Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Knee Pain


JillianLindsay

Recommended Posts

JillianLindsay Enthusiast

Hi everyone,

I was very recently diagnosed (gluten-free for a week now!). For the past 6 weeks I've been experiencing severe knee pain. At first our team athletic therapist thought it was tendonitis from over-use after a tournament. I rested it and have been icing it twice a day, but last night it was so bad I had to ask to be taken out of my soccer match. I play for a first division, highly competitive team and love it like crazy. I talked to my DR and he wants to see if after some time on the diet the knee pain dissipates, but I'm in a tourney this weekend and I want to play! My AT said to try heat now because the ice wasn't working... Does anyone have any advice for things I can do to reduce the pain and prevent further injuring my knees?

I know that arthritis and joint pain are assocated with celiac disease, but it was such a sudden onset I was sure it was tedonitis from playing 5 games in one weekend at a tourney. The pain is mostly at the bottom (front) of my kneecaps and somewhat on the inside of my knee. I've gotten new orthotics, taken advil before the games, and followed all my AT's advice, but it seems to be getting worse instead of better. I hope someone has some ideas as to what I can do! I love soccer and it is very frustrating not to be able to play.

Thanks,

Jillian


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would suggest going to an orthopaedist.

There are a number of things it could be (as always), and you need someone who knows the options. You might find that a chiropractor can help as well, or a PT (if you're in a state that doesn't require a referral to go to a PT).

zkat Apprentice

I am a fellow soccer player with Celiac! I have been gluten free for over 2 years, but when I do get glutened - all my inflamation responses flare - shin splints, IT Band (Has you AT checked your IT - mine will kill me from over use after a tourney), you name it it flares. It does subside with time, ice and Arnica Gel. It is also possible you truly hurt it in the tourney, hard to say over the internet.

If your AT is comfortable that it is not a tear, then you may just need time. Arnica Gel is my magic gel. I sprained my foot a month ago in a game and it is the only thing that keeps me walking and on the field.

The most interesting thing for me about going gluten-free and soccer is my coordination and skills improved soooo much gluten-free. I can always tell when I have been gluten b/c my ball control is way off.

Good luck!

Kat.

JillianLindsay Enthusiast

Thanks Kat,

I think my AT and DR aren't sure what it is lol but we're sure it's not a tear. We're just not sure if it's simply due to the gluten, overuse, or arthritis... or a combination of any of them. They want to wait to see if the diet helps reduce or eliminate the pain. I've been using heat because the ice didn't work and I'll look into Arnica or some kind of pain-relieving rub to take with me to the tourney. I'm now 10-days gluten free and can't wait to see what life will be like without the gluten-related symptoms! :)

I sure hope I can play throughout the tourney this weekend... *fingers crossed*!

Thanks,

Jillian

I am a fellow soccer player with Celiac! I have been gluten free for over 2 years, but when I do get glutened - all my inflamation responses flare - shin splints, IT Band (Has you AT checked your IT - mine will kill me from over use after a tourney), you name it it flares. It does subside with time, ice and Arnica Gel. It is also possible you truly hurt it in the tourney, hard to say over the internet.

If your AT is comfortable that it is not a tear, then you may just need time. Arnica Gel is my magic gel. I sprained my foot a month ago in a game and it is the only thing that keeps me walking and on the field.

The most interesting thing for me about going gluten-free and soccer is my coordination and skills improved soooo much gluten-free. I can always tell when I have been gluten b/c my ball control is way off.

Good luck!

Kat.

JillianLindsay Enthusiast

I made it through the tourney!! :) I even played well, scored a goal and had minimal pain. Heat throughout the week really helped. My AT thinks that means it is more likely arthritis, but I hope not. GP sent me for an X-ray to investigate further and recommended physio.... we shall see!

  • 3 weeks later...
SLB5757 Enthusiast

Hello Lindsay,

I don't know how much hello this is to you now that you are post tourney - but my daughter who is 10 plays soccer and has been having knee issues as well. Most recently she dropped mid field almost as though her leg had given out on her - she hadn't been hit by a ball or anything. She reported having a random sharp pain and then just dropped and it hurt anytime she walked/put pressure on it. The injury was by the kneecap, and on the outer side if I remember correctly. It has been a few months, but the doctors had diagnosed it as a right lateral patellar subluxation (sp). When she saw the PT people for therapy, they said she still had great strength and range of movement so she wasn't too bad off, but they also stated that this is a very common injury for women who play soccer particularly. The PT said that it was in part due to the way a woman's/girls frame is set up. They typically have wider hips that go down to what almost looks liek a v shape by the time you hit the ankles. Well my daughter is a little more "hippy" and developed, and her legs go down to a v at the knees, but also start to go out a little after the knees to account for the hips and to stabilize the hips more for structuure. There is a precise measurement they use like it is a certain "angle" I think, but again I am not a PT person and those are my laymens terms for what they said. lol.

After the appointment, they fitted her for a very high quality knee brace that was aver 100.00 (insurance covered). It was much better than the braces you could find at the athletics stores or drugstore. It had patella support and straps that reinforced the kneecap. This brace helped her pain tremendously. She will still occasionally have pain - so I know it's not completely going to go away - but I do not allow her to play w/out the brace - and it gets her through her games without pain.

Good luck ;)

JillianLindsay Enthusiast

Thanks everyone! I'm now attending Physiotherapy. X-rays were negative for arthritis *whew*, the PT thinks it's tendonitis. I now have it in both my knees and both my achilles tendons lol. It's pretty painful, but hopefully the physio will help. Only 2 weeks left in our soccer season so after that I'll do lots of strength training and rest the sore areas until hockey season starts!

