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bikingaway

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bikingaway Newbie
bikingaway
Posted

Ok, so I have been going back and forth on the gluten thing for awhile. I had started gluten-free for like three days about two months but had a bad reaction with broccoli and then realized the whole testing thing might be altered. Well, since then I have been struggling to get appointments set up and correlated with my schedule. I'm incredibly busy- in med school of all things, so time is essential. Based on that, I can't see the GI guy that my PCP is referring me to until the second to last week in August. I have no idea what his ideas will be or if he'll even start on the gluten-free route.

My question is, is it worth trying to go gluten-free in this time period, or should I just wait this out? I basically worry about the adjustment period and altering my diet to fit with being on my rotations (I start the hardest one at the end of august, which is least time forgiving). What do you guys think, will I mess myself up for any tests by going gluten-free?

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Lisa Mentor
Lisa
Posted
will I mess myself up for any tests by going gluten-free?

Yes is the answer to that question. Keep on a full gluten diet until you have exhausted all testing for the optimum accuracy.

no-more-muffins Apprentice
no-more-muffins
Posted

You MAY mess yourself up for the testing if you go gluten free but if you feel better eating no gluten then what is the point of testing anyway? To me, feeling better on the diet is as good or better (and cheaper) than any testing. Also, there are a lot of people who have used enterolab.com to help them diagnose gluten sensitivity. It won't tell you if you have celiac per se, but it can tell you if you are intolerant to gluten. It is something worth reading about. I wouldn't wait 6 weeks to get into the dr. I"d just either try the diet or do the enterolab testing. Probably both. That is JMO though. Some people disagree with me. I think that continuing to eat gluten when you think it is making you sick soley for the purpose of testing to find out whether you should eat gluten just doesn't make sense.

Personally? I think that testing for celiac is overrated. The tests can come back negative even if you have a gluten sensitivity and they are invasive and expensive. If you do get tested and you do have the actual diagnosis, you can say you are celiac and you will know for sure, but many people know for sure that they are intolerant to gluten without being tested, or despite negative test results.

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

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