Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sometimes Ok Eating Gluten?


MKat

Recommended Posts

MKat Explorer

I have had stomach and thryoid issues for years. I've had several celiac blood tests and recently had a biopsy that came back normal. I went pretty much gluten free for 3 weeks and felt great - all stomach problems disappeared, which prompted me to ask for a biopsy. I went back to eating gluten for 2 months before the biopsy and had diarrhea 10-15 times a day. I was a mess w/bloating, etc.

I just got back from vacation where I ate all kinds of pizza and breads and pasta and my stomach did fine. I went from diarrhea to solid on vacation while eating all kinds of junk! I was prepared to go gluten free again after vacation but now I don't know what to do?

Anyone else have times where there stomach is good and other times when it is awful? I was so sure it was gluten because of my 3 week trial....now I'm confused!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Fluffy Assassin Enthusiast
I have had stomach and thryoid issues for years. I've had several celiac blood tests and recently had a biopsy that came back normal. I went pretty much gluten free for 3 weeks and felt great - all stomach problems disappeared, which prompted me to ask for a biopsy. I went back to eating gluten for 2 months before the biopsy and had diarrhea 10-15 times a day. I was a mess w/bloating, etc.

I just got back from vacation where I ate all kinds of pizza and breads and pasta and my stomach did fine. I went from diarrhea to solid on vacation while eating all kinds of junk! I was prepared to go gluten free again after vacation but now I don't know what to do?

Anyone else have times where there stomach is good and other times when it is awful? I was so sure it was gluten because of my 3 week trial....now I'm confused!!!

Have you been tested for allergies? It's possible that there's something that you eat regularly at home that you weren't eating on vacation. (Of course, it would also have to be something you also coincidentally gave up during the gluten-free trial as well.) Maybe a food diary would help. The big question is what did you eat during the 2 months before the biopsy when you were having problems that you didn't eat on vacation. (Or what did you eat on vacation that you didn't eat during the gluten challenge.)

Serversymptoms Contributor

Its possible, since it's known that many who are celiac do not know... some show no signs or symptoms. I experience times eating gluten where I felt fine and just experience a increase in hiccups, gas etc... but other times i experience hiccups, gas, stomach problems and dry mouth. Though also since removing yeast I started to feel even more better, and seems like when I eat something with monosodium glutamate or sugar my symptoms really get a boost. Though Im aware of many health problems I have, some which may have been caused by one issue... some caused by one issue may go away as one is resolved ( such as diagnosing my candida, my likely thyroid problems may recover.. or could have been serverly damage where it wont).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    2. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    Mike Maurillo
    Newest Member
    Mike Maurillo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.