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Toddler With Celiac? And Dairy Protein Allergy?

Mizyellow

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Mizyellow Rookie
Mizyellow
Posted

So here is the backstory- my son is 14 months old and and amazing! He got very very sick when he was 3 months old and spent 3 weeks in the hospital before being diagnosed with a dairy protein allergy. I cut out dairy out of my diet and things got better. He was a bigger kid- always abut 60-80 % in height and weight. Until he hit about 6 months- he just hasn't grown much since then. When he was 6 mos he was 27 in and 19.5 lbs. Today (14 mos) he was 28 1/2 inches and 20.5 lbs. He has been having diahhrea that has undigested food in it, I have noticed the circles under his eyes getting worse. He isn't too grumpy nor is his belly distended. But he dripped from 60% to 5th. The drs are testing him for celiacs and I should get the results on Friday. I am totally worried because he already can't eat anything with dairy in it, so if he can't eat gluten either- what will he eat? Does it sound to you like he has celiac? How old were you when you found out about your babies celiac's disease? Thanks!

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missy'smom Collaborator
missy'smom
Posted

Don't worry about the dairy or dairy and gluten combination. When the time comes, you just take it one step at a time. Many, many of us have to eliminate or restrict both. There are plenty of alternatives for pancakes, cookies, crackers, bread, pasta, cereal, cheese, milk, butter etc. that are both gluten and casein-free. Lots of websites, books and recipes. Many parents have their children on gluten-free casein-free diets for various reasons, not just celiac. Plus we have the world of fruits and vegetables available to us. You have the opportunity to introduce and teach your child to like a variety of veg. from a young age and that will be a great benefit to his health.

OptimisticMom42 Apprentice
OptimisticMom42
Posted

missy'smom is right. Most of the really healthy foods in this world are naturally gluten free. But the fun stuff is also out there in gluten/dairy free form.

If you need more specific information for the "what will he eat" try making a menu and researching this site and others for specific ingredients to meals. It's not hard once you get started.

Sunday

chex

banana

almond milk

Monday

eggs

rice cake

strawberry jam

juice

Tuesday

gluten free hot cereal

diced apple/cinnimon

almond milk

maple syrup

OK this is making me hungry. I'm off to make a Mondays breakfast and finish the laundry. Take care

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
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      By trents · Posted

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      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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