six months pregnant when I relax my stomach. It feels like someone is inside pushing it out. At night I have terrible gas. This is constant. I get no relief whatsoever. I hold my stomach all day. I have noticed carbs seem to make it even worse. And beer. Also when I drink a few sips of a beer my neck up and ears turn purple/red and burn like crazy. I have occasional diarrhea but not much constipation. I also have eczema for about seven years now and I am infertile and the doctors have no idea why. It literally feels like i swallowed a turkey. I have muscle weakness, headaches, and god awful fatigue for years. I got so desperate at one point four years ago I had liposuction of my abdomen. I am 130 pounds and can gain 5-6 pounds in a couple of days, and it is not water, it is belly.

Any feedback would be greatly appreciated.

Desperate for answers.

Renee

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Mother of Jibril Enthusiast
Mother of Jibril
Posted

Hi Renee,

Have you ever had a celiac panel (blood test)? Celiac disease is an autoimmune disorder... not an allergy... so you need to make sure you're getting the right kind of tests. Also, have you tried the gluten-free diet yet? If not, keep eating gluten until the testing is complete!! Otherwise, you could easily get a false negative. Some people have celiac disease without any symptoms at all, but with your history of bloating, fatigue, and infertility I think it's definitely worth checking out.

Good luck!

slimchance Newbie
slimchance
Posted

I too have had an eczema for a long while which is why I decided to go to a dermatologist a few years ago. After a gauntlet of tests, (Thankfully I had Insurance, they were nearly $20,000 in total) She mentioned that I was allergic to gluten. I tried quitting, and it totally sucks sucks sucks............... But I feel 200% better because of my new diet. Life isnt nearly as hard to live once you realize there are ways around everything.

If you live in an area where there is an In N out burger, you can get a burger with no bun and no sauce, and they dont cook anything in the fryers other than fries, so youre safe there. Thats just one example.

Also, Open Original Shared Link has a great bread mix that is not only comparable to regular bread, but in my experience, is better tasting.. Don't ever go buy that horrible tapioca or rice flour bread at the grocery store. It will just be depressing if you do.

I am still quite new to this and the only thing I can say to help cope with the complete life change is to find a way to keep yourself in good spirits about it. At least you dont have AIDS, right?

ohmyheavenwhy Newbie
ohmyheavenwhy
Posted
Also, Open Original Shared Link has a great bread mix that is not only comparable to regular bread, but in my experience, is better tasting.. Don't ever go buy that horrible tapioca or rice flour bread at the grocery store. It will just be depressing if you do.

amen to that.

eating gluten-free has made such a huge difference for me, it's SO worth it--given your symptoms i would definitely try it! i dealt with a lot of fatigue and most of it disappeared once i stopped eating gluten. that alone was worth it, but the grocery list (literally i wrote them all out) of other symptoms i was experiencing due to gluten intolerance assure me that i never again want to touch that stuff.

if you don't feel like your visit with the gastroenterologist goes anywhere, try cutting gluten out of your diet! one way or another i hope you can get some answers.

Raynee Rookie
Raynee
Posted
  • Author
Hello everyone,

I just wanted to get some opinions and feedback on my symptoms. I see a gastroenterologist in two weeks. Have seen one in the past but gave up. I don't know if I have this condition so I am asking opinions who those who do. I have had severe bloating of my stomach for about seven years now. I have tried every medication known with no help. I look six months pregnant when I relax my stomach. It feels like someone is inside pushing it out. At night I have terrible gas. This is constant. I get no relief whatsoever. I hold my stomach all day. I have noticed carbs seem to make it even worse. And beer. Also when I drink a few sips of a beer my neck up and ears turn purple/red and burn like crazy. I have occasional diarrhea but not much constipation. I also have eczema for about seven years now and I am infertile and the doctors have no idea why. It literally feels like i swallowed a turkey. I have muscle weakness, headaches, and god awful fatigue for years. I got so desperate at one point four years ago I had liposuction of my abdomen. I am 130 pounds and can gain 5-6 pounds in a couple of days, and it is not water, it is belly.

Any feedback would be greatly appreciated.

Desperate for answers.

Renee

Thank you for your replies. I have never had the celiac test and I am hoping this doctor will run the test. I will insist actually. I will continue the gluten until I see him because I want him to see my stomach as it has been for many years. I am not going to lie, I am a bit anxious as I don't want to have this, however, I feel like there is hope to feel better if I do and it would explain a lot of weirdo symptoms in my life. Has anyone out there ever had any neurological problems from this. About ten years ago I was dx with having mini strokes. My face was paralyzed, fatigue, right sided weakness, etc. MRI and all tests negative. That is better now thank god!

slimchance Newbie
slimchance
Posted
I will continue the gluten ....

If I were you, I would stop with the gluten. The doctor will see the effects of it and you will be better off the sooner you get off of it. I know its hard, but it has to be done. If youre not going to heed my warning and those of others, ENJOY THE HELL OUT OF IT WHILE YOU CAN!!!!!!!!!!!!!!!!!!1

ravenwoodglass Mentor
ravenwoodglass
Posted
If I were you, I would stop with the gluten. The doctor will see the effects of it and you will be better off the sooner you get off of it. I know its hard, but it has to be done. If youre not going to heed my warning and those of others, ENJOY THE HELL OUT OF IT WHILE YOU CAN!!!!!!!!!!!!!!!!!!1

She needs to stay on gluten until all the testing for celiac is done. Otherwise she will have a false negative result on the tests. After that testing is done I agree fully that she should give the diet a good strict try for a bit to see if it helps no matter what the test results are.

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