Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Did I Get Glutened?


hrly169

Recommended Posts

hrly169 Apprentice

I have been gluten free for about 2 years now. I am extremely careful about cross contamination and always check ingredients and check with manufacturers. I also can tell immediately when I have been glutened, my symptoms are always the same and always come in the same order. I always get migraines when I get glutened.

So heres' my question. Yesterday I did two things differently. I had a morning meeting and there was a box of fresh bagels in the room, I hate the smell of baked stuff like that now. The other thing I did differently was I bought a new bottle of Boulder Hot Sauce. I always eat this hot sauce and have never reacted. I wrote them an email and to my understanding as of right now they have not changed their ingredients or processing at all.

Is it possible to have a gluten reaction from breathing around gluten containing foods. This may be a silly question but I am trying to figure out what happened. I did not get near the bagels, I did not touch crumbs, in fact I didn't even touch the table they were on, I washed my hands immediately after the meeting and before I ate.

Any thoughts would be great.

Thanks so much


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Were any papers passed out during the meeting? When I was working in the school system I was constantly being glutened no matter how careful I was. The only possibility I could figure out was that when I was collecting papers after the kids would have their lunch that maybe there was some residue from the gluten they ate on their hands that transferred to the papers. I never knew for sure if that was it and in the end had to stop working at the schools because I was constantly getting CC'd no matter how hard I tried not to.

lovegrov Collaborator

You certainly did not get glutened from breathing the aroma of a baked item. MAYBE if you had been in a room with tons of flour in the air, but not a baked item.

richard

RideAllWays Enthusiast

This happened to me yesterday! I have no idea what got me, but I was throwing up like crazy all night and this morning I have a huge migraine. I didn't do anything differently yesterday and I'm very careful about contamination..

Does anybody else ever experience a reaction and have no idea what it was from?

blancasagro Newbie

I've been just weeks in a gluten free diet, on Fridays at my work they always buy fresh bread and make sandwiches for everybody, and they buy doughnuts. The smell is good, but sometimes I get migraines too and believe me I don't eat a crumb of it. Maybe is a mental reaction, but I understand you

ravenwoodglass Mentor
This happened to me yesterday! I have no idea what got me, but I was throwing up like crazy all night and this morning I have a huge migraine. I didn't do anything differently yesterday and I'm very careful about contamination..

Does anybody else ever experience a reaction and have no idea what it was from?

Gluten reactions can be delayed reactions and that can make it hard to figure out where we were 'got'. You need to look at not only what you ate right before you got sick but also for 2 or 3 days before. Keeping a food journal can help with this process.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,974
    • Most Online (within 30 mins)
      7,748

    LRB
    Newest Member
    LRB
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.