Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice Please...


boriquaabe718

Recommended Posts

boriquaabe718 Rookie

I was told by an md that my srue count was a little high and I should try staying away from wheat gluten i also tested pos for H.Pylori...(you can read my other posts for more details) It's been almost 4 months gluten free with a couple of mistakes... not much has gotten better my eczema got worse my energy levels went way down my bloating went away and the acne on my back cleared up.... Last night I drank a beer and my Gfriend was making pasta salad she asked me to see if it was done and I tried one piece before I snapped... anyway should I have been affected by this if I had a real problem with gluten? or could alot of my symptoms be related to H.Pylori/low stomach acid which I know I have... P.s I followed the diet carefully I bought new cookware and ate only protein and veggies and fruit...Thx Abe


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Does your dr consider your H. Pylori healed?

boriquaabe718 Rookie
Does your dr consider your H. Pylori healed?

well... I was prescribed the triple therapy of antibiotics and pepto...it was awful and I did some research and found out that it doesn't fix the problem... I read info on low stomach acid being the real culprit for h.pylori. So I stopped the treatment(I hate antibiotics BTW). I started taking some Betaine HCL and I started having normal burps not gargles and my BM went from light brown or Tannish beige to Dark brown....I don't have health insurance nor much money for doctors...thanks for any info you have.

shendler Rookie

I was also diagnosed with h pylori. I took the antibiotics for them and was afterwood tested and was free of the bacteria. H pylori can cause other complications (gastritis, ulcers, stomach cancers) so as much as you do not like antibiotics (I dont' think anybody likes them) it's not a good idea to stop taking antibiotics.

boriquaabe718 Rookie
I was also diagnosed with h pylori. I took the antibiotics for them and was afterwood tested and was free of the bacteria. H pylori can cause other complications (gastritis, ulcers, stomach cancers) so as much as you do not like antibiotics (I dont' think anybody likes them) it's not a good idea to stop taking antibiotics.

well...your never "free" of H.pylori it lives in the intestines and from what I've read digestive acids are what keep H.pylori. I've read many testimonials from people who did the antibiotic treatment and proliferation of the bacteria returned and they were instructed to take antibiotics again. I don't think in my humble opinion it is wise to take antibiotics so frequently if at all. Sure the use of antibiotics will result in a negative H.pylori test because the antibiotics will go in and wipe out every trace of bacteria good or bad. I have also read that the test for H.pylori isn't even really that accurate. Anyway, what were your symptoms of H.pylori. I just want to know if my symptoms could just be the proliferation of H.pylori and not an intolerance to gluten. I'll worry about how to take care of the H.pylori. I'm just not taking antibiotics period. I had 5 eye surgeries this past year and they pumped full of enough antibiotics... thanks for the help

lizard00 Enthusiast

My friend has recurring h pylori issues... so I understand your frustration with the antibiotic treatment. I think she's been on abx a couple of time, and it keeps flaring back up. I think she finally is looking into some alternate treatments, and changing some of the things that she is eating.

Anyway, to your question: Did you get a copy of the blood work and the tests that were performed? It is very possible to have celiac and not be symptomatic. The testing for celiac does not often yield false positives, if ever, so, I would think if the results were high and indicative of celiac, you probably have it. Have you thought about any other food issues that might be causing you to continue feeling not so great?

boriquaabe718 Rookie
My friend has recurring h pylori issues... so I understand your frustration with the antibiotic treatment. I think she's been on abx a couple of time, and it keeps flaring back up. I think she finally is looking into some alternate treatments, and changing some of the things that she is eating.

Anyway, to your question: Did you get a copy of the blood work and the tests that were performed? It is very possible to have celiac and not be symptomatic. The testing for celiac does not often yield false positives, if ever, so, I would think if the results were high and indicative of celiac, you probably have it. Have you thought about any other food issues that might be causing you to continue feeling not so great?

I haven't gotten the test results yet, but plan to. He just said it was"kind of high" he mentioned some numbers but said it was not above the range where this great concern??? just a little high...whatever that means... It seems right now after I eat anything my energy is just zapped... it doesn't matter what I eat... it's been about 4 months since I cut the gluten out with a couple of mistakes along the way. It's as if my metabolism or digestion is really sluggish.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.