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Burping & Breathing


Foxfire62

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Foxfire62 Newbie

I am a recovering celiac, dx in 08-08. My villi went from severely to mildly atrophied/blunted. Right now, I am experiencing problems when drinking. I drink water, and I have been burping a lot and feeling almost like a lump in my throat. When I get this, my blood pressure appears to drop, and I feel tired. I don't understand why that is. I did have back-up/constipation problems, but I'm now having daily BMs.

Has anyone else experienced anything similar?


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tarnalberry Community Regular

have you talked to your doctor about this? i vaguely recall this being something specific - when the blood pressure drop is included. it's not all that uncommon to get a fair amount of burpiness if you happen to swallow a lot of air when you're drinking, but if you're avoiding swallowing air, it's a bit unusual.

GlutenGuy36 Contributor
I am a recovering celiac, dx in 08-08. My villi went from severely to mildly atrophied/blunted. Right now, I am experiencing problems when drinking. I drink water, and I have been burping a lot and feeling almost like a lump in my throat. When I get this, my blood pressure appears to drop, and I feel tired. I don't understand why that is. I did have back-up/constipation problems, but I'm now having daily BMs.

Has anyone else experienced anything similar?

Yes , I have the exact same thing happening to me. I feel like there is a lump in my throat and sometimes it is hard to swallow. I have hypothyroidism and Celiac Disease and a herniated disc in my back plus a ton of symptoms from the Celiac. Some have lessened but I still have alot and I was diagnosed July 14th 2008.

I was always worried that I had something worse. I had tons of Mris, cat scans, seen a hemotologist, endocrinologist etc. I was eating out at mcdonalds for a long time just getting a hmburger without the bun. Probably not a good idea at all. To many cross contamination issues to deal with. I feel like I should be further along in my healing. The lump in my throat thing seems to be far worse after I get glutened though. <Ted>

ang1e0251 Contributor

Guys, pleased have your dr check this. My friend just had surgery last week for a cancerous thyroid. Her main symptom was trouble swallowing pills and food. She pushed her dr and he agreed to a sonogram of her thyroid. That showed enlargement which caused them to take a needle biopsy then to surgery. Just make sure you are not in her shoes. At first her dr didn't want to do anything about it. Get it check thoroughly.

Ariauna Apprentice
Guys, pleased have your dr check this. My friend just had surgery last week for a cancerous thyroid. Her main symptom was trouble swallowing pills and food. She pushed her dr and he agreed to a sonogram of her thyroid. That showed enlargement which caused them to take a needle biopsy then to surgery. Just make sure you are not in her shoes. At first her dr didn't want to do anything about it. Get it check thoroughly.

This is very interesting Ang again you are very informed and a great asset of information. I too have trouble swallowing sometimes and with some foods if they aren't super moist I have problems swallowing them. I have no problem with cereal and saucy stuff but if my chicken isn't really moist I will have problems and then at other times I will just be sitting not eating or anything and will try to swallow and I have to use a lot of effort to get that initial swallow. Weird I think but I really hadn't thought much of it, just figured it was from my GERD... maybe I will have the thyroid check.

GFinDC Veteran

I have trouble swallowing sometimes too. I get the old glass of water going when that happens. For me it seems to happen further down nearer the stomach, not in the throat. I do have a couple thyroid nodules and a cyst. The doc told me there are different kinds of nodules. Some are active and some are not, and some are calcified. He said the calcified ones tend to be come cancerous a little more often than the non-calcified ones. But the rate of developing cancer is low.

This emedicine article says the cancer rate of nodules is fairly low. And that about 50% of adults have them.

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SGWhiskers Collaborator

Your symptoms are consistent with not fully controlled GERD. They may also be from other causes, so talk to your doctor.


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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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