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Just Diagnosed - Weight Loss?

LiveLoveLaugh3

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LiveLoveLaugh3 Newbie
LiveLoveLaugh3
Posted

Hi There, I was just diagnosed with Celiac Disease on Friday June 19th. I had a scope on the 18th ( a day after my 18th birthday). They said right away there was no cancer or ulcers but my intestines were scalloped. They said they took biopsies of my duodenum. So the next day at 9:15 am they called and said the biopsies came back positive for celiac disease. I'm extremely upset. The next day I started the "gluten free diet". We have done alot of research about whats okay to eat and what not.. I have heard many different things - like I will lose alot of weight right away.. (i've had trouble losing weight in the past - however i'm not extremely heavy. just a little overweight. 5'1 140lbs.) So will I lose alot of weight right away? like within the next few weeks? I'm completely gluten free. I've also been told that I will feel like a whole new person two-three weeks from now. (my symptoms have been achy joints, extreme stomach burning, heavy periods, depression, fibromyalgia, anemia, tired all the time.... I've had all these symptoms for a few years.) So I guess i'm just curious if I really am going to lose weight and feel better right away. thank you all! :)

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OptimisticMom42 Apprentice
OptimisticMom42
Posted

I'm 42 yrs old, 5'6". My weight went from 163lbs to 150lbs and has stayed there. I haven't been trying to lose weight.

I still feel tired but I think it's because I'm dealing with yeast and other food intolerances (mostly corn). I really didn't want to give up corn but it's gone now. And the aches, pains and constipation went with it.

So the healing and weight loss/gain is different for everyone depending on what other issues have to be dealt with.

Hope this helps

ang1e0251 Contributor
ang1e0251
Posted

Each person is different and their recovery is different too. I know that's not what you want to hear, you'd like a cut and dry answer but that's not the nature of our disease. You will have to wait and see. Some people gain and some lose.

The pain may take awhile to clear up. Just one day I realized it wasn't there any more. For me the stomach issues, swelling and brain fog were the first to clear up. Also I got color in my cheeks I didn't have before!

The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted
Hi There, I was just diagnosed with Celiac Disease on Friday June 19th. I had a scope on the 18th ( a day after my 18th birthday). They said right away there was no cancer or ulcers but my intestines were scalloped. They said they took biopsies of my duodenum. So the next day at 9:15 am they called and said the biopsies came back positive for celiac disease. I'm extremely upset. The next day I started the "gluten free diet". We have done alot of research about whats okay to eat and what not.. I have heard many different things - like I will lose alot of weight right away.. (i've had trouble losing weight in the past - however i'm not extremely heavy. just a little overweight. 5'1 140lbs.) So will I lose alot of weight right away? like within the next few weeks? I'm completely gluten free. I've also been told that I will feel like a whole new person two-three weeks from now. (my symptoms have been achy joints, extreme stomach burning, heavy periods, depression, fibromyalgia, anemia, tired all the time.... I've had all these symptoms for a few years.) So I guess i'm just curious if I really am going to lose weight and feel better right away. thank you all! :)

It isn't a weight-loss diet. Fundamentally, people mainly lose weight when going gluten-free by not eating in restaurants anymore, especially fast food places and buffets. I lost 20 lbs more or less immediately and four inches at the waist over the next year or so. Several chins dropped off and my shirt size is still shrinking. But I am male and was 45 when I went gluten free. Mainly, you'll probably find that you have energy to exercise that you never had before. All I do is, every other day, 20 pushups and 10 minutes on an exercise bike. This started almost immediately after I went gluten free. (I also took up hiking again, though that's in abeyance due to the ridiculous summer weather down here.)

So don't be upset, extremely or otherwise. The gluten-free diet is not nearly as hard as it probably seems now, and gets a lot easier very quickly. You may lose weight and you may not, but you'll certainly feel better and very quickly. Cheer up, don't worry, have fun with it and best of luck. And welcome to the board.

fripp017 Apprentice
fripp017
Posted

Hi. From my experience, you will initially loose some of the wieght when your body starts to heal. It starts absorbing the right foods, you feel better and you can be more active. It only took me about 3 days to start getting up and moving around more. I had sevre abdoinal pain as my main symptom, on top of the extreme tiredness. I spent alot of my sick days in bed. So, by the end of the first week I felt great. I was up, doing chores and getting some moderate excerise in. But, once your body fully heals and you start replacing the "normal" foods with gluten-free foods you tend to absorb alot more fat. Gluten-free foods tend to have more fat in them to replace the flavor in "regular" food. So, if you start feeling better and you want to loose weight, I would suggest eating less of the gluten-fee carbs (especialy the gluten-free bread) and start a regular exercise regimen. I know where you are coming from, but unfortunetly I had much more weight gain than you. I started at 130lbs. I'm 5'2" and I now weigh 155lbs. When I was diagnosed I weighed 165lbs. I have lost some, but it has been a couple of months and I seem to have stopped loosing weight. I take it one day at a time. Just don't over do it, you are still healing. Don't push it, just do what you can and feel good knowing that you are doing your best.

Angels~Exist Newbie
Angels~Exist
Posted

I'm 16 years old and just diagnosed in May. My celiac disease was triggered by abdominal surgery. Before my diagnosis I stayed very close to the same weight but I've already gained 4 pounds since eating gluten-free. My doctor says this is due to my body absorbing nutrients that it went without for so long. My only advise to avoid gaining weight is to take vitamins if you need them and exercise when you feel well enough. The good thing about a gluten-free diet is (even though sometimes it may be tasteless :D) it gives you a ton of energy!!

ang1e0251 Contributor
ang1e0251
Posted

I do not find the gluten-free diet to tasteless in any way. You can spice up your food. I eat well seasoned food at every meal! Maybe you could tell us what you're eating that seems boring and we can offer suggestions on how to spice it up!!

For me, eating too many alternate grains really puts the weight on. They also would sit like a stone in my gut. I went on a low carb diet and avoided most grains and then I could lose. Also I feel even better than before and I thought I was feeling pretty darn good. In the future I will try to figure out which grains like me best but for now, I'm pretty happy this way. I feel good, I've lost some weight and my BP is the best in about 7 years. Can't ask for more than that?

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Angels~Exist Newbie
Angels~Exist
Posted

Most of the gluten-free food I eat tastes better than the gluten filled alternatives. The only thing that I'm still not used to is the gluten-free bread. I think it was tapioca or something like that.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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