Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

? Gluten Allergy

Raynee

Recommended Posts

Raynee Rookie
Raynee
Posted

Hello everyone,

I just wanted to get some opinions and feedback on my symptoms. I see a gastroenterologist in two weeks. Have seen one in the past but gave up. I don't know if I have this condition so I am asking opinions who those who do. I have had severe bloating of my stomach for about seven years now. I have tried every medication known with no help. I look six months pregnant when I relax my stomach. It feels like someone is inside pushing it out. At night I have terrible gas. This is constant. I get no relief whatsoever. I hold my stomach all day. I have noticed carbs seem to make it even worse. And beer. Also when I drink a few sips of a beer my neck up and ears turn purple/red and burn like crazy. I have occasional diarrhea but not much constipation. I also have eczema for about seven years now and I am infertile and the doctors have no idea why. It literally feels like i swallowed a turkey. I have muscle weakness, headaches, and god awful fatigue for years. I got so desperate at one point four years ago I had liposuction of my abdomen. I am 130 pounds and can gain 5-6 pounds in a couple of days, and it is not water, it is belly.

Any feedback would be greatly appreciated.

Desperate for answers.

Renee

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

Hi Renee,

Have you ever had a celiac panel (blood test)? Celiac disease is an autoimmune disorder... not an allergy... so you need to make sure you're getting the right kind of tests. Also, have you tried the gluten-free diet yet? If not, keep eating gluten until the testing is complete!! Otherwise, you could easily get a false negative. Some people have celiac disease without any symptoms at all, but with your history of bloating, fatigue, and infertility I think it's definitely worth checking out.

Good luck!

slimchance Newbie
slimchance
Posted

I too have had an eczema for a long while which is why I decided to go to a dermatologist a few years ago. After a gauntlet of tests, (Thankfully I had Insurance, they were nearly $20,000 in total) She mentioned that I was allergic to gluten. I tried quitting, and it totally sucks sucks sucks............... But I feel 200% better because of my new diet. Life isnt nearly as hard to live once you realize there are ways around everything.

If you live in an area where there is an In N out burger, you can get a burger with no bun and no sauce, and they dont cook anything in the fryers other than fries, so youre safe there. Thats just one example.

Also, Open Original Shared Link has a great bread mix that is not only comparable to regular bread, but in my experience, is better tasting.. Don't ever go buy that horrible tapioca or rice flour bread at the grocery store. It will just be depressing if you do.

I am still quite new to this and the only thing I can say to help cope with the complete life change is to find a way to keep yourself in good spirits about it. At least you dont have AIDS, right?

ohmyheavenwhy Newbie
ohmyheavenwhy
Posted
Also, Open Original Shared Link has a great bread mix that is not only comparable to regular bread, but in my experience, is better tasting.. Don't ever go buy that horrible tapioca or rice flour bread at the grocery store. It will just be depressing if you do.

amen to that.

eating gluten-free has made such a huge difference for me, it's SO worth it--given your symptoms i would definitely try it! i dealt with a lot of fatigue and most of it disappeared once i stopped eating gluten. that alone was worth it, but the grocery list (literally i wrote them all out) of other symptoms i was experiencing due to gluten intolerance assure me that i never again want to touch that stuff.

if you don't feel like your visit with the gastroenterologist goes anywhere, try cutting gluten out of your diet! one way or another i hope you can get some answers.

Raynee Rookie
Raynee
Posted
  • Author
Hello everyone,

I just wanted to get some opinions and feedback on my symptoms. I see a gastroenterologist in two weeks. Have seen one in the past but gave up. I don't know if I have this condition so I am asking opinions who those who do. I have had severe bloating of my stomach for about seven years now. I have tried every medication known with no help. I look six months pregnant when I relax my stomach. It feels like someone is inside pushing it out. At night I have terrible gas. This is constant. I get no relief whatsoever. I hold my stomach all day. I have noticed carbs seem to make it even worse. And beer. Also when I drink a few sips of a beer my neck up and ears turn purple/red and burn like crazy. I have occasional diarrhea but not much constipation. I also have eczema for about seven years now and I am infertile and the doctors have no idea why. It literally feels like i swallowed a turkey. I have muscle weakness, headaches, and god awful fatigue for years. I got so desperate at one point four years ago I had liposuction of my abdomen. I am 130 pounds and can gain 5-6 pounds in a couple of days, and it is not water, it is belly.

Any feedback would be greatly appreciated.

Desperate for answers.

Renee

Thank you for your replies. I have never had the celiac test and I am hoping this doctor will run the test. I will insist actually. I will continue the gluten until I see him because I want him to see my stomach as it has been for many years. I am not going to lie, I am a bit anxious as I don't want to have this, however, I feel like there is hope to feel better if I do and it would explain a lot of weirdo symptoms in my life. Has anyone out there ever had any neurological problems from this. About ten years ago I was dx with having mini strokes. My face was paralyzed, fatigue, right sided weakness, etc. MRI and all tests negative. That is better now thank god!

slimchance Newbie
slimchance
Posted
I will continue the gluten ....

If I were you, I would stop with the gluten. The doctor will see the effects of it and you will be better off the sooner you get off of it. I know its hard, but it has to be done. If youre not going to heed my warning and those of others, ENJOY THE HELL OUT OF IT WHILE YOU CAN!!!!!!!!!!!!!!!!!!1

ravenwoodglass Mentor
ravenwoodglass
Posted
If I were you, I would stop with the gluten. The doctor will see the effects of it and you will be better off the sooner you get off of it. I know its hard, but it has to be done. If youre not going to heed my warning and those of others, ENJOY THE HELL OUT OF IT WHILE YOU CAN!!!!!!!!!!!!!!!!!!1

She needs to stay on gluten until all the testing for celiac is done. Otherwise she will have a false negative result on the tests. After that testing is done I agree fully that she should give the diet a good strict try for a bit to see if it helps no matter what the test results are.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.