Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should We Stay Gluten Free?


balmerhon

Recommended Posts

balmerhon Rookie

My DS has NOT been diagnosed with Celiac or anything else. I am requesting copies of all his lab tests to see exactly what they tested for, but he was seen at Univ of Maryland, who are well-regarded for Celiac treatment, so for now we are trusting that they have tested properly. We see the specialist on July 6, at which point we will have a TON of questions for her.

Meanwhile, I have a little boy who is almost off the chart in weight and BMI but average on height. He has very, very soft poop 2-3x a day. I'm not sure how much control he has and we need to start potty training asap so he can go to preschool. Other that that, he is happy and healthy and full of beans.

Anyway, despite the negative test results, we decided to go gluten free to see how he did. It's been 2 weeks now, and I can honestly say, we've seen no change at all. I'm pretty sure he's not been glutened or that we've given him anything wrong. He has very limited things he'll eat so it was pretty easy to make sure that what he did eat was gluten free.

Do you think it's worth keeping him gluten free or perhaps, should I try some other item to eliminate to see if it helps his diarrhea? Dairy would be my next thought, even though he suffers from no stomach pains that we are aware of.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



swalker Newbie

90 Percent of sensitive people are bothered by the same eight things: gluten, dairy, soy, corn, eggs, peanuts, treenuts, seafood and if you still haven't pinned it down coconut/palm is the next most common

Food colourings and additives like MSG or aspartame are also responsible for a lot of reactions, but those are usually behavoural.

mmmomx2 Rookie

I was advised to go 4 to 6 weeks, and some say two months. I've heard that some people see improvement right away, others take longer. As swalker said, you may want to consider other allergens as well. Between myself and my kids there are allergies intolerences to eggs, walnuts, soy and dairy as well as wheat.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.