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Frustrated


LisaaaNoel

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LisaaaNoel Explorer

About a year ago, I was diagnosed with IBS. (Never tested for celiac.) Nothing has helped my IBS. I have tried dietary differences, medicine, and I am not under stress. I have began to play with the idea that I could have celiac. (As you know, the symptoms of IBS AND celiac disease are so similar!)

I don't have insurance and it's the most frustrating things. I do not have the means to get tested. So I thought I'd begin a gluten free diet and see what happens. I have been on it for 10 days and have seen NO difference. I don't think I'm getting accidental gluten into my body. I know many people take a while to start feeling better, but I'm just frustrated because there's no other way of me knowing if I have this because I can't get tested. I'm frustrated that all my dietary changes could end up being for nothing. :( I know having celiac disease is not a good thing, but at least if I figured out what causes me pain every single day, at least I could work to make myself feel better (even without meds!)

How about enterolab? I have heard about this. Is it legit? What would it test for exactly? There are many test options, which one is the cheapest one I could take that would still help me figure this out?

I just want to feel better. :(


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StrongLikeBull Newbie

Maybe start with the $99 dollar gluten sensitivity test at enterolab, and depending on the results, decide if you want to do more testing. I believe it checks your stool for gluten anti-bodies. I don't have very much money, nor is my insurance that great, but I opted for the the complete panel ($369) and I believe it was well worth the money.

Believe me, I know getting tested for stuff is costly, especially without insurance. Good luck.

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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