Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bob's Red Mill?


darkmoonsinger

Recommended Posts

darkmoonsinger Newbie

Hey all,

Okay, so I searched the forum and only really found posts from 2-3 years ago, so I'm hoping something has changed. Has anyone recently been glutened by Bob's Red Mill gluten-free flours? I was so excited to see them in Wal*Mart that I bought a bag of pizza crust mix, a bag of biscuit mix, and a bag of cookie mix. I had some pizza last night, and I'm feeling awful today. I've had nothing but foods I've cooked myself, from "whole foods", for the past week and a half.

The problem is that it usually takes me two full days to get GI symptoms, and I have psych symptoms during those two days. I felt pretty blah emotionally last night, but this is much faster than before. ...Though, I'm finally back out on my own now that uni is out for the summer and I'm controlling what I eat, so I've moved to a very "whole foods" diet-- lots of fresh meats and produce, only one or two processed foods (literally; I'm rather proud of how I've been cooking). Maybe finally being fully gluten-free has sped up the process? I don't know, but I'm feeling rather frustrated right now.

Anyway, any thoughts anyone can give me would be great.

-Jamie

Self-dagnosed January 2009 via elimination diet and challenge

Doctor diagnosed "either celiac disease or IBS-GS" January 2009

Antibody negative, January 2009

Genetic marker negative

Too chicken to go back to gluten to get 'scoped. :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jrc121 Newbie

I used Bob's Red Mill flours often for the past few months and haven't noticed anything. I wouldn't doubt that it is possible for you to have run into a contamination issue. Make sure it is at least labeled "gluten-free." Not all their flour is labeled gluten free, like the corn flour, though I have tried it and didn't notice any reactions there either.

TrillumHunter Enthusiast

Bob's Red Mill is one of the mainstream companies that takes extra steps to ensure our safety. If the product says gluten-free then it is produced in a dedicated facility and batch tested. Perhaps you are having trouble tolerating one of the flours in the mix? Bean flour is hard on the tummy for most newly diagnosed folks.

I don't work for BRM. To be honest, I don't like most of their mixes. :( But I do think they are a responsible and trustworthy company.

brigala Explorer

I have a theory that maybe people who react to Bob's Red Mill gluten-free stuff are people who are very sensitive to oats. Although their gluten-free stuff is all done in a dedicated facility, they do process certified gluten-free oats there. How are you with oats?

It's just a guess, of course. Personally, I've never had an issue with Bob's stuff. But I don't react to oats, either (I'll even risk small quantities of non-certified oats from time to time).

-Elizabeth

TrillumHunter Enthusiast
I have a theory that maybe people who react to Bob's Red Mill gluten-free stuff are people who are very sensitive to oats. Although their gluten-free stuff is all done in a dedicated facility, they do process certified gluten-free oats there. How are you with oats?

It's just a guess, of course. Personally, I've never had an issue with Bob's stuff. But I don't react to oats, either (I'll even risk small quantities of non-certified oats from time to time).

-Elizabeth

Good thinking! I have never tried oats at all so that wouldn't have crossed my mind.

You get the Sherlock Holmes Award of the day! :lol:

Jamie, hang in there. It gets easier and you can find stuff you like and can tolerate. It just takes longer for some.

MaryJones2 Enthusiast

I know it's frustrating. The best advice I can offer is to try several brands and go with the one that works for you. Every body is different and we all have one or two things that bother us despite being gluten-free!

sylviaann Apprentice
Hey all,

Okay, so I searched the forum and only really found posts from 2-3 years ago, so I'm hoping something has changed. Has anyone recently been glutened by Bob's Red Mill gluten-free flours? I was so excited to see them in Wal*Mart that I bought a bag of pizza crust mix, a bag of biscuit mix, and a bag of cookie mix. I had some pizza last night, and I'm feeling awful today. I've had nothing but foods I've cooked myself, from "whole foods", for the past week and a half.

