Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Tomorrow!

Seamuskitty

Recommended Posts

Seamuskitty Rookie
Seamuskitty
Posted

Hi everyone!

Just an update to say I went to a "good" gastroenterologist today and was scheduled for an endoscopy asap.

This doctor had actually participated in a Celiac Disease research project previously ---he told me a little about it but I don't know the details other than it was about finding some kind of medication that would block gliadin from going through the intestine walls and setting off an autoimmune reaction.

Anyway--I am a little nervous about the endoscopy but because it was scheduled so quickly I don't have time to get really nervous...I just have to got to sleep tonight and get up and go....

I felt such relief at finding this doctor and I know that he will perform the biopsy properly and interpret the results appropriately. I could be so much more nervous right now if I had just gone the the doctor I saw previously who didn't have a clue...

I have been eating gluten & feeling horrible for several weeks. Thursday night I ate a plate of pasta and felt like I was poisoned all day Friday then got a midnight attack of extremely painful cramps and running to the bathroom. It was dreadful....I have kept some gluten in my body every day for weeks and after today--there will be NO MORE and I will begin to feel better permanently.. YAY!

I'll update after the endoscopy!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LeAnne8790 Newbie
LeAnne8790
Posted

Good luck! I saw my "good" GI doc today and he scheduled an endoscopy as well. I was wondering why no blood test, but since I understand the endoscopy is the gold standard, maybe he was just cutting to the chase. I have to wait nearly two weeks though! I really feel so bad that I wish it could be sooner.

I hope you get some good answers from this.

K-Dawg Explorer
K-Dawg
Posted
Hi everyone!

Just an update to say I went to a "good" gastroenterologist today and was scheduled for an endoscopy asap.

...

Anyway--I am a little nervous about the endoscopy but because it was scheduled so quickly I don't have time to get really nervous...I just have to got to sleep tonight and get up and go....

...

I'll update after the endoscopy!

Hey there:

I was nervous about my endoscopy (had it in April) and I just wanted to tell you that it was such a breeze. Like taking a walk in the park, honestly.

Look forward to the update!

Seamuskitty Rookie
Seamuskitty
Posted
  • Author

Thank you for the encouragement!

It wasn't too bad at all! The worst part was the time spent waiting in the room just before the procedure...I was just anxious to get it over with. And my stomach etc was a bit of a mess as it always is in the morning.

It will take a week or two to get the results. The only thing that I found out was that the doctor saw stomach irritation...no details though.

I am very happy to have avoided all gluten today. I know that starting tomorrow I will begin to heal and I will feel better and better as time goes on.

As far as deciding to go ahead with the biopsy--I am glad I did it despite how sick I was for several weeks.

One thing the doctor said is that with the biopsy he can see if cancer has developed. I hadn't considered that as a possibility...and that would certainly be a good thing to know.

I feel fine now--just a bit goofy. I am sure I will be feeling great in them morning!

Julie

  • 3 weeks later...
Seamuskitty Rookie
Seamuskitty
Posted
  • Author

Hi everyone! I finally got my biopsy results back today--by letter. I see the Doctor next week.

The Doctor wrote this:

"As you know I looked in your esophagus and stomach recently. I took biopsies of the small intestine to look for evidence of celiac sprue. The biopsies did show some blunting of the villi; this is consistent with celiac sprue. Based on this, I would recommend that we keep you on a gluten-free diet."

So it is official--after eating a "normal" diet for 48 years, I have discovered that I have Celiac Disease! I feel relieved to know what has been wrong with me my whole life....! But understandably angry that my life could have been different if I had known a little sooner... :rolleyes:

Its about freaking time, right? :P

I have been eating gluten-free since the biopsy and do feel better but have still had pain and digestive problems. I figure I did some damage during the "gluten challenge" phase and it will take a while to heal..Even though it was very difficult to eat gluten for several weeks, I am glad that I did the biopsy because there is no doubt about this any more.

Soooo. Hi, my name is Julie and I am a Celiac. :D

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi everyone! I finally got my biopsy results back today--by letter. I see the Doctor next week.

The Doctor wrote this:

So it is official--after eating a "normal" diet for 48 years, I have discovered that I have Celiac Disease! I feel relieved to know what has been wrong with me my whole life....! But understandably angry that my life could have been different if I had known a little sooner... :rolleyes:

Its about freaking time, right? :P

I have been eating gluten-free since the biopsy and do feel better but have still had pain and digestive problems. I figure I did some damage during the "gluten challenge" phase and it will take a while to heal..Even though it was very difficult to eat gluten for several weeks, I am glad that I did the biopsy because there is no doubt about this any more.

Soooo. Hi, my name is Julie and I am a Celiac. :D

Welcome to the family. :) I am glad things are conclusive for you and many here, including myself, fully understand your anger. I hope you heal quickly.

Seamuskitty Rookie
Seamuskitty
Posted
  • Author
Welcome to the family. :) I am glad things are conclusive for you and many here, including myself, fully understand your anger. I hope you heal quickly.

Thanks ravenwoodglass. I appreciate the welcome and the understanding. I truely thing that the only thing I have been feeling for so long is SICK. I don't think I've had any true emotions for a very long time.

Tonight I actually feel grief about something I should have reacted to months ago. I have a funny feeling that as I heal physically, many of the normal experiences of human life are going to come back to me...both good and bad. :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.