Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Portland, Oregon


pellegrino

Recommended Posts

pellegrino Apprentice

I'm fairly new to the Portland area. I actually grew up in the suburbs and am now living in Wilsonville. I was diagnosed with celiac two years ago while living in Chicago. I saw some great doctors at Northwestern's Center for Integrative Medicine and the University of Chicago's Celiac Disease Center within the first few months I was diagnosed (had the blood test, endoscopy, a bone density scan, CT scan, food intolerance testing, etc.), but haven't been checked since. I have health insurance once again (through Aetna now) and am looking for docs in the area.

I've found a lot of great information through these forums and looked through some previous posts on the topic, but wanted to start an updated one. As far as gastroenterologists go, Dr. Alan Kaynard at The Oregon Clinic seems to come up a lot, maybe he's the best? Not sure if he's accepting new patients though, I'd have to call. I don't mind a drive to see a good gastroenterologist, but I'd like to find an internist who is familiar with celiac closer to Wilsonville, as this is the doctor I'd like to see when I'm sick, when I probably won't feel like driving 30-40 minutes downtown. I loved the folks at the Center for Integrative Medicine in Chicago, and when I saw most of the doctors and nurse practitioners there (excluding the naturopaths) the visits were covered by the insurance I had at the time. I'm wondering if there's a similar place here.

I saw mention of a Dr. Ben Pataroque in Tualatin as an internist. I would definitely love an internist who also has a naturopathic focus (like the folks I saw at the Center for Integrative Medicine), who would also be covered by my insurance. I've seen mention of Dr. Char Glenn at Nob Hill Internal Medicine Clinic, though I think that may be a bit too far for me. I checked her website out too, it doesn't look very professional, though that doesn't mean she isn't.

I've also seen mention of naturopath Noel Peterson at the Center for Traditional Medicine in Lake Oswego, who also sounds pretty great. But my insurance doesn't cover much in the way of naturopathic doctors, so I don't think I'll try to find one, because I just can't afford it. I'd also like to be tested for food allergies (and intolerances again). This was last done by the naturopath I saw in Chicago, but I'd love it if I could find an internist here who could order these tests, so my insurance would cover the visits and tests.

Any other recommendations? Which doctors are you currently seeing? Do you like them? Who have you seen that you haven't liked, and why? Thanks in advance for any help!

  • 1 year later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KazooMama Newbie

Hello,

I am trying to find a celiac disease knowledgeable general doctor at Northwestern Memorial in Chicago. My daughter is a student in Chicago, that is celiac disease and now Dairy free as well. She needs a good internist that can keep up with her changes. Her Gastro doctor seems to only do biopsies and hospital procedures, not much in the followup. She has to use public transportation, which makes Univ. of Chicago Celiac Center a poor option.

Any help?

celiac-mommy Collaborator

I've seen mention of Dr. Char Glenn at Nob Hill Internal Medicine Clinic, though I think that may be a bit too far for me. I checked her website out too, it doesn't look very professional, though that doesn't mean she isn't.

I see Dr. Glenn. I adore her. She spends a lot of time with her patients, is very supportive and caring. I agree, the website isn't great-I don't think they keep up with it. I would say, if you are able to get an appointment with her, give her a try. She is very difficult to see though, and last I heard, she wasn't taking new patients. Also, if you're an 'in and out' kind of patient, she's not for you, and she'll tell you that on your first visit. She spends so much time with her patients that if you have an afternoon appt, you'll most likely have to wait, she's routinely late, but worth every minute. I've seen her partner once when she was out of town and I really liked him as well. The office is really easy to get to. I-5n to I-405n. At Good Samaritan hospital in the Alphabet district. Fun to plan your appointment around some shopping on 23rd ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    3. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,368
    • Most Online (within 30 mins)
      7,748

    GStrutton
    Newest Member
    GStrutton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.