Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed - Weight Loss?


LiveLoveLaugh3

Recommended Posts

LiveLoveLaugh3 Newbie

Hi There, I was just diagnosed with Celiac Disease on Friday June 19th. I had a scope on the 18th ( a day after my 18th birthday). They said right away there was no cancer or ulcers but my intestines were scalloped. They said they took biopsies of my duodenum. So the next day at 9:15 am they called and said the biopsies came back positive for celiac disease. I'm extremely upset. The next day I started the "gluten free diet". We have done alot of research about whats okay to eat and what not.. I have heard many different things - like I will lose alot of weight right away.. (i've had trouble losing weight in the past - however i'm not extremely heavy. just a little overweight. 5'1 140lbs.) So will I lose alot of weight right away? like within the next few weeks? I'm completely gluten free. I've also been told that I will feel like a whole new person two-three weeks from now. (my symptoms have been achy joints, extreme stomach burning, heavy periods, depression, fibromyalgia, anemia, tired all the time.... I've had all these symptoms for a few years.) So I guess i'm just curious if I really am going to lose weight and feel better right away. thank you all! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OptimisticMom42 Apprentice

I'm 42 yrs old, 5'6". My weight went from 163lbs to 150lbs and has stayed there. I haven't been trying to lose weight.

I still feel tired but I think it's because I'm dealing with yeast and other food intolerances (mostly corn). I really didn't want to give up corn but it's gone now. And the aches, pains and constipation went with it.

So the healing and weight loss/gain is different for everyone depending on what other issues have to be dealt with.

Hope this helps

ang1e0251 Contributor

Each person is different and their recovery is different too. I know that's not what you want to hear, you'd like a cut and dry answer but that's not the nature of our disease. You will have to wait and see. Some people gain and some lose.

The pain may take awhile to clear up. Just one day I realized it wasn't there any more. For me the stomach issues, swelling and brain fog were the first to clear up. Also I got color in my cheeks I didn't have before!

The Fluffy Assassin Enthusiast
Hi There, I was just diagnosed with Celiac Disease on Friday June 19th. I had a scope on the 18th ( a day after my 18th birthday). They said right away there was no cancer or ulcers but my intestines were scalloped. They said they took biopsies of my duodenum. So the next day at 9:15 am they called and said the biopsies came back positive for celiac disease. I'm extremely upset. The next day I started the "gluten free diet". We have done alot of research about whats okay to eat and what not.. I have heard many different things - like I will lose alot of weight right away.. (i've had trouble losing weight in the past - however i'm not extremely heavy. just a little overweight. 5'1 140lbs.) So will I lose alot of weight right away? like within the next few weeks? I'm completely gluten free. I've also been told that I will feel like a whole new person two-three weeks from now. (my symptoms have been achy joints, extreme stomach burning, heavy periods, depression, fibromyalgia, anemia, tired all the time.... I've had all these symptoms for a few years.) So I guess i'm just curious if I really am going to lose weight and feel better right away. thank you all! :)

It isn't a weight-loss diet. Fundamentally, people mainly lose weight when going gluten-free by not eating in restaurants anymore, especially fast food places and buffets. I lost 20 lbs more or less immediately and four inches at the waist over the next year or so. Several chins dropped off and my shirt size is still shrinking. But I am male and was 45 when I went gluten free. Mainly, you'll probably find that you have energy to exercise that you never had before. All I do is, every other day, 20 pushups and 10 minutes on an exercise bike. This started almost immediately after I went gluten free. (I also took up hiking again, though that's in abeyance due to the ridiculous summer weather down here.)

So don't be upset, extremely or otherwise. The gluten-free diet is not nearly as hard as it probably seems now, and gets a lot easier very quickly. You may lose weight and you may not, but you'll certainly feel better and very quickly. Cheer up, don't worry, have fun with it and best of luck. And welcome to the board.

fripp017 Apprentice

Hi. From my experience, you will initially loose some of the wieght when your body starts to heal. It starts absorbing the right foods, you feel better and you can be more active. It only took me about 3 days to start getting up and moving around more. I had sevre abdoinal pain as my main symptom, on top of the extreme tiredness. I spent alot of my sick days in bed. So, by the end of the first week I felt great. I was up, doing chores and getting some moderate excerise in. But, once your body fully heals and you start replacing the "normal" foods with gluten-free foods you tend to absorb alot more fat. Gluten-free foods tend to have more fat in them to replace the flavor in "regular" food. So, if you start feeling better and you want to loose weight, I would suggest eating less of the gluten-fee carbs (especialy the gluten-free bread) and start a regular exercise regimen. I know where you are coming from, but unfortunetly I had much more weight gain than you. I started at 130lbs. I'm 5'2" and I now weigh 155lbs. When I was diagnosed I weighed 165lbs. I have lost some, but it has been a couple of months and I seem to have stopped loosing weight. I take it one day at a time. Just don't over do it, you are still healing. Don't push it, just do what you can and feel good knowing that you are doing your best.

Angels~Exist Newbie

I'm 16 years old and just diagnosed in May. My celiac disease was triggered by abdominal surgery. Before my diagnosis I stayed very close to the same weight but I've already gained 4 pounds since eating gluten-free. My doctor says this is due to my body absorbing nutrients that it went without for so long. My only advise to avoid gaining weight is to take vitamins if you need them and exercise when you feel well enough. The good thing about a gluten-free diet is (even though sometimes it may be tasteless :D) it gives you a ton of energy!!

ang1e0251 Contributor

I do not find the gluten-free diet to tasteless in any way. You can spice up your food. I eat well seasoned food at every meal! Maybe you could tell us what you're eating that seems boring and we can offer suggestions on how to spice it up!!

For me, eating too many alternate grains really puts the weight on. They also would sit like a stone in my gut. I went on a low carb diet and avoided most grains and then I could lose. Also I feel even better than before and I thought I was feeling pretty darn good. In the future I will try to figure out which grains like me best but for now, I'm pretty happy this way. I feel good, I've lost some weight and my BP is the best in about 7 years. Can't ask for more than that?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Angels~Exist Newbie

Most of the gluten-free food I eat tastes better than the gluten filled alternatives. The only thing that I'm still not used to is the gluten-free bread. I think it was tapioca or something like that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,326
    • Most Online (within 30 mins)
      7,748

    Jaxon Reed
    Newest Member
    Jaxon Reed
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.