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Is Joint Pain Associated With Celiac?

kimy

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kimy Rookie
kimy
Posted

Hello all, I am new here and I possibly think I might have celiac. I am being tested at the doctor tomorrow, but I have a quick question. Is joint pain associated with celiac? The reason I am asking is that I have extreme joint pain, my shoulders, hips and knees. Last night my husband and I went to a movie and I guess because I was sitting in one spot for so long I could hardly walk afterwards. We had to wait until the theater cleared out so he could help me down the stairs and it took me almost 20 minutes to get to the car. Any advice will help.

Thanks,

Kim

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lizard00 Enthusiast
lizard00
Posted
Hello all, I am new here and I possibly think I might have celiac. I am being tested at the doctor tomorrow, but I have a quick question. Is joint pain associated with celiac? The reason I am asking is that I have extreme joint pain, my shoulders, hips and knees. Last night my husband and I went to a movie and I guess because I was sitting in one spot for so long I could hardly walk afterwards. We had to wait until the theater cleared out so he could help me down the stairs and it took me almost 20 minutes to get to the car. Any advice will help.

Thanks,

Kim

Welcome to the forum!! :)

Yes, joint pain is often associated with celiac.

Open Original Shared Link

This is from the National Institute of Health. The list is by no means exhaustive, but might help you with any other symptoms you may be having.

Sirenita Newbie
Sirenita
Posted

Hi Kim,

I'm 32 and get joint pains when I get glutened. My fingers, wrists, ankels and knees are affected as well as my shoulders. It's usually the joints and ligaments that might already be a little inflammed from exercise that are worst affected. It last about 5 days in my case then dies down.

I find fish oil to help SO much forjoint pains. I take 2-3 grams when it's bad like in the above (but always check with your doc before doing this!)

Good luck with your doc!

xx

S

Michi8 Contributor
Michi8
Posted
Hello all, I am new here and I possibly think I might have celiac. I am being tested at the doctor tomorrow, but I have a quick question. Is joint pain associated with celiac? The reason I am asking is that I have extreme joint pain, my shoulders, hips and knees. Last night my husband and I went to a movie and I guess because I was sitting in one spot for so long I could hardly walk afterwards. We had to wait until the theater cleared out so he could help me down the stairs and it took me almost 20 minutes to get to the car. Any advice will help.

Thanks,

Kim

Yes, it can be associated with celiac. It can also be associated with a whole host of other health issues. My joint pain has been attributed to Ehlers Danlos Syndrome (EDS) which is a connective tissue disorder. I am treating it with high doses of Vitamin C, which is supposed to help with connective tissue health.

Michelle

chasbari Apprentice
chasbari
Posted

I was diagnosed with pretty severe rheumatoid arthritis before I was ever diagnosed with celiac. What you describe sounds like the classic gelling up of the joints I experience when in a RA flare. Once diagnosed for celiac and treating the proper way with very strict control of a gluten-free, grains free, soy free diet as outlined in the paleo diet (similar to the SCD diet often discussed here on the board except for no dairy as well) I have found that my RA is also getting much better as a seeming result. I used to experience a gel time of up to two hours or more before I could get past the pathetic little shuffle I was reduced to at times.

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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