The problem is that it usually takes me two full days to get GI symptoms, and I have psych symptoms during those two days. I felt pretty blah emotionally last night, but this is much faster than before. ...Though, I'm finally back out on my own now that uni is out for the summer and I'm controlling what I eat, so I've moved to a very "whole foods" diet-- lots of fresh meats and produce, only one or two processed foods (literally; I'm rather proud of how I've been cooking). Maybe finally being fully gluten-free has sped up the process? I don't know, but I'm feeling rather frustrated right now.

Anyway, any thoughts anyone can give me would be great.

-Jamie

Self-dagnosed January 2009 via elimination diet and challenge

Doctor diagnosed "either celiac disease or IBS-GS" January 2009

Antibody negative, January 2009

Genetic marker negative

Too chicken to go back to gluten to get 'scoped. :P

I was suspicious that I may have been suffering from a reaction (neurological) after using Bob's All Purpose Flour to bake with. I recently stopped using it and recently switched to Tom Sawyer flour.

Sylviaann


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sixtytwo Apprentice

I am using BRM bread mix as my main bread. I LOVE it, smells glorious coming out of the over. I LOVE bread, it means a lot to me to have good bread. I even make little pizzas with the bread, toasting it first and then putting spaghetti sauce on it and then mozzarella cheese/under the broiler. Not like Pizza Hut, but also safe!!!!! The BRM brownie mix is good too and I use their flour in place of regular all the time. None of it has made me sick. Barbara

darkmoonsinger Newbie
Bob's Red Mill is one of the mainstream companies that takes extra steps to ensure our safety. If the product says gluten-free then it is produced in a dedicated facility and batch tested.

That's very true... I guess I've become really distrustful in the whopping 6 months it's been. :\

Perhaps you are having trouble tolerating one of the flours in the mix? Bean flour is hard on the tummy for most newly diagnosed folks.

Hmm... I hadn't heard that. I guess being tummy ill because of an alternative flour (no bean flour in what I ate) and being generally blah could look like I'd been glutened.

Thanks,

-Jamie

Self-dagnosed January 2009 via elimination diet and challenge

Doctor diagnosed "either celiac disease or IBS-GS" January 2009

Antibody negative, January 2009

Genetic marker negative

Too chicken to go back to gluten to get 'scoped. tongue.gif

darkmoonsinger Newbie
I have a theory that maybe people who react to Bob's Red Mill gluten-free stuff are people who are very sensitive to oats. Although their gluten-free stuff is all done in a dedicated facility, they do process certified gluten-free oats there. How are you with oats?

It's just a guess, of course. Personally, I've never had an issue with Bob's stuff. But I don't react to oats, either (I'll even risk small quantities of non-certified oats from time to time).

-Elizabeth

Hmm, I hadn't heard of that correlation (but then, I only know one other coeliac/gluten-free). I actually don't know how I react to oats; I didn't eat them that much before I knew that it was gluten beating me up, and I've been unwilling to test out what will make me ill or not, because life won't slow down for long enough for me to be ill.

I might want to test this one, however, so I know. I'll be giving the BRM mix another try this week, hoping it was a coincidence or that I was accidentally contaminated by my flatmate.

Thanks!

-Jamie

Self-dagnosed January 2009 via elimination diet and challenge

Doctor diagnosed "either celiac disease or IBS-GS" January 2009

Antibody negative, January 2009

Genetic marker negative

Too chicken to go back to gluten to get 'scoped. :P

  • 2 months later...
slimchance Newbie
I am using BRM bread mix as my main bread. I LOVE it, smells glorious coming out of the over. I LOVE bread, it means a lot to me to have good bread. I even make little pizzas with the bread, toasting it first and then putting spaghetti sauce on it and then mozzarella cheese/under the broiler. Not like Pizza Hut, but also safe!!!!! The BRM brownie mix is good too and I use their flour in place of regular all the time. None of it has made me sick. Barbara

Have you doctored up the recipe at all? I use canned milk in my bread mix.. it seems to work better, and I also use a bit more yeast.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,961
    • Most Online (within 30 mins)
      7,748

    Noa
    Newest Member
    Noa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.