Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Worth It?


bikingaway

Recommended Posts

bikingaway Newbie

Ok, so I have been going back and forth on the gluten thing for awhile. I had started gluten-free for like three days about two months but had a bad reaction with broccoli and then realized the whole testing thing might be altered. Well, since then I have been struggling to get appointments set up and correlated with my schedule. I'm incredibly busy- in med school of all things, so time is essential. Based on that, I can't see the GI guy that my PCP is referring me to until the second to last week in August. I have no idea what his ideas will be or if he'll even start on the gluten-free route.

My question is, is it worth trying to go gluten-free in this time period, or should I just wait this out? I basically worry about the adjustment period and altering my diet to fit with being on my rotations (I start the hardest one at the end of august, which is least time forgiving). What do you guys think, will I mess myself up for any tests by going gluten-free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
will I mess myself up for any tests by going gluten-free?

Yes is the answer to that question. Keep on a full gluten diet until you have exhausted all testing for the optimum accuracy.

no-more-muffins Apprentice

You MAY mess yourself up for the testing if you go gluten free but if you feel better eating no gluten then what is the point of testing anyway? To me, feeling better on the diet is as good or better (and cheaper) than any testing. Also, there are a lot of people who have used enterolab.com to help them diagnose gluten sensitivity. It won't tell you if you have celiac per se, but it can tell you if you are intolerant to gluten. It is something worth reading about. I wouldn't wait 6 weeks to get into the dr. I"d just either try the diet or do the enterolab testing. Probably both. That is JMO though. Some people disagree with me. I think that continuing to eat gluten when you think it is making you sick soley for the purpose of testing to find out whether you should eat gluten just doesn't make sense.

Personally? I think that testing for celiac is overrated. The tests can come back negative even if you have a gluten sensitivity and they are invasive and expensive. If you do get tested and you do have the actual diagnosis, you can say you are celiac and you will know for sure, but many people know for sure that they are intolerant to gluten without being tested, or despite negative test results.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,782
    • Most Online (within 30 mins)
      7,748

    BH1951
    Newest Member
    BH1951
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ok thank you.  Me either 
    • Colleen H
      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.