Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Husband Is A Celiac - I Am Not - gluten-free For The Baby?


Celiac's Wifey

Recommended Posts

Celiac's Wifey Explorer

Hi All!

This is my first post.

My husband was diagnosed celiac at age 11 and has followed a gluten-free diet pretty closely for years. He is 31 now, and we are pregnant with our first! Fortunately we had absolutely no problem getting pregnant.

I am not a celiac, nor am I gluten intolerant. I am wondering if I should be following a gluten-free diet as a precaution during this pregnancy. I searched the site a little, and online, but could not find any concrete information. We have our first prenatal appointment next week, so I will ask our OB, but I know the disease is sometimes little understood by those who don't specialize in it...

Any information, thoughts on this, or scientific links would be greatly appreciated.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JustCan Explorer

First, congrats! Unfortunately, I don't think there's really a consensus on this. My situation's a little bit different. I'm the one with celiac disease and we have a 6 month old son. So, I was of course gluten free while I was pregnant and still gluten free while I'm now breastfeeding. I will tell you that my son was recently diagnosed with allergies to nuts and eggs when his only exposure was through my milk so I believe foods including gluten can go through breastmilk. I'm now nut and egg free as well. I have no idea about in the womb though, seems less likely. Plus, there's no guarantee the baby will have celiac even though it's at a higher risk for it. Hopefully somone else has more information.

lovegrov Collaborator

I wouldn't, and I think most celiac experts would agree.

richard

karenhockley Apprentice

Congratulations this is a really exciting time for both you and your husband but unfortunately there is nothing you can do to prevent Celiac in the baby.

I was diagnosed when I was 9 months old and had no problems getting pregnant with my 3 children. The best thing you can do is get the baby tested after he/she is born. The best person to discuss this with would be your family Doctor.

I hope you have a wonderful pregnancy and enjoy every minute of it. It truly is a miracle.

heathen Apprentice

I'm fairly certain you can eat whatever you want. You might actually want to give your new little one gluten early on. There is a theory that if you expose the kids early, you may "prime" the immune system to not freak out on gluten later on.

OptimisticMom42 Apprentice

Are you already gluten light because of your husbands dietary needs? I don't think science has gotten to this issue yet. They only just got to celiacs in the mother increases the risk of autism in the child. So if you're willing and already gluten light, I'd say go for it. It's such a short period of time and I know I would always wonder if it would have made a difference. If he's short or she's a late walker or the first time he throws up...........the first time she gets a rash..........

And having seen the effects gluten has had on my son, I will be encouraging my children to have gene testing done before allowing my grandchildren to eat gluten.

karenhockley Apprentice

I read an article by a Dr Guandalini about celiac not too long ago. Although he doesn't say anything about what to do when your pregnant and one of the parents are celiac he does go on to say that in the mid 1960's there was evidence suggesting that prolonged breastfeeding was protective against celiac. Prolonged meaning at least 2-3 months after gluten is introduced into the baby's diet. And his advice for introducing gluten is not too early and not too much. Feeding gluten to a baby within the first three to four months of life actually favors developing the disease. Delayed introduction seems to postpone it.

With my three kids my doctor recommended that I waited till they were 6 months old to start introducing food.

If you want more information about this doctor or want to read his article (I found it quite interesting, but that's just me!) he is a Pediatric gastroenterologist Stefano Guandalini MD, serves as professor of Pediatrics at the university of chicago and is section chief of pediatric gastroenterology, hepatology and nutrition at the university of chicago medical center.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
dream77 Apprentice

I've been following this thread.

I just discoverd y'day I was about 2 weeks pregnant.. I've been gluten free only 3 weeks and did no expect to get pregnant so fast .

I am very concerned about the health mental and physical because ofall he articles I am reading on celiac and autism, celiac and other things, what the antigliadin antibodies are doing to it.. .. i am actually contemplating terminating the pregnancy because I am so freaked out already..

I am undiagnosed (strangely undiagnosed) with positive antigliadin antibodies

Any perspectives on this ?

Celiac's Wifey Explorer

Hi All,

First of all, thanks for the replies. I really appreciate it.

We did ask our OB, and she indicated a conviction that gluten I ingest will not harm the baby in utero. We were at least a little reassured when she immediately knew what we were talking about, and indicated that she'd cared for other patients with similar circumstances. She did recommended that we test after birth, (which we would have done anyway) and suggested that I go gluten free while / if breast feeding if I'm more comfortable with that, until test results are in.

That said, I have gone 'gluten lighter,' for my own peace of mind, though its a little hard to kick it completely ; ) (And if someone else is pregnant and wants a great recipe for gluten-free banana nut muffins with flax meal for those baby-brain-nourishing omega 3s I will be happy to send it. My husband loves them.)

*Dream 77* I just saw your post, and I want to encourage you to keep your baby. Celiac's is genetically linked but it is NOT directly inheritable. Which means that if you terminate your pregnancy you may have done so for absolutely no reason. Fear & anxiety about things being wrong are really common in pregnant ladies! Our hormones are going nuts, everything is changing.... instead of focusing on the scary possible outcomes, read some of the pregnancy books that discuss pregnancy anxiety. "What to Expect when your Expecting" is really helpful, and I really enjoyed "The Girlfriend's guide to Pregnancy" because it made me laugh aloud. You should also speak to your doctors about your fears and concerns. The other thing is that infertility can be a huge problem for celiacs (see many many other posts on this forum) and if you terminate this pregnancy, you may never have another chance to carry a child. In any pregnancy something *might* go wrong, but after the first trimester, over ninety percent of pregnancies in the United States have healthy outcomes. (As a public school teacher (middle school) who has also worked with students all over the asbergers/ autism spectrum, I can also tell you that TWO of my most capable and favorite students in the last six years were on the spectrum.) I hope you choose to keep your baby.

-CWxx

I've been following this thread.

I just discoverd y'day I was about 2 weeks pregnant.. I've been gluten free only 3 weeks and did no expect to get pregnant so fast .

I am very concerned about the health mental and physical because ofall he articles I am reading on celiac and autism, celiac and other things, what the antigliadin antibodies are doing to it.. .. i am actually contemplating terminating the pregnancy because I am so freaked out already..

I am undiagnosed (strangely undiagnosed) with positive antigliadin antibodies

Any perspectives on this ?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,018
    • Most Online (within 30 mins)
      7,748

    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.