I am also wondering about glucosamine... Does anyone know if its use for joint health is it well-supported in scientific literature? And do people generally experience any side-effects from it (i.e. drowsiness, so take it at night)? I am considering giving it a try and if people could share more about their experience it would be much appreciated. :)

Thanks,

Jillian


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I had to quit skiing for awhile because of knee pain. Then I got some knee braces and they made all the difference. After gluten free now, I don't have knee pain anymore. Maybe braces can get you through the inbetween period.

JillianLindsay Enthusiast

After a couple of physio appointments, my knee & achilles pain seem to be tendonitis from over-use rather than related to gluten. My PT wants me to rest for 6 weeks but I only have 4 games left in my season, so I'll rest after that :)

I had to quit skiing for awhile because of knee pain. Then I got some knee braces and they made all the difference. After gluten free now, I don't have knee pain anymore. Maybe braces can get you through the inbetween period.
spent Newbie
After a couple of physio appointments, my knee & achilles pain seem to be tendonitis from over-use rather than related to gluten. My PT wants me to rest for 6 weeks but I only have 4 games left in my season, so I'll rest after that :)

JillianLindsay

I am not sure exactly what the connection between Celiac's and tendonitis is, but I was given the same "over use" shbeel too, but I really think that this disease just limits the body's ability to recover. I am a 20 year old male and I regularly have to take days off between playing soccer and basketball. Basketball is off couse rougher on the knees because both the harder suface and the fact that much more jumping is involved. I am sure that resting an extended period of time would definitely calm down your inflammation but keep in mind that the pain will still reoccur, that is unless that can be fixed with going gluten free. I just got diagnosed with Celiac's two weeks ago and I am hopefull that my pain will subside. For now though, I push through the pain while being mindful that my knees probably have a threshold until something goes.

Like I said, I have been "gluten free" for two weeks and am hopeful that I will see positive results concerning my knees. I will let you know if they began feeling better anytime soon and I will look forward to hearing updates from you as well!!

Shane

JillianLindsay Enthusiast

Hi Shane,

Have you gone to physio? I got stretches, massage, strengthening exercises, ultrasound and even acupuncture! I was skeptical about the acupuncture, but the combination of all the above therapies have really helped. I still have pain, but it's not as severe. During the off season between soccer and hockey I'll be working hard to strengthen the muscles around my knees (and achilles) to help prevent further injury.

Good luck to us all :)

Jillian

JillianLindsay

I am not sure exactly what the connection between Celiac's and tendonitis is, but I was given the same "over use" shbeel too, but I really think that this disease just limits the body's ability to recover. I am a 20 year old male and I regularly have to take days off between playing soccer and basketball. Basketball is off couse rougher on the knees because both the harder suface and the fact that much more jumping is involved. I am sure that resting an extended period of time would definitely calm down your inflammation but keep in mind that the pain will still reoccur, that is unless that can be fixed with going gluten free. I just got diagnosed with Celiac's two weeks ago and I am hopefull that my pain will subside. For now though, I push through the pain while being mindful that my knees probably have a threshold until something goes.

Like I said, I have been "gluten free" for two weeks and am hopeful that I will see positive results concerning my knees. I will let you know if they began feeling better anytime soon and I will look forward to hearing updates from you as well!!

Shane

  • 2 months later...
Nadia2009 Enthusiast
Hi everyone,

I was very recently diagnosed (gluten-free for a week now!). For the past 6 weeks I've been experiencing severe knee pain. At first our team athletic therapist thought it was tendonitis from over-use after a tournament. I rested it and have been icing it twice a day, but last night it was so bad I had to ask to be taken out of my soccer match. I play for a first division, highly competitive team and love it like crazy. I talked to my DR and he wants to see if after some time on the diet the knee pain dissipates, but I'm in a tourney this weekend and I want to play! My AT said to try heat now because the ice wasn't working... Does anyone have any advice for things I can do to reduce the pain and prevent further injuring my knees?

I know that arthritis and joint pain are assocated with celiac disease, but it was such a sudden onset I was sure it was tedonitis from playing 5 games in one weekend at a tourney. The pain is mostly at the bottom (front) of my kneecaps and somewhat on the inside of my knee. I've gotten new orthotics, taken advil before the games, and followed all my AT's advice, but it seems to be getting worse instead of better. I hope someone has some ideas as to what I can do! I love soccer and it is very frustrating not to be able to play.

Thanks,

Jillian

If it wasn't already suggested, I advise you to read this book "The Egoscue Method of Health through Motion". It is a very safe and do it yourself therapy without manipulation and medecine.

Open Original Shared Link

If you lived in the States, it would be easier to find a chiropractor who uses this therapy but Canadians are not fond of Egoscue and I really dont know why. Egoscue clinics can be find in England, Germany and Australia but not in Canada :o

There is an E-cise to stop pain in any area of your body.

Hope this helps.

  • 1 month later...
Doublevision Newbie

Hi guys,

Ive found it quite interesting Reading this thread. I'm surprised only a few people have mentioned strength exercises to help

with knee pain. I own a successful strength studio in the uk and we have become specialists in knee rehabilitation. It's funny as it's so easy to rehab/prehab the majority of peoples knees as most people are weak in the same place (vmo/hamstrings). Some really simple exercises rep/tempo/set schemes can be used and the results are awesome. I'm also on this thread as were having to deal with more and more gluten intollerant athletes and general public, so are fast having to become experts in gluten.

Please email us through our site if you would like any more info. (doublevisionpt.com)

Regards

Mark

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Son's legs shaking

    2. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    3. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.