Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itchy Skin Is Driving Me Nuts...


rbeccatexas

Recommended Posts

rbeccatexas Rookie

Hello everyone,

I'm new here. I started having really bad symptoms the weekend after Mother's Day. I've been fatigued for a while and it's been getting worse with nausea most of the time,muscle aches,joint aches, head fog,tingling in hands, shortness of breath and dizziness.

My belly felt distended with a burning sensation to the left of my naval and right under my left rib cage. I also had what I would consider horrible hot flushes. What's really bothering me though is the extremely dry itchy skin. I have had poison ivy a couple of times and if any of you have ever had it, you'll know it feels like your blood is hot and everything is inflamed and your skin itches all over. This feels sortof like that.

I went to the Dr and he did a regular cbc that came back with high lymphocyte counts and white blood cell counts. He thought I had a virus so took the blood test again 3 weeks later. Lymphocytes still high but lower than the first time, white blood cell counts back to normal. But this time he did an IGA for Gliadin antibody which was 23, the normal range is below 17 I think. The IGG was negative. My TSH was .98. Kidney and liver function normal. I did do an echocardiagram to rule out any heart issues since I was having shortness of breath. No other tests have been done for gluten,yeast,dairy or soy.

I've been eating gluten free for about a week now. My energy is better but I've been eating Dannon yogurt in the mornings and read on here this morning that Dannon has been known to have gluten in it. So I stopped eating that. Maybe that's what's causing me to still feel the symptoms?

My question is, is the dry itchy skin a typical symptom of Celiac disease and did yall have it too? What keeps going through my mind is I have some kind of horrible lymphoma. But it really feels like an allergic itching from the inside out. My skin is sensative to the sun and heat right now too. I don't really have a rash but it looks a little red, kind of like when you go out in the sun for a few minutes and come back in, not really sunburnt just a little color.

I've gained so much info from this sight in the last few days. Thanks in advance for your input everyone!

Rebecca


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Rebecca :)

After I went gluten-free, I had itchiness like you described. No rash, just a terrible itch. I went to an allergist, but there was no obvious reason for it. I switched laundry detergent (I use Purex Free and Clear) and fabric softener (Unscented Bounce), and used a mild soap. Dove is good, I've been using Basis Sensitive Skin Bar Soap lately, which I like even better.

Those changes helped a lot--as well as being strictly gluten-free, and cutting out the other foods I was intolerant to. I would start with the topical stuff and concentrate on being gluten-free.

Fage Greek yogurt is gluten-free, and delicious. It comes plain, in a variety of fat contents (I eat the 0%, and it's so thick and rich you'd swear it was full fat). I add fruit, but they also have small cups with fruit or honey to go with it.

Let us know if you need anything else. ;)

OptimisticMom42 Apprentice

Yeast makes me itch! The gluten free yogurt is a good idea.

OptimisticMom42 Apprentice

Dapsone has side effects but it does work to stop the itch. It's prescription.

mushroom Proficient

Most of the things I'm intolerant to make me itch, sometimes with rash, sometimes without. Of course, with psoriasis I've been scratching for five years now :lol: ; itching seems like a normal state :o

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    5. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,345
    • Most Online (within 30 mins)
      7,748

    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.