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Toddler With Celiac? And Dairy Protein Allergy?

Mizyellow

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Mizyellow Rookie
Mizyellow
Posted

So here is the backstory- my son is 14 months old and and amazing! He got very very sick when he was 3 months old and spent 3 weeks in the hospital before being diagnosed with a dairy protein allergy. I cut out dairy out of my diet and things got better. He was a bigger kid- always abut 60-80 % in height and weight. Until he hit about 6 months- he just hasn't grown much since then. When he was 6 mos he was 27 in and 19.5 lbs. Today (14 mos) he was 28 1/2 inches and 20.5 lbs. He has been having diahhrea that has undigested food in it, I have noticed the circles under his eyes getting worse. He isn't too grumpy nor is his belly distended. But he dripped from 60% to 5th. The drs are testing him for celiacs and I should get the results on Friday. I am totally worried because he already can't eat anything with dairy in it, so if he can't eat gluten either- what will he eat? Does it sound to you like he has celiac? How old were you when you found out about your babies celiac's disease? Thanks!

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missy'smom Collaborator
missy'smom
Posted

Don't worry about the dairy or dairy and gluten combination. When the time comes, you just take it one step at a time. Many, many of us have to eliminate or restrict both. There are plenty of alternatives for pancakes, cookies, crackers, bread, pasta, cereal, cheese, milk, butter etc. that are both gluten and casein-free. Lots of websites, books and recipes. Many parents have their children on gluten-free casein-free diets for various reasons, not just celiac. Plus we have the world of fruits and vegetables available to us. You have the opportunity to introduce and teach your child to like a variety of veg. from a young age and that will be a great benefit to his health.

OptimisticMom42 Apprentice
OptimisticMom42
Posted

missy'smom is right. Most of the really healthy foods in this world are naturally gluten free. But the fun stuff is also out there in gluten/dairy free form.

If you need more specific information for the "what will he eat" try making a menu and researching this site and others for specific ingredients to meals. It's not hard once you get started.

Sunday

chex

banana

almond milk

Monday

eggs

rice cake

strawberry jam

juice

Tuesday

gluten free hot cereal

diced apple/cinnimon

almond milk

maple syrup

OK this is making me hungry. I'm off to make a Mondays breakfast and finish the laundry. Take care

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    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Fiber Supplement

      By trents · Posted

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
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