Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated


LisaaaNoel

Recommended Posts

LisaaaNoel Explorer

About a year ago, I was diagnosed with IBS. (Never tested for celiac.) Nothing has helped my IBS. I have tried dietary differences, medicine, and I am not under stress. I have began to play with the idea that I could have celiac. (As you know, the symptoms of IBS AND celiac disease are so similar!)

I don't have insurance and it's the most frustrating things. I do not have the means to get tested. So I thought I'd begin a gluten free diet and see what happens. I have been on it for 10 days and have seen NO difference. I don't think I'm getting accidental gluten into my body. I know many people take a while to start feeling better, but I'm just frustrated because there's no other way of me knowing if I have this because I can't get tested. I'm frustrated that all my dietary changes could end up being for nothing. :( I know having celiac disease is not a good thing, but at least if I figured out what causes me pain every single day, at least I could work to make myself feel better (even without meds!)

How about enterolab? I have heard about this. Is it legit? What would it test for exactly? There are many test options, which one is the cheapest one I could take that would still help me figure this out?

I just want to feel better. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StrongLikeBull Newbie

Maybe start with the $99 dollar gluten sensitivity test at enterolab, and depending on the results, decide if you want to do more testing. I believe it checks your stool for gluten anti-bodies. I don't have very much money, nor is my insurance that great, but I opted for the the complete panel ($369) and I believe it was well worth the money.

Believe me, I know getting tested for stuff is costly, especially without insurance. Good luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Confused about HLA-DQ Celiac gene test result

    2. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Confused about HLA-DQ Celiac gene test result

    3. - knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      38

      Blood results

    4. - knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Confused about HLA-DQ Celiac gene test result

    5. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,466
    • Most Online (within 30 mins)
      7,748

    Bigbear
    Newest Member
    Bigbear
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • EvieJean
    • knitty kitty
      Remember that damage to the small intestine can be microscopic and patchy. Deficiency in Thiamine can result in Gastrointestinal Beriberi.  The symptoms are the same as a glutening!    Clinical profile of patients presenting with thiamine-responsive upper-gastrointestinal upset: A pointer toward gastric beriberi https://pubmed.ncbi.nlm.nih.gov/35810577/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Dental problems can result in vitamin and mineral deficiencies due to Malabsorption in Celiac Disease. The Role of Vitamin B Complex in Periodontal Disease: A Systematic Review Examining Supplementation Outcomes, Age Differences in Children and Adults, and Aesthetic Changes https://pubmed.ncbi.nlm.nih.gov/40218924/
    • trents
      Of course, I thought about the OP not being consistent with the gluten-free diet and about cross reactivity. But you would think those things would show some damage in the biopsy, especially as severe as the symptoms seem to be. SIBO? Perhaps. But then we are probably leaving a celiac diagnosis and that is the question.
    • knitty kitty
      Processed meats and formed meats, like sausage, sandwich meats, chicken nuggets, contain "meat glue" to hold their shape.   This "meat glue" is produced by bacteria and called microbial transglutaminase.  It's the same structually as tissue transglutaminase that our bodies produce in response to gluten.  Microbial transglutaminase provokes the same autoimmune reaction in our bodies as if we had eaten gluten.   Microbial transglutaminase is also used in dairy products like yogurt.   Bacon is high in histamine.  Eating high histamine foods can cause continuing gastrointestinal symptoms.  A low histamine diet helps. Processed gluten free processed foods are not enriched with vitamins and minerals like gluten containing products are.   Deficiencies in Thiamine B1, Niacin B3, and  Vitamin C can also result in gastrointestinal symptoms.   Blood tests for B vitamins are not accurate because they don't measure the amount of a vitamin stored inside cells.  The blood is a transportation system delivering vitamins from the digestive tract around the body.  What's on a truck doesn't tell you that the warehouse is almost empty.   Supplementing with B vitamins is important! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/
    • knitty kitty
      How clean is her gluten free diet?  Is dairy included? Does she eat out?  SIBO?  Thiamine deficiency presenting as Gastrointestinal Beriberi?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.