Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frequent Urination


shendler

Recommended Posts

shendler Rookie

I'm not sure if this is related to celiac or not. I have been gluten free for about 4 months now but I am still very thirsty causing me to pee a lot. I may pee in the night alone 3-4 times. I've had my blood sugar tested and that was normal. I do not have any problems with my thyroid.

I've been to my doctor numerous times and it was of no help. What could this be and what should I get checked out?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
I'm not sure if this is related to celiac or not. I have been gluten free for about 4 months now but I am still very thirsty causing me to pee a lot. I may pee in the night alone 3-4 times. I've had my blood sugar tested and that was normal. I do not have any problems with my thyroid.

I've been to my doctor numerous times and it was of no help. What could this be and what should I get checked out?

I have long forgotten my source for this, but it's my understanding that you absorb 75% of the fluid intake in your small intestines. If you have villi damage, it's a reasonable cause for extra ordinary thirst. I experienced this in the early stages after my diagnosis.

Listen to you body. But maybe you can concentrate your fluids earlier in the day, so you can sleep at night.

shendler Rookie

I could just drink in the morning but still have to pee that often. Other times I just wake up in the middle of the night with a mouth so dry it's sticky.

Gfresh404 Enthusiast

This might sound like a stupid question, but do you just constantly have the urge to urinate or is your bladder just physically full (or both)?

Natasha H. Newbie
I could just drink in the morning but still have to pee that often. Other times I just wake up in the middle of the night with a mouth so dry it's sticky.

Yes, I too have to urinate 1-2 times a night and have extraordinary thirst. I have also lost some control over my urinating, though this seems to be better when I take my sublingual b12's.

JillianLindsay Enthusiast

When you've gotten other bloodwork done, have they tested your sugar? Diabetes has a high co-relation with Celiac disease. I'm not a DR so don't let my suggestion worry you, but it's always worth discussing ongoing symtoms with your DR to see if there are other things s/he has missed. My internist said many DRs will just attribute everything to the Celiacs once someone has been diagnosed and as a result sometimes miss other underlying issues (thyroid, blood sugar, etc). Extreme thirst, dry mouth, and frequent urination can be symtpoms of blood sugar problems. Good luck!

I could just drink in the morning but still have to pee that often. Other times I just wake up in the middle of the night with a mouth so dry it's sticky.
shendler Rookie
This might sound like a stupid question, but do you just constantly have the urge to urinate or is your bladder just physically full (or both)?

My bladder is full when I have to go. What's weird to me is that I'll have days when I'll hardly drink but still be peeing no stop.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lmvrbaby Newbie

Hi, everyone, I hear you. I have been diagnosed with celiac since March of 2006. For about the past year I have had the problem with having to go to the bathroom several times a day and during the night. After being diagnosed, I went off the milk and gluten and felt better after about 6 months. I felt better, but the past year I noticed more about going to the bathroom more and have to way one of those pads due to leakage. I asked my doctor and he said keep doing kegel exercises and it will help. Now I am tryin to see another doctor to get a second opinion. Any ideas, hope you can share. Thanks, if I come across something from the new doctor I will share.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Reverse Osmosis (RO) Water

    2. - Scott Adams replied to JoJo0611's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Yeast extract

    3. - Scott Adams replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    4. - Scott Adams replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Water filters are a potential problem for Celiac Disease

    5. - YoshiLuckyJackpotWinner888 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Reverse Osmosis (RO) Water

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,570
    • Most Online (within 30 mins)
      7,748

    Chanty
    Newest Member
    Chanty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
    • Scott Adams
      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2 or HLA-DQ8). While some laboratory studies have shown that certain Candida proteins (like Hwp1) share limited sequence similarities with gluten or tissue transglutaminase (tTG), that does not mean Candida causes celiac disease or commonly produces false-positive tTG tests in clinical practice. Anti-tTG IgA remains a highly specific and validated marker for celiac when used appropriately (especially alongside total IgA testing and, when indicated, biopsy). IgG antibodies to Saccharomyces cerevisiae (ASCA) are more commonly associated with Crohn’s disease and are not considered diagnostic for celiac. There is ongoing research into microbiome interactions and immune cross-reactivity, but at this time there is no evidence that yeast exposure from foods triggers celiac autoimmunity in people without gluten exposure. If symptoms persist despite a strict gluten-free diet, it’s best to work with a gastroenterologist to rule out other conditions such as IBD, SIBO, non-celiac food intolerances, or refractory celiac disease rather than assuming a fungal-driven mechanism.
    • Scott Adams
      It sounds like you’ve put a lot of effort into tracking patterns, and that kind of awareness can be helpful. With celiac disease specifically, though, the only confirmed immune trigger is gluten. Reactions to dairy are common after diagnosis because intestinal damage can temporarily reduce lactase, leading to lactose intolerance — but that’s different from casein sensitivity. IgG food panels, including yeast, are generally considered markers of exposure rather than proof of clinical intolerance. Aged cheeses like Irish cheddar are typically gluten-free, though they do contain casein and natural cultures. If symptoms are strong and repeatable, it may be worth working with a gastroenterologist or allergist to sort out true allergies, intolerances, or other GI conditions rather than assuming multiple cross-reactive immune triggers.
    • Scott Adams
      I completely understand wanting to track down every possible source of exposure after a celiac diagnosis, especially when symptoms are distinct and repeatable. That said, there’s currently no credible evidence that bottled water — including filtered water products like Gatorade water — contains gluten from filter materials. Activated carbon filters are typically bound with food-grade binders, and if any starch were used in manufacturing, it would not remain in the finished water at measurable or biologically active levels. Plain water itself does not contain protein, and gluten is a protein. Major beverage companies also have strict allergen control programs, and gluten would need to be declared if intentionally added. If symptoms are occurring consistently after certain products, it may be worth discussing with a physician to explore other potential triggers, but at this time distilled water is not considered medically necessary for people with celiac disease.
    • YoshiLuckyJackpotWinner888
      I found out the hard way that water filters can have starch binders that bind the charcoal used in the filter.  Grain starch or gluten can be present in the filter. I’ve been exposed and had reactions.  Steam distilled water is safe.  Not all places have the distilled gallon containers commonly sold, but smart water is steam distilled and has been safe so far.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.